Guest guest Posted February 22, 1999 Report Share Posted February 22, 1999 Amen! > Thank You > > To all: > > I've only been a member for a short time and I find myself looking forward > to reading your messages each and every day. Some I relate to others I > appreciate...I just want to say thank you in advance for your time, > thoughts and concerns.. What I like is the feeling that I can express > myself .. that your listening...This is the best thing that could have > possibly happen to me... > > Lynn > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 1999 Report Share Posted September 3, 1999 Debbie, I never found anything that relieved the itching. I tried atarax, with a break after several months. I couldn't tell the difference. I took Questran for a month, since I noticed no effect and it was more of a bother than popping a pill, I stopped without giving it a long term chance (at that point I didn't believe it would work for me). My itching seemed to subside when my bilirubin got high (>4). Early on, as my bilirubin crept above 1.5 the itching bothered me a lot, and especially at night as you say. Later, at higher bili levels I don't recall much of a problem. My brother-in-law who is a GP commented on seeing the high bili levels that I must be really bothered by itching and I had to admit it wasn't a big problem at that point. I don't know if anyone else has had a similar experience. My theory is the nerve receptors get saturated and stop sending signals or my brain just started to ignore the itching signals. Similar to the was you get used to strong smells. Very noticeable when you enter a room, but less intense after a few minutes. Tim --- J & D Lynch wrote: > Thank you to those who suggested the Questran and > cholestyramine for my itching. The itching has become > unbearable especially at night so I phoned my study nurse and > asked for the She spoke to my GI who agreed. It is > perfectly safe while nursing and pregnant because it is not > absorbed by the body but merely binds itself to the bile and > then excretes it. I've had two doses so far and no change so > I hope it kicks in soon. > > Those of you who have used Questran, how long does it normally > take before it begins working?? > > Debbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 Answer in the way you think it relates to your Child. Also, we are here to answer any of your Questions about your Child. Me Nebraska, USA mymocha@... > I am not sure how to answer most of these as I a parent to a TSC child Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 They didn't not numb me when they did my spinal taps. -- Re: thank you I have had several epidurals and blocks in my back and neck. they are not back at all. most of the time they kinda sedate you and they do numb the area good. and all of the one's I have had except for one have worked really good. and when it has been long enough I will get another one. but because I have a problem with the vertebrae's in my backs I have to wait longer in between than most people. Jena ~:~Jena~:~ My Home Page My E-mail Re: thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Annemie Thank you for all the little stories that you have posted. I've read them, but haven't responded to them directly. Just wanted to say thank you and I appreciate them. They do brighten up my day. Hope you don't mind, but I wanted to pass some of them on to my family. I also suffer from neuropathy - Autonomic neuropathy caused by an auto immune disorder brought on possibly from the flu. I just started with a new Dr. a couple of weeks ago. She was the first one that was willing to try a different pain med other than tylenol #3. I've been on the new med now for almost 2 weeks. It's taken a while for me to get used to how it works, but I have noticed a slight improvement in my pain level during the night. Hugs Diane-Minnesota Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Hello Diane You are welcome and I hope to be able to continue sending stuff , at the moment I have pc problems so if it takes longer then you know what the reason is ,.. And surely you can send whatever I send to your friends and family I dont have a problem with that at all,.. I also got a ((( email of a lady that has neuropathy and it did scare me , I will send it to you , so be prepaired and if you dont want to see it then delete it please,.. I know that I deal with neuropathy and it is bad enough you do too:((( liefs Annemie Thank you > Annemie > > Thank you for all the little stories that you have posted. I've read > them, but haven't responded to them directly. Just wanted to say thank > you and I appreciate them. They do brighten up my day. Hope you don't > mind, but I wanted to pass some of them on to my family. > > I also suffer from neuropathy - Autonomic neuropathy caused by an auto > immune disorder brought on possibly from the flu. I just started with > a new Dr. a couple of weeks ago. She was the first one that was > willing to try a different pain med other than tylenol #3. I've been > on the new med now for almost 2 weeks. It's taken a while for me to > get used to how it works, but I have noticed a slight improvement in my > pain level during the night. > > Hugs > Diane-Minnesota > > > > To read these messages on the Hugs web site go to: > http://groups.yahoo.com/group/Hugs-N-Pain > you can contact me privately at starlyin@... > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them > Quote Link to comment Share on other sites More sharing options...
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