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(I'm updating Geri Hall's post so that I can keep saving them in the

links w/out having her expired contact info on the post)

>Husband, age 76, was diagnosed in Jan. 03 after 2 different diagnoses

>in 7 yrs. First PD, then ALS. He has this huge appetite, eats

>everything in sight and is losing weight.

Geri Hall's response:

" This can be a normal and usual part of the LBD process. The

agitation, fear, and tremor (understand that rigidity is essentially

sustained tremor and burns calories like crazy). It is time for

forget about dietary balance (forgive me Ilse -- I know you are

cringing) and go for as many high caloric foods as he can tolerate.

Go from skim milk to whole or 1/2 and 1/2. Have him eat cheese,

puddings, macaroni, ice cream, cake, chocolate, anything with high

calories and fat content. At this stage you do not want to worry

about cholesterol as the cholesterol you prevent today will be an

issue in 10 years. Make sure that you work with five or six

small meals because big meals will look overwhelming to him. If you

are in the US, the highest calorie food available is the Dairy Queen

Blizzard. We use them in our burn unit because burn patients need in

excess of 7000-8000 calories per day. There is also good evidence now

that slow frequent quiet feedings slow or stop the end stage weight

loss. "

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