Jena/ ssd

December 13, 2006

Hi Jena,

I just read this and am gonna try to catch up on some emails to keep my mind

off my step dads surgery tomorrow.

I inow how you feel about drinking coffe and eating percs for breakfast.

Thats what i have to do as soon as i wake is take my neurontin, percocets

and drink my coffee. Most mornings i hurt so much i cant eat but then i get

nautious so have to force toast down:(

I dont understand one thing you wrote about your daughter. You had to beg

for disability for her? and now that shes approved youhave to wait for funds

cause theyre out? Is this SSD? And once thing i dont get is how you had to

beg for funds for her...she should automaticly get disability or some type

of assistance. You said she had downs syndrome? she should definately be

able to get assistance and maybe a program like you said youd hoped for.

Gosh I am SO sorry you had to fight for her. Nobody should have to fight for

disability and its so sad.

You are such a strong woman and i highly respect you. I know that it had to

be hard but you are an amazing mom and knew there had to be times where it

was a struggle.

Please know you and your precious baby girl are in my thoughts!

>

> I know it is going to be that way when I apply that is one reason I

> haven't already. My summer and fall was absolutely terrible. I am better at

> this time. But still have to have my pain pills to get up and moving in the

> mornings. I am so stiff and hurting when I wake up. I hate having coffee and

> a Percocet for breakfast but at this point it is the only choice I have.

> As I said before, my daughter has Down Syndrome. I have spent all my

> energy begging for funds for her. she has finally been approved. But guess

> what? They are out of money. Have to wait til more money is approved. We

> really got a system going here in the good ole USA..........

> I have know quite a few people that were terminally ill and there SSD be

> approved the month after they die.

>

> ~:~Jena~:~

> My Home Page

> My E-mail

>

> Re: Social Security

>

> - Hi all,

>

> I'm struggling with this one too. I was denied the first time

> too, I have yet to find someone I can count on to handle this. That

> was good advice, doing it by yourself, those people are heartless. I

> wish there were something set up to retrain those of us who might

> still be productive if given the chance. Some states have vocational

> rehab, but the hoops are almost as bad as disability.

> When my career came to a halt we lost our butts. First my

> insurance dropped me. It seems if you actually USE the health

> insurance then you are a risk..go figure you might just need to use

> it instead of just having to make the fat payments every month. We

> lost everything except what we could carry. We had a nice new custom

> home in Wyoming, a couple of nice trucks, mostly just a nice home

> we'd worked hard for. We had to learn how to live on less than one

> half of what we were used to. Thank God my wife has a career. We

> took out tax return, sold our home, and bought a fixer upper with

> down out of pocket. We refused to go back to a rental, we'd worked

> too hard for too many years. We were able to roll that over and buy

> this old farmstead. Still, the SS office could give a rat's a$$ if

> we were on the street or not. This is America, we're not supposed to

> have to live like that. You work hard your whole life, pay your

> taxes, and for what? So they can tell me I don't qualify and then

> send our tax dollars to Africa to educate folks over there to stop

> screwing themselves to death (hiv) and to move where the food is. Or

> they send the money someplace else where nobody has paid in a dime,

> and hates America anyway. Wouldn't it be nice just once to be

> treated like one of the good guys? Like hey, you've paid your dues,

> you are an American, you want to BE an American, not just a resident

> who wants access to our SSI, and welfare. Ok, I'll get off my soap

> box now.

>

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December 13, 2006

I didn't have any trouble getting Beth on disability once she turned 18.

What I am working on now. This a thing called the Medicaid Wavier. IT is alot

like applying for money for quote a " normal " person to go to college.

It will pay for the company called Briggs and Assoc. to spend 30 hours a month

with her. Basically get her out of the house. it is one of those hurry up and

wait deals. I have had to hurry and get this info in. and then wait.

Another sad thing is once our " Special Kids " graduate there is nothing out there

for them. or they are far and few. We have a training center in my county but

she will stay home with me before she goes there. it is so outdated and has not

changed since she was in the infant stimulation program 21 years ago. Everyone

told me I should at least go check it out. And so I did. It smelt like a nursing

home. as they have a profound class. Not sure how they disposed of the diapers

but it was good enough. Most of the kids that go there are single mothers that

have to work. I really feel sorry for them having to leave their kids there.

Not that I feel we are to good or anything like that. It is just a bad set-up

and situation all the way around.

I am not that strong. and yes in the beginning it was very hard. But she is such

a blessing to the whole family I would not change her if I could.

I am a mother hen. With her I don't have to worry about where she is at. Driving

at 16. the wild boys and girls. She is right here with me and her daddy.

It took my son turning 16 to really realize the blessing in Beth. I have shed as

many if not more tears on my son than Beth. Seeing how my son married the

Devil's daughter.

Jena

~:~Jena~:~

My Home Page

My E-mail

Re: Social Security