stitch in spinal cord-help

January 1, 2008

I don't post very often but I really need some advice. I had my first TSC

release in Louisville,KY in July 2006. A few days later I had a CSF leak repair.

I continued to get more symptoms and more sick every day. The NS said " the

surgery was just harder on adults than kids and go to pain management. I saw

several doctors in town and they all assumed my NS had done everything that

needed to be done. He has a very good reputation. So I couldn't even get a post

op MRI. I knew there was something wrong. I did not go to pain management. Oct.

2007 I went to TCI. They did a total mri and some other test. They found a

severe CSF leak and a stitch from the previous surgery that went through my

spinal cord nerve roots and attached them to my dura and scare tissue had formed

all over the roots. When they did the surgery to repair this they said it was

like trying to separate over cooked spaghetti without breaking a noodle. It took

the docs twice as long as they had expected. I have

damage to my left leg, kidney, bowels, and bladder. No one knows how permanent

this is. I am considering a lawsuit. Has anyone been told that a stitch in your

spinal cord is a risk of the surgery? The attorney I talked to said a NS would

have to say it should not have been a risk for this to be a case. And where I

live all the NS will cover for each other. Not only has this effected my health,

it has effected my finances (travel and out of network expenses). I desperately

need this question answered!!!!!

Both of my children had tsc release right after I did in 2006 by the same doc in

Louisville. They are also having some problems and all he did was order PT. I am

taking them to TCI at the end of Jan.

Amy L.

" You must be the change you wish to see in the world " ~Gandhi

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