Re: To Carol K

[Guest guest]

Dear Carol,

What a lovely message to receive. I've read it just

now as I worry about my mom and consider the ways I

may not have made the best decisions possible for her

care. So, thank you very much for your caring words.

I'm fortunate to be part of an organization that's

large enough to employ folks in all kinds of jobs who

truly love the seniors we care for - yet small enough

so that the doctors and other clinicians are

accessible. They have walked me through so many issues

with my mom. I'm amazed by their expertise, and just

want to pass on what I learn from them. I learn all

the time from each member of what my organization

calls our " family " - our residents and patients, their

families, volunteers, and colleagues in all kinds of

jobs.

Not so sure I am composed: I do enjoy sharing people's

journeys and can be forever patient with elders and

their families. But totally lose it in the face of any

level of abuse - and that's probably why the health

care system in general and stupidity and egotism in

medical professionals so enrages me. Bad care, lack of

care, ignorant care, harmful care is abuse and totally

intolerable. (So much for my composure - see how easy

it is for me to get started.)

And I learn here with every post I read. Am convinced

being able to visit here is the strongest link to

sanity I have related to caring for my mom. Folks here

comfort, inspire and educate me.

I don't know too much about the gathering. Sandie

updated me a week or two ago, as I missed a few weeks

here as work kept me away from the computer. Are

details described in one post somewhere? Of course I

would love to go - hopefully work and caregiving will

permit. It's an exciting prospect - can feel your

anticipation across the miles.

Thanks again, Carol. I'm very grateful you're part of

my life - and am eager to meet you and all our " best

friends " from the site.

Nighttime hugs,

Lin

--- carol king wrote:

> Lin,

>

> You amaze me with your knowledge and willingness

> to research for LBD caregivers.

>

> I so respect your take on so many things.

>

> You are an advocate's advocate.

>

> I know you and I sometimes think we are

> overstepping our bounds, but you never fail to amaze

> me with the experts you have access to. Your

> willingness to share is such a blessing.

>

> You add a voice of reason in so many situations.

>

> You can figure out the why to so many things we

> run into in care-giving and the system.

>

> If I just let fly with a wild and crazy thought,

> you can sand it down to the basics and tell us the

> pragmatic answer for why something is done, or not

> done.

>

> You seem to keep your composure through all of it,

> and that may be the professional take, but I am so

> thrilled you jump in there with a voice of sanity.

>

> keeps us organized, and provides our

> archives, and you are up to speed on pharmacology

> and nursing homes and assisted living.

>

> Will you both be at The Gathering?

>

> I would like to share a room at the event with

> another lone caregiver. Any takers?

>

> School doesn't start until August 11th, so I am

> clear for take-off!

>

> Newbies, you will develop some bonds with certain

> people as you play LBD with us and they are usually

> folks in the same stage as your LO. I, for one, am

> a classmate of Emma, Ron, and Jayne.

>

> I am looking forward to meeting and

> Sandie, and hopefully Miss Imogene. I would love to

> meet , but realize he very involved on another

> care-giving front.

>

> Ron and , I can hardly wait!

>

> I want to match names with faces and put voices to

> your wiritngs.

>

> So we know a hotel yet?

>

> I still consider this site the home for my

> nearest, newest, and dearest friends.

>

> LBD bonds us in so many ways.

>

> This is still my lifeline as I navigate back to a

> life without Lewy.

>

>

> Angels to all,

>

> Carol

>

>

>

>

>

> ---------------------------------

> You rock. That's why Blockbuster's offering you one

> month of Blockbuster Total Access, No Cost.

>

> [Non-text portions of this message have been

> removed]

>

>

> ------------------------------------

>

> Welcome to LBDcaregivers.

>

>