Re: dad in hospital: sepsis + respirator (intubated)

[Guest guest]

Eli,

I'm so sorry to hear what your Dad and your family has gone through.

Please know that whenever a change occurs (as in being " out of it " ), the

first thing to check for is a UTI. Infections play a major role.

Please do let us know what meds he is on and PLEASE do not let them give

him any meds that are on this list:

BAD LBD MEDICATIONS

One of the symptoms of LBD is extreme sensitivity to many medications.

NEUROLEPTICS AND OPIATES ARE LIFE THREATENING.

DO NOT GIVE:

Haldol, Clozapine, Morphine, Demerol or any other neuroleptics or opiates.

All medications ending in " azine " may cause neuroleptic malignant syndrome.

AVOID:

Zyprexa/olanzapine

Risperdal/risperidone

Ativan/lorazepam

Mirapex/pramipexole

Eldepryl/selegeline

Ambien/zolpidem

Ultram/tramadol

Detrol & Detropan

Benedryl (OTC allergy medication)

USE CAUTION:

Dilantin....extremely careful monitoring of levels is needed.

Sinemet/carbidopa-levodopa may cause increased dementia, stiffness, and

hallucinations.

Cough and Cold medications

This is not a complete list of medications, which may cause serious

consequences in LBD patients. Bad reactions to strong antibiotics, for

example, are not uncommon. LBD patients who have been given the least

medications, seem to do better in the long run than those who have been

more medicated.

Unfortunately, the LBD patient never goes back to the level of former

functioning when the troublesome medication is removed, and sometimes as

with neuroleptics, there may be no recovery.

LESS IS BEST ... and safest.

" eli jacobs "

<elijacobsgmail (DOT)

com> To

Sent by: LBDcaregivers

LBDcaregivers@yah cc

oogroups.com

Subject

dad in hospital:

04/23/2008 01:37 sepsis + respirator (intubated)

AM

Please respond to

LBDcaregivers@yah

oogroups.com

Hi All,

Eli in Jerusalem here

All: please read this and let me know if you have anything to share from

your experiences.

Bottom Line: My dad, 82, is in the hospital with Sepsis and is on a

respirator. The background is below

My dad has been diagnosed with LBD for about 3 years

Moved to a NH about a year ago; he has a separate apartment/unit and a

full-time male caregiver

Last 3 months has deteriorated a lot: lost almost all mobility, i.e., can't

even go from wheelchair to bed himself

In the last 2 months losing ability to speak: starts a sentence and then

gets stuck or repeats a word, or a nonsense word over and over

He was " out of it " on Monday - couldn't/didn't speak at all

On tuesday morning wasn't opening his eyes at all, high fever

The NH found that he had a UTI

His breathing was very belabored

They'd given him IV fluids the day before and thought it was the fluid that

hurt his breathing

Then they thought he also had pneumonia or Pulmonary edema

Finally the breathing turned to gasping and we called an Intensive Care

ambulabce

When he arrived at the ER he wasn't breathing and they intubated him

They found pus in his urine and said that he is septic (lungs were clear)

Started him on IV antiobiotics. They say it will take 48 hours to get

cultures and see if his body is responding

Last night the nurse was optimistic that they might be able to extubate him

this morning (wed morning)

Thoughts? Suggestions? Similar experiences?

Thanx in advance for all the love I know I'm going to get!

: )

Eli s

(please write to me directly as I am in digest-mode for this list:

elijacobs@...)

[Guest guest]

Hi, Eli!

I'm praying for you and for your Dad.

  

Gladys Stefany

Milford, Pike County, PA

Very Proud Daughter of Grace, age 76 - appears to be in between stages 3 and

4

Diagnosed with " probable " Diffuse Lewy Body Disease

Current Meds: Exelon Patch, Namenda, Nexium, Parcopa, Premarin, Synthroid,

Vytorin, Seroquel, and Zoloft

-- dad in hospital: sepsis + respirator (intubated)

Hi All,

Eli in Jerusalem here

All: please read this and let me know if you have anything to share from

your experiences.

Bottom Line: My dad, 82, is in the hospital with Sepsis and is on a

respirator. The background is below

My dad has been diagnosed with LBD for about 3 years

Moved to a NH about a year ago; he has a separate apartment/unit and a

full-time male caregiver

Last 3 months has deteriorated a lot: lost almost all mobility, i.e., can't

even go from wheelchair to bed himself

In the last 2 months losing ability to speak: starts a sentence and then

gets stuck or repeats a word, or a nonsense word over and over

He was " out of it " on Monday - couldn't/didn't speak at all

On tuesday morning wasn't opening his eyes at all, high fever

The NH found that he had a UTI

His breathing was very belabored

They'd given him IV fluids the day before and thought it was the fluid that

hurt his breathing

Then they thought he also had pneumonia or Pulmonary edema

Finally the breathing turned to gasping and we called an Intensive Care

ambulabce

When he arrived at the ER he wasn't breathing and they intubated him

They found pus in his urine and said that he is septic (lungs were clear)

Started him on IV antiobiotics. They say it will take 48 hours to get

cultures and see if his body is responding

Last night the nurse was optimistic that they might be able to extubate him

this morning (wed morning)

Thoughts? Suggestions? Similar experiences?

Thanx in advance for all the love I know I'm going to get!

: )

Eli s

(please write to me directly as I am in digest-mode for this list:

elijacobs@...)

[Guest guest]

Hi Eli, I am so sorry. I sure wish I could help, but I can only send my

moral support.

I sure hope it helps,

Love a Lot, and make faces when people look at you funny,

Imogene

In a message dated 4/23/2008 12:36:10 AM Central Daylight Time,

elijacobs@... writes:

Hi All,

Eli in Jerusalem here

All: please read this and let me know if you have anything to share from

your experiences.

Bottom Line: My dad, 82, is in the hospital with Sepsis and is on a

respirator. The background is below

My dad has been diagnosed with LBD for about 3 years

Moved to a NH about a year ago; he has a separate apartment/unit and a

full-time male caregiver

Last 3 months has deteriorated a lot: lost almost all mobility, i.e., can't

even go from wheelchair to bed himself

In the last 2 months losing ability to speak: starts a sentence and then

gets stuck or repeats a word, or a nonsense word over and over

He was " out of it " on Monday - couldn't/didn't speak at all

On tuesday morning wasn't opening his eyes at all, high fever

The NH found that he had a UTI

His breathing was very belabored

They'd given him IV fluids the day before and thought it was the fluid that

hurt his breathing

Then they thought he also had pneumonia or Pulmonary edema

Finally the breathing turned to gasping and we called an Intensive Care

ambulabce

When he arrived at the ER he wasn't breathing and they intubated him

They found pus in his urine and said that he is septic (lungs were clear)

Started him on IV antiobiotics. They say it will take 48 hours to get

cultures and see if his body is responding

Last night the nurse was optimistic that they might be able to extubate him

this morning (wed morning)

Thoughts? Suggestions? Similar experiences?

Thanx in advance for all the love I know I'm going to get!

: )

Eli s

(please write to me directly as I am in digest-mode for this list:

elijacobs@...)

[Non-text portions of this message have been removed]

------------------------------------

Welcome to LBDcaregivers.

[Guest guest]

{{{{{Eli}}}}} Please accept my deepest condolences on the passing of

your dad. Although we all know how this journey ends, it doesn't make

it any easier. Here's hoping that you'll soon feel at peace, knowing

that he's no longer suffering. And the happy memories of your dad puts

a smile on your face. Take care of yourself.

>

Dear Friends,

My dad passed away on Sunday morning at Shaarei Tzedek hospital in

Jerusalem.