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Re: Listing

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I agree with Michele. Being on the waiting list early can only

help you get a transplant. If two people on the waiting list are

equal in terms of blood type match, size and severity status,

then how long you have been waiting determines who receives the

offer.

In addition, being on the waiting list alerts the transplant

organizations and policy makers that there is a need. A notice

of liver shortages is taken much more seriously if there are

16,000 waiting and 4,000 txs a year (4 yr backlog) than if 2,000

are waiting (6 month backlog).

On the other hand, if you are not listed you don't have to think

every call might be THE call. Your wait will be shorter. With

status 2s making up less than 5% of the waiting list and

receiving 40% of the transplants, national average wait once you

are 2b is about 4 months vs 6.5 years for someone who stays

status 3. So your docs philosophy is to wait off the list until

you can get in the short line. Of course others who have been

waiting in line will jump in ahead of you as they move from

status 3 to 2b with their accumulated waiting time. So you might

spend 8 months to a year at 2b, while someone who had waited at

status 3 for 4 years might only spend a month once classified

2b.

Tim

--- Bruno wrote:

> In terms of

> waiting time I've been listed as a status 3 for a year and

> half.

> Waiting time comes into play if two people for example are a

> status 2a

> or 2b and a match becomes available for both of them the one

> with the

> longer waiting time will receive the liver. My doc. says

> waiting time

> can only help you and because of the nature of PSC that is why

> he pushed

> to get me listed early.

> Michele, NJ

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Michele & Tim--

Thanks for the info. I'm going to print your msgs & read them again before I

go to my appt. Seems like something's not right in Denmark. Why would they

want to wait if it means a delay in the end?

Thanks again.

Take Care & Everyone have a good 4th

Laurie

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