Re: How to find a vulvar specialist?

[Guest guest]

HI ,

What state are you located in?? Perhaps someone on the list may know of

someone in your area?? It's worth a try.

Shirley's advice on the NVA and VPF is GREAT also! These are definite

avenues that you must pursue!

Good luck!

Carla

[Guest guest]

Carla,

I live in Illinois. I have already asked everyone on the list this question.

Thanks,

CBSTOPSMom@...

09/21/99 06:12 PM GMT

Please respond to VulvarDisordersonelist

To: VulvarDisordersonelist

cc: (bcc: A. Monasteri)

Subject: Re: How to find a vulvar specialist?

From: CBSTOPSMom@...

HI ,

What state are you located in?? Perhaps someone on the list may know of

someone in your area?? It's worth a try.

Shirley's advice on the NVA and VPF is GREAT also! These are definite

avenues that you must pursue!

Good luck!

Carla

[Guest guest]

Shirley,

Thanks for the leads. Do you have the link for the NVA. Does this stand for

National Vulvar Association?

Take care,

bayougodes@...

09/21/99 05:54 PM GMT

Please respond to VulvarDisordersonelist

To: VulvarDisordersonelist

cc: (bcc: A. Monasteri)

Subject: Re: How to find a vulvar specialist?

From: bayougodes@...

,

I found my doctor through my group leader for the NVA. I belong to

both the NVA and VPF. Sources of info I would not like to do without!

Both foundations sent me a list of doctors in my area who were known by

other members in my area to be sympathetic and knowledgable in treatment

of vulodynia and related aspects of it. If your a member of either of

these organizations you certainly can get in touch and ask for a list.

Blessings,

Shirley.

denise.a.monasteri@... wrote:

>

> From: denise.a.monasteri@...

>

> How did everyone find their vulvar specialist. I do not know were to start.

> Should I call my insurance company? Should I talk to my gyn.? Or, do I just

> take out the phone book and start calling around. This information will be

very

> helpful for me.

>

> Thanks,

>

>

> >

[Guest guest]

,

I wish I could send you a link! I just changed servers and I have

no idea how to work it yet. Perhaps some nice lady here will send you

the links for The National Vulvodynia Association (NVA) and The Vulva

Pain Foundation (VPF).

Blessings!

Shirley.

denise.a.monasteri@... wrote:

>

> From: denise.a.monasteri@...

>

> Shirley,

>

> Thanks for the leads. Do you have the link for the NVA. Does this stand for

> National Vulvar Association?

>

> Take care,

>

>

> bayougodes@...

> 09/21/99 05:54 PM GMT

> Please respond to VulvarDisordersonelist

>

> To: VulvarDisordersonelist

> cc: (bcc: A. Monasteri)

> Subject: Re: How to find a vulvar specialist?

>

> From: bayougodes@...

>

> ,

>

> I found my doctor through my group leader for the NVA. I belong to

> both the NVA and VPF. Sources of info I would not like to do without!

> Both foundations sent me a list of doctors in my area who were known by

> other members in my area to be sympathetic and knowledgable in treatment

> of vulodynia and related aspects of it. If your a member of either of

> these organizations you certainly can get in touch and ask for a list.

>

> Blessings,

> Shirley.

>

> denise.a.monasteri@... wrote:

> >

> > From: denise.a.monasteri@...

> >

> > How did everyone find their vulvar specialist. I do not know were to start.

> > Should I call my insurance company? Should I talk to my gyn.? Or, do I

just

> > take out the phone book and start calling around. This information will be

> very

> > helpful for me.

> >

> > Thanks,

> >

> >

> > >

[Guest guest]

:

NVA stands for National Vulvodynia Association

http://www.nva.org

[Guest guest]

Hi ,

I'm sure you've probably gotten lots of advice from the others on this list.

Your email is at the top of my list so I'll respond. Excuse me for repeating.

I went through so many horrible doctors that had no compassion, tried to say

I was crazy, and hurt me worse while claiming to be experts. I actually

found my wonderful doctor through this list. His name is Dr. Gibbons and he

is in Hartford, CT.

I think he is the best doctor in the world. He returns my calls even if I

have nothing important to say but am just near the breaking point.

I am a member of the Vulvar Pain foundation. If you join they will give you

the names of doctors in your area that are members of the foundation, or who

have been recommended by the women in your area. They will also put you in

touch with a volunteer leader who can give you advice too.The only thing I

don't like about the foundation is its emphasis on oxalate. But I figure $40

is going to a worthy cause.

Good luck in finding a good doctor. They are out there, but try to get

recommendations from others in your area who have suffered with this. They,

like me, have already waded through the crummy doctors.

Sandi

[Guest guest]

Hi Sandi:

Would you please tell me how to join the Vulvar Pain Foundation.

Thanks!

Ruth

----------

> From: SandiSharp@...

> To: VulvarDisordersonelist

> Subject: Re: How to find a vulvar specialist?

> Date: Tuesday, September 21, 1999 10:04 PM

>

> From: SandiSharp@...

>

> Hi ,

>

> I'm sure you've probably gotten lots of advice from the others on this

list.

> Your email is at the top of my list so I'll respond. Excuse me for

repeating.

>

> I went through so many horrible doctors that had no compassion, tried to

say

> I was crazy, and hurt me worse while claiming to be experts. I actually

> found my wonderful doctor through this list. His name is Dr. Gibbons and

he

> is in Hartford, CT.

> I think he is the best doctor in the world. He returns my calls even if

I

> have nothing important to say but am just near the breaking point.

>

> I am a member of the Vulvar Pain foundation. If you join they will give

you

> the names of doctors in your area that are members of the foundation, or

who

> have been recommended by the women in your area. They will also put you

in

> touch with a volunteer leader who can give you advice too.The only thing

I

> don't like about the foundation is its emphasis on oxalate. But I figure

$40

> is going to a worthy cause.

>

> Good luck in finding a good doctor. They are out there, but try to get

> recommendations from others in your area who have suffered with this.

They,

> like me, have already waded through the crummy doctors.

>

> Sandi

>

> >

[Guest guest]

Here is the link:

http://www.vulvarpainfoundation.org/

Click on memberships

Take care,

" Ruth Harbour "

09/27/99 06:24 PM GMT

Please respond to VulvarDisordersonelist

To: VulvarDisordersonelist

cc: (bcc: A. Monasteri)

Subject: Re: How to find a vulvar specialist?

Hi Sandi:

Would you please tell me how to join the Vulvar Pain Foundation.

Thanks!

Ruth

----------

> From: SandiSharp@...

> To: VulvarDisordersonelist

> Subject: Re: How to find a vulvar specialist?

> Date: Tuesday, September 21, 1999 10:04 PM

>

> From: SandiSharp@...

>

> Hi ,

>

> I'm sure you've probably gotten lots of advice from the others on this

list.

> Your email is at the top of my list so I'll respond. Excuse me for

repeating.

>

> I went through so many horrible doctors that had no compassion, tried to

say

> I was crazy, and hurt me worse while claiming to be experts. I actually

> found my wonderful doctor through this list. His name is Dr. Gibbons and

he

> is in Hartford, CT.

> I think he is the best doctor in the world. He returns my calls even if

I

> have nothing important to say but am just near the breaking point.

>

> I am a member of the Vulvar Pain foundation. If you join they will give

you

> the names of doctors in your area that are members of the foundation, or

who

> have been recommended by the women in your area. They will also put you

in

> touch with a volunteer leader who can give you advice too.The only thing

I

> don't like about the foundation is its emphasis on oxalate. But I figure

$40

> is going to a worthy cause.

>

> Good luck in finding a good doctor. They are out there, but try to get

> recommendations from others in your area who have suffered with this.

They,

> like me, have already waded through the crummy doctors.

>

> Sandi

>

> >