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ph's Story.......

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My son ph was born with a dimple on his lower back.We took an

mri at two weeks of age.the ns said the mri didnt show the lower

part of his spine (most inmportant part) so he couldnt tell, but

said his exam was normal so this was nothing to worry about and he

was a known NS in New York hospital so we let it go.

ph wasnt fully potty trained till about five years old and

walked on his toes.I took him to an ortho and they said this was

just herititary because my younger son was born with bilateral

clubfeet and just do stretches with him.

About a year ago he started to complain about pain in legs and he

couldnt walk more than a couple of blocks because of pain and

fatigue.

We took him to a ns in WPB Florida where we reside now. the NS took

three mri's and found he has sbo,tethered cord,scolosis and a small

sryinx.

He had his surgery on 11/14 and is doing great,as far as back pain

and walking.

He still has pain in the legs and cant walk for too long.

the ns said he probaly needs leg surgery for the toe walking

( achilles tendon lenghting)which we will see the ortho next month.

Ever since he had TC surgery ph has been complaining about

stomach and headaches. Is this normal??

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