was Flutter - Now: Canada

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I disagree, somewhat, about the Canadian health care system being good, as it has not treated me well. I have not been able to receive specialised care for my lung issues. At least have not received the care that I need and deserve. One respirologist said my lung disease was all in my head and the respirology group in Halifax has shunned, blacklisted, and refuse to even see me. Receiving care from Halifax respirology group has been a nightmare. I have severe lung disease (including advanced bronchiectasis), and contributing health issues. Have been receiving the run around since childhood, and have still not found a respirologist willing to take on my care. Have traveled to Toronto, Montreal, and Saskatoon to see respirologists and to no avail. Several including a CF doctor at St. Mikes had promised to follow me, but once back in Nova Scotia they decide not to provide follow up telling me to return to Halifax. My family and I have told them

that Halifax respirologist are not doing anything and refuse to see me. In fact, I did have one respirologist that was willing to follow me, but he never tried anything new, and if I brought up a medication, he said it wasn’t helpful even though research shows it’s helpful. That doctor never ordered PFTs, never ordered chest CT-scans, never ordered CF sputum cultures, and never was willing to see me when I was having a flare-up. He really did nothing. After having an argument with him last June I fired him and refuse to see this man again. He’s not up on cystic fibrosis or bronchiectasis and really, really needs to retire. If it were not for my family doctor and infectious disease specialist no, one would be doing anything to help. If I had the means, I'd go to the US for my respiratory care and to the Mayo or Cleveland Clinic. Any system is good if you can receive care. Increasingly it’s harder to get the necessary care in Canada and O2 and meds should be covered for

everyone outside the hospital system through a national pharmacare system that people could pay into based on income levels or opt out of if they have private insurance. Too many people are choosing between eating or medication or paying bills, and it should not be this way in Canada or any other nation. Anyhow, my ID specialist and GP are certain that I have cystic fibrosis based on my medical tests and symptoms and I agree with them and the adult CF clinic refuses to see me. I'm certainly less than impressed. My doctors agree that based on chest CT-scans, low PFTs, and to improve my quality of life that I do need a double lung transplant. people with bronchiectasis and CF receive double lung transplants due to the infection in our lungs. Hugs:0) Liz with CF (??), bronchiectasis, asthma, on O2 24/7, etc .... Mommy to Bonnie cat ... Proud aunt to six precious children ... Hoping, Praying, and Wishing for new lungs in

2007! e-mail:maryholt12@... or

lungsformary@...Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you!:0)carepages.com name:maryelizabethholt:o) "Miracles happen with love....." ..... Please support your local children's hospital.... and "Give with all your might!" http://iwkfoundation.org/ )Visit.... Children's Miracle Network.... http://www.cmn.org/ )"I don't give in, I don't give up, and I don't take no for an answer." ~Doris ~

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