Re: Is there anyone who's had successful surgery for fatty filum?

[Guest guest]

Hi Dee...Remember that those who had a successful surgery have gone on with

their lives and are not on a support group so you are seeing a skewed

distribution here for sure. On the other hand, someone recently sent a

research

article suggesting that 50% improve, close to that number stayed the same and a

smaller percent got worse following surgery. The point of surgery is to

prevent continuing decline. If you happen to get return of some function it is

a

bonus. There seems to be even less known about adults than there is about

children. I know everyone here would agree that you should try to get a few

opinions if at all possible.

The irratating part is that often the " surgery " is successful, but there is

no way to know who will develop excessive scar tissue which will clamp that

cord right back down again. Tough call for you and I sure wish it were

neater and cleaner regarding making these decisions.

Let us know what you decide.

randee

In a message dated 11/23/2007 11:06:47 P.M. Eastern Standard Time,

deeinbc@... writes:

I have been lingering on this site for quite awhile and reading many

posts, seems most of you have had bad experiences with tc surgery. I

have a neurosurgeon appt next week to once again discuss possible

surgery (I saw neuro 7 years ago and couldn't decide on surgery so

never did it).

I am 43 years old, have tethered cord with fatty filum, chronic back

pain, leg tightness and pain and nerve damage down one leg. I can

control the pain pretty well if I do very little in the way of

activity, but the less I do the less it seems I can do. I am concerned

about my leg as it is gradually getting weaker and tighter (have lost a

lot of ankle flexibility and ankle reflex virually gone). I have no

serious bladder or bowel problems. I have chronic headaches but not

sure if it could be related at all to TC. I would love to lead a more

active life again.

Anyways, I am wondering if there is anyone out there who's tethered

cord was due to a fatty filum and has actually improved after surgery

and felt it was worthwhile?

Thanks

Dee

**************************************Check out AOL's list of 2007's hottest

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[Guest guest]

Dee, I had the surgery 3 years ago. I still have symptoms CAUSED by the surgery

such as numbness and nerve pain in my foot but all the tethered issues were

solved. My strength has increased significantly since I was able to resume

weight training etc. Those of us on this board all have some kind of remaining

issues which results in a more nuanced view of the benefits - but don't forget

there is a whole group of people who had surgery, got fine and were able to move

on. In summary my answer is: if you believe what the NS says about it getting

worse etc. there are not too many options other than surgery. Make sure you find

someone who does this surgery routinely amd spend the time to explain all

possble consequences. Mine did not do this but fortunately everything turned out

ok. Good luck!

Is there anyone who's had successful surgery for fatty filum?

I have been lingering on this site for quite awhile and reading many

posts, seems most of you have had bad experiences with tc surgery. I

have a neurosurgeon appt next week to once again discuss possible

surgery (I saw neuro 7 years ago and couldn't decide on surgery so

never did it).

I am 43 years old, have tethered cord with fatty filum, chronic back

pain, leg tightness and pain and nerve damage down one leg. I can

control the pain pretty well if I do very little in the way of

activity, but the less I do the less it seems I can do. I am concerned

about my leg as it is gradually getting weaker and tighter (have lost a

lot of ankle flexibility and ankle reflex virually gone). I have no

serious bladder or bowel problems. I have chronic headaches but not

sure if it could be related at all to TC. I would love to lead a more

active life again.

Anyways, I am wondering if there is anyone out there who's tethered

cord was due to a fatty filum and has actually improved after surgery

and felt it was worthwhile?

Thanks

Dee

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[Guest guest]

hi Dee,

My name is and I am 42 years old. I had my

surgery when I was 13 years old. Before my surgery, I

seemed like a normal healthy boy except that I ran a

little funny(my right foot turned when I ran) and I

always had to pee. Sometimes I would go to the

bathroom and then feel the urge to go again soon

after. When I was in a situation that made me feel

nervous, i would leak. Well, we decided to have the

surgery. My cord was released and the dr. said that he

tried to remove some of the fatty tumor.

Today my condition is this, my calves are small and I

cannot stand on my toes. I had surgery on my left

ankle about a year after my back surgery. I walk just

fine. I am relatively pain free except for my lower

back which acts up from time to time. Well, to be

honest, it has been acting up for about two years now.

I have not seeked help for this. Advil seems to work

just fine and when I lose some weight it seems to help

as well. For the last six weeks, my back has felt

great.

I have a neurogenic bladder and bowel. I use a

catheter to empty my bladder and that is fine. No

complaints here. The bowel issue is more difficult to

deal with. I have irregular bm's and sometimes have

accidents and don't even know they happen until I

smell something or feel some wetness.

Before the surgery, I could run and play baseball,

never heard of a catheter and didn't have the bowel

issues that I have today. When I have my bad days, I

think about that and wonder what would've happened if

i didn't have the surgery. From that point of view, I

think my surgery wasn't a success.

But after being with this group for a while and seeing

the issues that other people deal with, I definately

feel fortunate. I am relatively pain free and still

have an active life. From that point of view, my

surgery was a success.

Feel free to email me directly if you have any other

questions.

> I have been lingering on this site for quite awhile

> and reading many

> posts, seems most of you have had bad experiences

> with tc surgery. I

> have a neurosurgeon appt next week to once again

> discuss possible

> surgery (I saw neuro 7 years ago and couldn't decide

> on surgery so

> never did it).

>

> I am 43 years old, have tethered cord with fatty

> filum, chronic back

> pain, leg tightness and pain and nerve damage down

> one leg. I can

> control the pain pretty well if I do very little in

> the way of

> activity, but the less I do the less it seems I can

> do. I am concerned

> about my leg as it is gradually getting weaker and

> tighter (have lost a

> lot of ankle flexibility and ankle reflex virually

> gone). I have no

> serious bladder or bowel problems. I have chronic

> headaches but not

> sure if it could be related at all to TC. I would

> love to lead a more

> active life again.

>

> Anyways, I am wondering if there is anyone out there

> who's tethered

> cord was due to a fatty filum and has actually

> improved after surgery

> and felt it was worthwhile?

>

> Thanks

> Dee

>

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email

> kathy@...,michelle@...,

> rick@...

>

[Guest guest]

-

I am surprised you were diagnosed with TC as a child as you are the same age as

I am -- how did they diagnose it before MRI's and CT scans? I too had a normal

childhood, no problems at all till I hit 18 years of age, but as an adult have

been riddled with problems -- so just because you were normal as a kid doesn't

mean you wouldn't have had problems as an adult without the surgery. Since I

didn't have surgery as a younger person I often wonder the exact opposite of you

-- would I have been better all these years if I had been diagnosed and had

surgery when I was younger. I guess we will always been wondering " what if " .

Dee

To: tetheredspinalcord@...: djuro66@...: Sat, 24 Nov

2007 06:45:55 -0800Subject: Re: Is there anyone who's had successful

surgery for fatty filum?

hi Dee,My name is and I am 42 years old. I had mysurgery when I was 13

years old. Before my surgery, Iseemed like a normal healthy boy except that I

ran alittle funny(my right foot turned when I ran) and Ialways had to pee.

Sometimes I would go to thebathroom and then feel the urge to go again

soonafter. When I was in a situation that made me feelnervous, i would leak.

Well, we decided to have thesurgery. My cord was released and the dr. said that

hetried to remove some of the fatty tumor.Today my condition is this, my calves

are small and Icannot stand on my toes. I had surgery on my leftankle about a

year after my back surgery. I walk justfine. I am relatively pain free except

for my lowerback which acts up from time to time. Well, to behonest, it has been

acting up for about two years now.I have not seeked help for this. Advil seems

to workjust fine and when I lose some weight it seems to helpas well. For the

last six weeks, my back has feltgreat.I have a neurogenic bladder and bowel. I

use acatheter to empty my bladder and that is fine. Nocomplaints here. The bowel

issue is more difficult todeal with. I have irregular bm's and sometimes

haveaccidents and don't even know they happen until Ismell something or feel

some wetness.Before the surgery, I could run and play baseball,never heard of a

catheter and didn't have the bowelissues that I have today. When I have my bad

days, Ithink about that and wonder what would've happened ifi didn't have the

surgery. From that point of view, Ithink my surgery wasn't a success.But after

being with this group for a while and seeingthe issues that other people deal

with, I definatelyfeel fortunate. I am relatively pain free and stillhave an

active life. From that point of view, mysurgery was a success.Feel free to email

me directly if you have any otherquestions.> I have been lingering on this

site for quite awhile> and reading many > posts, seems most of you have had bad

experiences> with tc surgery. I > have a neurosurgeon appt next week to once

again> discuss possible > surgery (I saw neuro 7 years ago and couldn't decide>

on surgery so > never did it).> > I am 43 years old, have tethered cord with

fatty> filum, chronic back > pain, leg tightness and pain and nerve damage down>

one leg. I can > control the pain pretty well if I do very little in> the way of

> activity, but the less I do the less it seems I can> do. I am concerned >

about my leg as it is gradually getting weaker and> tighter (have lost a > lot

of ankle flexibility and ankle reflex virually> gone). I have no > serious

bladder or bowel problems. I have chronic> headaches but not > sure if it could

be related at all to TC. I would> love to lead a more > active life again.> >

Anyways, I am wondering if there is anyone out there> who's tethered > cord was

due to a fatty filum and has actually> improved after surgery > and felt it was

worthwhile?> > Thanks> Dee> > > > Not Medical Advice. We Are Not Doctors.> Need

help with the list? Email> kathy@...,michelle@...,>

rick@... >

[Guest guest]

,

Have you worked with a GI doc that specializes in either SB or SCI patients

to develop a bowel program? That should be able to help stop a lot of the

accidents and help you schedule your bowel routine so you can " plan " your

BMs. That might make your life a better in the bowel area. Bowel accidents

are DEFINITELY not pleasant. A good bowel program can regulate things for

the most part.

Jenn

>

>

> I have a neurogenic bladder and bowel. I use a

> catheter to empty my bladder and that is fine. No

> complaints here. The bowel issue is more difficult to

> deal with. I have irregular bm's and sometimes have

> accidents and don't even know they happen until I

> smell something or feel some wetness.

>

>

> Feel free to email me directly if you have any other

> questions.

>

>

>

>

>

[Guest guest]

From what I gather, even though it is not my personal experience with

this Condition and treatment, many, even though they may be here now

and talk about their problems, found enough benefit to have the Surgery, or

for some, repeated

Surgery.

Just because one is a member of this List doesn't mean they have found

no benefit, at some point and time, from having the Surgery, if they

did have it (as not all have). I can see why it might make one think

that, though.

Brande

mymocha@...

Anyways, I am wondering if there is anyone out there who's tethered

cord was due to a fatty filum and has actually improved after surgery

and felt it was worthwhile?

..

[Guest guest]

Hi,

I just thought I would chime in. I just had surgery for fatty filum this

past December. It can take a year to see what all changes will occur, but so far

I have had a reduction in spasticity, and a HUGE reduction in back pain. That

aspect alone made it worthwhile for me. I will soon be fit for KAFO's and maybe

start working on standing and perhaps walking soon. The back pain alone make

standing excruciating before.

Brande wrote:

From what I gather, even though it is not my personal experience with

this Condition and treatment, many, even though they may be here now

and talk about their problems, found enough benefit to have the Surgery, or

for some, repeated

Surgery.

Just because one is a member of this List doesn't mean they have found

no benefit, at some point and time, from having the Surgery, if they

did have it (as not all have). I can see why it might make one think

that, though.

Brande

mymocha@...

Anyways, I am wondering if there is anyone out there who's tethered

cord was due to a fatty filum and has actually improved after surgery

and felt it was worthwhile?

..

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Glad to hear your surgery went well, what is a KAFO and were you not standing

and walking before the surgery?

Dee

To: tetheredspinalcord@...: kitteneyez05@...: Thu, 31

Jan 2008 12:09:41 -0800Subject: Re: Re: Is there anyone who's had

successful surgery for fatty filum?

Hi,I just thought I would chime in. I just had surgery for fatty filum this past

December. It can take a year to see what all changes will occur, but so far I

have had a reduction in spasticity, and a HUGE reduction in back pain. That

aspect alone made it worthwhile for me. I will soon be fit for KAFO's and maybe

start working on standing and perhaps walking soon. The back pain alone make

standing excruciating before. Brande wrote:From what I

gather, even though it is not my personal experience withthis Condition and

treatment, many, even though they may be here nowand talk about their problems,

found enough benefit to have the Surgery, or for some, repeatedSurgery.Just

because one is a member of this List doesn't mean they have foundno benefit, at

some point and time, from having the Surgery, if theydid have it (as not all

have). I can see why it might make one thinkthat,

though.Brandemymocha@..., I am wondering if there is anyone out

there who's tetheredcord was due to a fatty filum and has actually improved

after surgeryand felt it was worthwhile?. ---------------------------------Never

miss a thing. Make Yahoo your homepage.[Non-text portions of this message have

been removed]

_________________________________________________________________

[Guest guest]

A KAFO is a Knee Ankle Foot Orthosis. Basically a brace that goes from foot to

mid thigh and has the ability to lock at the knee for stability. I wasn't

walking. I have a lot of weakness and spasticity.

Dee Allaert wrote:

Glad to hear your surgery went well, what is a KAFO and were you not standing

and walking before the surgery?

Dee

To: tetheredspinalcord@...: kitteneyez05@...: Thu, 31

Jan 2008 12:09:41 -0800Subject: Re: Re: Is there anyone who's had

successful surgery for fatty filum?

Hi,I just thought I would chime in. I just had surgery for fatty filum this past

December. It can take a year to see what all changes will occur, but so far I

have had a reduction in spasticity, and a HUGE reduction in back pain. That

aspect alone made it worthwhile for me. I will soon be fit for KAFO's and maybe

start working on standing and perhaps walking soon. The back pain alone make

standing excruciating before. Brande wrote:From what I

gather, even though it is not my personal experience withthis Condition and

treatment, many, even though they may be here nowand talk about their problems,

found enough benefit to have the Surgery, or for some, repeatedSurgery.Just

because one is a member of this List doesn't mean they have foundno benefit, at

some point and time, from having the Surgery, if theydid have it (as not all

have). I can see why it might make one thinkthat,

though.Brandemymocha@..., I am wondering if there is anyone out

there who's tetheredcord was due to a fatty filum and has actually improved

after surgeryand felt it was worthwhile?. ---------------------------------Never

miss a thing. Make Yahoo your homepage.[Non-text portions of this message have

been removed]

__________________________________________________________

[Guest guest]

>

> I have been lingering on this site for quite awhile and reading

many

> posts, seems most of you have had bad experiences with tc surgery.

I

> have a neurosurgeon appt next week to once again discuss possible

> surgery (I saw neuro 7 years ago and couldn't decide on surgery so

> never did it).

>

> I am 43 years old, have tethered cord with fatty filum, chronic

back

> pain, leg tightness and pain and nerve damage down one leg. I can

> control the pain pretty well if I do very little in the way of

> activity, but the less I do the less it seems I can do. I am

concerned

> about my leg as it is gradually getting weaker and tighter (have

lost a

> lot of ankle flexibility and ankle reflex virually gone). I have no

> serious bladder or bowel problems. I have chronic headaches but

not

> sure if it could be related at all to TC. I would love to lead a

more

> active life again.

>

> Anyways, I am wondering if there is anyone out there who's tethered

> cord was due to a fatty filum and has actually improved after

surgery

> and felt it was worthwhile?

>

> Thanks

> Dee

>Dee I still have plenty of probs even more than before of course now

I have found out that i do have a couple of other incurable spinal

diseases to go along with BUT even though I still live in pain my

pain level was unlivable before the surg. if it had not been for that

I would have prob not had the surg at the time but it had gotten to

where I was not living anymore and the pain now is horrid but then it

was where I was like the girl on the exorcist!in screaming pain!only

u can make the choice but for me if my pain was not Great or I didn't

have some other serious sympts i think the surg could wait or at

least that is what I would have done and that is all I can speak for

is myself.....the pain was just to much to bear for me I can't begin

to describe that kind of pain.this pain is bad it really is and i

have many probs but i would have to say really my #1reason was my

severe pain had taken away my life and now though life as i knew is

gone.good luck i hope u find your answer but that is one only u and

your family can make and hopefully u have a NS u trust to do the

surg.I'll be thinking and praying....

[Guest guest]

One of the problems with trying to figure out how well

this surgery works from us is this is a support group

that has been around in this iteration for 9 years,

and the list this one took off from was around for

years before that. People come onto the list, have

surgery, get better, and leave. They no longer need

support. The people who hang around are those with the

less than perfect outcomes, the people who continue to

need or want support for other reasons. We are not a

good group to sample from to see how successful or not

this surgery can be. Some of us (not me, but some of

the members) are really the worst case outcomes. But

the people who come here to find out what's up, have

surgery and feel better? They move on and we don't

hear from them.

I won't have surgery again, but only because I think

surgery has done all it can for me. My first surgery

was a raging success, gave me 10 years of great

outcome. The second surgery wasn't quite as

successful, but it did keep me on my feet and working

this long - almost 10 years - and I'm just now back to

where I was before I had surgery, in terms of pain and

weakness. Ten years isn't a small amount of time. I

wouldn't change that I had surgery.

This list can be very scary. I know I try really hard

not to be too doom and gloom and scare off people who

are new and just haven't a clue what to expect.

Because we aren't a good measure of outcomes, because

we're so skewed in one direction, there isn't any good

that can come of purposely scaring people. This list

is an awesome place to get questions answered and to

find out what to ask your doctor, how to try to get

the best neurosurgeon you can find, and what to expect

after surgery, but we're aren't a crystal ball you can

look into and say " That's what I can expect. "

Unfortunately, some of us end up with continued

problems. And I really wish we could look into the

future and predict who will have positive outcomes and

who won't.

>

> >

> > I have been lingering on this site for quite

> awhile and reading

> many

> > posts, seems most of you have had bad experiences

> with tc surgery.

> I

> > have a neurosurgeon appt next week to once again

> discuss possible

> > surgery (I saw neuro 7 years ago and couldn't

> decide on surgery so

> > never did it).

> >

> > I am 43 years old, have tethered cord with fatty

> filum, chronic

> back

> > pain, leg tightness and pain and nerve damage down

> one leg. I can

> > control the pain pretty well if I do very little

> in the way of

> > activity, but the less I do the less it seems I

> can do. I am

> concerned

> > about my leg as it is gradually getting weaker and

> tighter (have

> lost a

> > lot of ankle flexibility and ankle reflex virually

> gone). I have no

> > serious bladder or bowel problems. I have chronic

> headaches but

> not

> > sure if it could be related at all to TC. I would

> love to lead a

> more

> > active life again.

> >

> > Anyways, I am wondering if there is anyone out

> there who's tethered

> > cord was due to a fatty filum and has actually

> improved after

> surgery

> > and felt it was worthwhile?

> >

> > Thanks

> > Dee

Check out my blog: http://princessmatildalovestostamp.blogspot.com

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[Guest guest]

I also had my first surgery b/c of pain. (Not filum type tether, but from

diastematomyelia). I thought my pain was really bad at the time. I thought I

could not live in that kind of pain. Well, the pain was back and worse than

before the initial surgery after 4 months. Then I went on chronic pain meds.

I had my second surgery because of pain. I thought that it had gotten so

much worse that even with the pain meds I didn't think it was controlled

enough. 6 months after my second untethering, I ended up developing

syringomyelia (I also developed arachnoiditis after my second surgery that

just got progressively worse). With the syringomyelia, I went from walking

normally to barely able to walk even with AFOs and forearm crutches. Because

the syringomyelia was not hitting a plateau, I had the third surgery to stop

that and the pain I had developed was worse than ever before (and I

developed BAD spasticity).

Now that I have had all three surgeries, I still live in constant pain and

take pain meds and meds for spasticity daily, just at a much higher dose

than before. And with all my meds, it just makes my pain at a level that I

am able to function in the world (most days at least). Best I can figure,

the daily pain I live in now is worse than before my first surgery, and even

worse than before my second. Yet, because I had not experienced pain like

that before, when I went into those two surgeries, I thought the pain was

horrific and unlivable. It is just a testament to how your perspective can

change over time. Granted, I may have developed neurological symptoms if I

never had the first surgery, but they certainly couldn't be any worse than I

am right now (T12 paraplegic with no bowel or bladder function).

My revised definition of horrible pain is pain that cannot be controlled or

made manageable with meds at any dose. If I would have used that definition

before my first surgery, I never would have had it. It certainly didn't

provide me any benefits that I can see (at least without knowing the outcome

if I never would have had it, but it couldn't be any worse than how I am

now).

A person's definition of " intolerable pain " can change over time. If only I

would have known what my future definition would be now back then. So much

for the magic 8 ball!

Jenn

On Feb 1, 2008 11:35 PM, sandra_sanderson2000 <

sandra_sanderson2000@...> wrote:

> Dee I still have plenty of probs even more than before of course now

> I have found out that i do have a couple of other incurable spinal

> diseases to go along with BUT even though I still live in pain my

> pain level was unlivable before the surg. if it had not been for that

> I would have prob not had the surg at the time but it had gotten to

> where I was not living anymore and the pain now is horrid but then it

> was where I was like the girl on the exorcist!in screaming pain!only

> u can make the choice but for me if my pain was not Great or I didn't

> have some other serious sympts i think the surg could wait or at

> least that is what I would have done and that is all I can speak for

> is myself.....the pain was just to much to bear for me I can't begin

> to describe that kind of pain.this pain is bad it really is and i

> have many probs but i would have to say really my #1reason was my

> severe pain had taken away my life and now though life as i knew is

> gone.good luck i hope u find your answer but that is one only u and

> your family can make and hopefully u have a NS u trust to do the

> surg.I'll be thinking and praying....

>

>

>

[Guest guest]

,

I agree that this is not the best population to sample TC surgery outcomes.

But, knowing each individuals experiences can help a person know what the

major negatives can be. My first surgeon certainly didn't let me know what

they were and downplayed it like it just never happens. He never told me

that retethering was even a possibility. So while people with less than

optimal outcomes (myself included) don't intend to scare anyone, I think

knowing that those worst case scenarios that some surgeons pass off as next

to impossible do indeed happen. Not saying that my outcome, for example,

would ever happen to anyone else, but if I had read of such outcomes before

my first surgery, I would have been able to ask more detailed questions. I

know, at least for myself, I never intend to scare anyone ... just tell my

story.

Also, when you find that magic 8 ball that can tell you what your outcome

will be, let me know

Jenn

> One of the problems with trying to figure out how well

> this surgery works from us is this is a support group

> that has been around in this iteration for 9 years,

> and the list this one took off from was around for

> years before that. People come onto the list, have

> surgery, get better, and leave. They no longer need

> support. The people who hang around are those with the

> less than perfect outcomes, the people who continue to

> need or want support for other reasons. We are not a

> good group to sample from to see how successful or not

> this surgery can be. Some of us (not me, but some of

> the members) are really the worst case outcomes. But

> the people who come here to find out what's up, have

> surgery and feel better? They move on and we don't

> hear from them.

>

> I won't have surgery again, but only because I think

> surgery has done all it can for me. My first surgery

> was a raging success, gave me 10 years of great

> outcome. The second surgery wasn't quite as

> successful, but it did keep me on my feet and working

> this long - almost 10 years - and I'm just now back to

> where I was before I had surgery, in terms of pain and

> weakness. Ten years isn't a small amount of time. I

> wouldn't change that I had surgery.

>

> This list can be very scary. I know I try really hard

> not to be too doom and gloom and scare off people who

> are new and just haven't a clue what to expect.

> Because we aren't a good measure of outcomes, because

> we're so skewed in one direction, there isn't any good

> that can come of purposely scaring people. This list

> is an awesome place to get questions answered and to

> find out what to ask your doctor, how to try to get

> the best neurosurgeon you can find, and what to expect

> after surgery, but we're aren't a crystal ball you can

> look into and say " That's what I can expect. "

> Unfortunately, some of us end up with continued

> problems. And I really wish we could look into the

> future and predict who will have positive outcomes and

> who won't.

>

>

>

>

> >

> > >

> > > I have been lingering on this site for quite

> > awhile and reading

> > many

> > > posts, seems most of you have had bad experiences

> > with tc surgery.

> > I

> > > have a neurosurgeon appt next week to once again

> > discuss possible

> > > surgery (I saw neuro 7 years ago and couldn't

> > decide on surgery so

> > > never did it).

> > >

> > > I am 43 years old, have tethered cord with fatty

> > filum, chronic

> > back

> > > pain, leg tightness and pain and nerve damage down

> > one leg. I can

> > > control the pain pretty well if I do very little

> > in the way of

> > > activity, but the less I do the less it seems I

> > can do. I am

> > concerned

> > > about my leg as it is gradually getting weaker and

> > tighter (have

> > lost a

> > > lot of ankle flexibility and ankle reflex virually

> > gone). I have no

> > > serious bladder or bowel problems. I have chronic

> > headaches but

> > not

> > > sure if it could be related at all to TC. I would

> > love to lead a

> > more

> > > active life again.

> > >

> > > Anyways, I am wondering if there is anyone out

> > there who's tethered

> > > cord was due to a fatty filum and has actually

> > improved after

> > surgery

> > > and felt it was worthwhile?

> > >

> > > Thanks

> > > Dee

>

> Check out my blog: http://princessmatildalovestostamp.blogspot.com

>

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