Re: couple things...

[Guest guest]

Hi Everyone-

To the new person with the white coating on her tongue and

blisters...you have systemic yeast I bet. If you have not heard of this

before there are a couple of books out there called the Yeast Connection

and Women by Crook and The Yeast Syndrome(older book) don't know the

author. I white coating on the tongue is a very definitive sign similar

to thrush in babies. You should look into it. It is cheaper than Dr.

s oxalate so you can try that first and see how it goes. Also,

its not in your head so never let anyone tell you that.

, someone did write about the yeast thing but I don't remember

when or who. I get my posts in digest form so cannot really help there.

Also, I am glad your treatment is starting to work.

Still no one has responded about Dr. and his success rate. Does

that mean the only Robyn has been successfully treated so far by him? I

am a patient of his and I fully support him. He is a fantastic caring

and sensitive doctor but still am curious how many he has treated

successfully. I have been on a regime now since Dec. and I know I am

not better down there. I do not even have to have sex to know that. I

cannot put in a cotton tampon without an applicator so that tells me all

of it right there.

I pretty much think my problem is caused by one of two things. Yeast

or nerve damage. I think the latter is more likely though when I did the

yeast test I got over 180 which means I have a yeast problem. The thing

is that test is very subjective and I really do not have many " symptoms "

of it. I have cut out almost completely bread and sugar though I do

slip every once in a while and can feel my body react to it. I am a veg

head so cutting out the bread has been a bit difficult. I only eat

organic whole wheat pasta and usually steam my veg. I have started

taking acidophilus because I think I have a touch of IBS though I have

never been officially diagnosed with it. The pain in my colon gives me

a good indication and the coloscopy I had showed nothing wrong. So,

anyway, I think I might try acupuncture. Has anyone tried this and been

successful even for a short while?

Well, hope all of you are enjoying your holiday weekend....I am in the

UK and don't get one!!!

[Guest guest]

In a message dated 5/30/99 5:27:04 AM Eastern Daylight Time,

n.singer@... writes:

<< I am a veg

head so cutting out the bread has been a bit difficult. I only eat

organic whole wheat pasta and usually steam my veg. I have started >>

Hi ,

Sorry you are still burning so much in spite of the yeast you have cut out of

your diet. You mentioned the oxalate/'s theory. It might be a good

idea to either get tested or try to cut out the high oxalate foods you are

eating. Organic whole wheat is a HIGH oxalate food, and many vegetable are

either high or medium. I find if I eat whole wheat I am in a lot of pain.

Here's the diet and treatment.

<A HREF= " http://www.branwen.com/rowan/oxalate.htm " >The Low Oxalate Diet</A>

<A HREF= " http://www.vulvarpainfoundation.org/ " >Welcome to The Vulvar Pain

Foundation's Website

</A>

<A HREF= " http://www.vulvarpainfoundation.org./Low_oxalate_treatment.htm " >Low

Oxalate Treatment

</A>

There really are many women that have been helped by the oxalate theory. It

does seem expensive to be tested properly by Dr. 's however it's a one

time charge and he will follow your progress indefinitely.

Darlene

[Guest guest]

" n.singer " wrote:

> Still no one has responded about Dr. and his success rate. Does

> that mean the only Robyn has been successfully treated so far by him? I

> am a patient of his and I fully support him. He is a fantastic caring

> and sensitive doctor but still am curious how many he has treated

> successfully. I have been on a regime now since Dec. and I know I am

> not better down there.

Hi, ,

I am a patient of Dr. ' and have had very little

improvement since I started going to him in November '98. I

also think he is great, though, and that he is trying as

hard as anyone could to find out what is wrong with me.

It's my understanding that it just will take some time.

I've had two biopsies, many wet preps, and know many things

that my problem isn't, but not what it is yet. In the

meantime, going crazy with itching.

Dr. has given me many things that help with the

symptoms, as long as I stay sedentary. If I start to walk

around, I'm suffering again. He hopes to find an answer

soon. I've had nine visits so far.

I don't know what his overall success rate is, but I know

that he looks at vulvas all day, and many women are cured in

just one visit. It all depends on what you have and how

common it is.

Olivia