Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Hi, I do not post here often. I've been diagnosed with CMT 1A for about 10 years. I have the swelling and pain the the area of my foot right behind the smaller 3 toes. It it mostly on the top area of my foot, but does affect the ball of my foot also. Is this common or is there something else going on? Thanks, Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Angie, My thoughts are perhaps a change to a wider shoe may help, or perhaps you may have an infection or possibly a broken toe. Have you seen a doctor about this? Have you tried using ice on your foot to relieve the pain? Filing for disaibility is a long involved, and often frustrating process and now is even more difficult to get. Try everything else first, possibly switching to another job, but still in your medical profession. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Angie: Yes, that occured with me too in the beginnings of the disorder. It usually occured after wearing shoes for a long period of time. I released the pain the best I could by massaging my feet with my hands. After a couple of years it went away. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Angie, I don't know the extent of neuropathy in your feet, but my recommendation is to get it x-rayed. When the nerves stop working, sometimes swelling is the only indication that there is something wrong. I had a similar condition, but it didn't hurt like I had broken bones. Well,it turned out that I had broken bones. Unfortunately they never healed, continued to break down and developed into a charcot condition. I had to have the foot fused with replacement cadaver bones, and sometimes I wish they had just amputated it instead. O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Angie, That sounds like it could be a neuroma. It won't show up on an x-ray, except an astute radiologist may notice fullness in the soft tissue (which might just get chalked up to the swelling). My sister and I have both had neuromas in that same spot and they showed up acting just like that. It is caused by the bones (metatarsals) rubbing against each other -- either because of too narrow or high heeled shoes, or because of the usuall CMT foot shape -- causing nerve damage. Like we didn't have enough trouble already. Since nerves are regenerative the damaged spot will send out new axons trying to meet up with other severed axons until you end up with a tangle of nerves sprouting from a single bundle running between the bones. The result is that the pinching happens easier and easier, because of the size of the thing and leads to eventual chronic pain and swelling. I was so frustrated with mine because I was always SO carefull to wear good shoes since I injured my self so easily. I can't tell you how often I heard the " high-heel " lecture from well meaning folk. Yeah, right, heels = no feeling in my toes for 3 months. So instead of ditching the heels I got my first pair of orthotic inserts. Holli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Wow, Thanks to all that replied to my 2 messages. Good advice. Will keep you posted on the work and foot thing. Angie Quote Link to comment Share on other sites More sharing options...
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