Re: Bladder, Fibro, Guai, LS

[Guest guest]

Hi Jackie,

My bladder problems are urgency, frequency, and rarely leakage. It seemed

like when I read about the symptoms of Fibro, that I had a lot of the

symptoms, but not the main symptom of pain. I don't know if I have pain in

the specific points or not.

The guai treatment sounds very interesting, and it's something that I'd like

to eventually try.

My Lichen Sclerosis has not been biopsied, but my dermatologist said it is

the norm now not to biopsy. I have a new dermatologist that I'll see this

Wednesday, so I'll have to see what she thinks. My old dermatologist (she

moved back to North Carolina) said that it looked like a classic case of LS.

It wasn't white though. I had two doctors say that they didn't think I had

LS because it wasn't white. Since then I've learned that it can show up as

thinning white skin, thickening white skin, or red and irritated skin. The

red area down there made the classic butterfly shape that LS makes. It was

red from the clitoris to the anal area. Also, the skin was atrophying in

the area. It looked like someone took the stuffing out. I used Temovate,

Estradiol Beta 17, and testosterone cream. I am now using the Temovate only

twice a week, and I still use the other two creams daily. My husband says

that the tissue down there is starting to get it's plumpness back. It

doesn't look as flat as it did. I have less to no burning and redness on

the outside. I still have a lot of vestibular irritation. If it's really

bothering me, sitz baths with or without sea salt help a lot. I sometimes

get rectal burning from this problem. I'm on Nortriptylene for my bladder

problems, so I really have to watch the constipation problem. Today I had

blood while wiping after a BM, so I'm afraid I might have one of those anal

fissures some of us talk about. I don't think I have hemorrhoids. (Gee, I

can tell you guys anything without thinking twice about it.)

Here's a site that mentions the three forms of Lichen Sclerosis:

http://obgyn.uihc.uiowa.edu/patinfo/Vulvar/lichensclerosis.htm

Here's another site with 12 pages of information and **GRAPHIC** pictures:

http://www.emedicine.com/derm/topic234.htm

I'll know after the 9th what the neurologist says and the results of my

latest blood tests.

Take Care,

McConkey

----- Original Message -----

> From: JACKSTEE@...

>

> The neurologist said it sounds like a virus...great!!!!! Hiowever, I can

> tell you that all of these symptoms are listed as fibro symptoms. I also

> have the numbness lower part of leg. I personally think it has to do with

> nerve/blood flow being cut off, i believe the vulvodynia and back has a

lot

> to do with my overall problems.

>

> Make sure your doc does a thyroid antibody test, most docs miss, because

it

> is rare that women of our age test positive, Everyone always tested my

> thyroid which was fine. The antibody test tests for autoimmune problems

with

> thyroid. My gyn of all people thought of it. Whammo! I was BIG TIME

> positive.

>

> Can you refresh my memory of what lichen sclerosis is/symptoms? That's

also

> autoimmune...my doc said many people with autoimmune thyroid problems also

> have other autoimmune conditions. I don't think you have MS though.

>

> What are your bladder problems? Most people with ms have incontinence.

Ms

> also tends to hit one part of body, one leg one arm, etc, rarely both.

ALso,

> neurologist said there is usually not a lot of pain with MS. Though I

found

> that to be unusual.

>

> When do your test results come back? Have you researched the guai yet?

> Numbness, tingling, vulvodynia, irritable bladder(urogenital problems),

skin

> eruptions, rashes etc etc.. all symptoms of fibro(which is also

autoimmune)

>

> Jackie