Re: Any one with Vater Syndrome

[Guest guest]

,

My daughter has VACTERL and also had a tethered cord. She had the V, A, E,

and R.

Bonnie McElroy

(Wife to , the most patient man on the planet, and Mom to (29)

and Amy (18) who was born with VACTERL Assoc. and a tethered spinal cord x

2, is a survivor of 32 surgical procedures, has a latex allergy, neurogenic

bladder (self-caths) and has a Chait cecostomy button for bowel management.

Amy was the Children's Miracle Network Alabama Champion for 2007.)

[Guest guest]

In a message dated 3/9/2008 12:41:55 P.M. Eastern Daylight Time, g

abe6566@... writes:

Hello everyone, my son is getting evaluated for a tethered spinal cord

he also has VATER syndrome sometime refered to as Vacterl association.

I was wondering if there was anyone else in this group that has Vater?

On my other TC group (link in my signature) there are quite a few families

with TC and VATER/VACTERL association. TC is very common in these kids,

especially if there are anorectal anomalies present. My has all the

above,

and will be eight years old in May...

Connie

Mom to Sara 16, Nicky 9 (GI issues, megacolon), and 7

(CRS/VACTERLS incl. tethered spinal cord (repaired 9/00, 8/06) perineal

fistula imperforate anus (repaired 5/00, managed with daily Exlax), single

kidney, PDA (closed on its own), malformed pelvis and hemisacrum, long segment

lumbosacral levoscoliosis with hemivertebrae (spinal fusion T11-sacrum 8/06),

extra left rib, genital anomalies with hypospadius (repairs 9/00,11/00,

5/01,12/01,12/03), hypoplastic left leg with clubfoot (repaired 5/01) tibial

torsion

and 4.5cm length discrepancy - wears AFO and 3.5cm lift, SUA, GI reflux,

DGE/gastroparesis, mild swallowing dysphagia, eating issues and the most

beautiful smile ever)

conni60640@...

Our website: _http://members.tripod.com/conni60640-ivil/_

(http://members.tripod.com/conni60640-ivil/)

VACTERL/VATER support _http://health.groups.yahoo.com/group/VACTERLNetwork/_

(http://health.groups.yahoo.com/group/VACTERLNetwork/)

TC support group _http://health.groups.yahoo.com/group/LMC-TCS/_

(http://health.groups.yahoo.com/group/LMC-TCS/)

Congenital scoliosis support group

_http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_

(http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/)

Anorectal malformations support - The Pull-Thru Network

_http://www.pullthrunetwork.org/index.php_

(http://www.pullthrunetwork.org/index.php)

S. Jersey

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