Re: (CMT included) Grave illnesses targeted

[Guest guest]

Gretchen:

Why did this article state that CMT is fatal or did I read it wrong?

Marin from Bridgeport, CT

..

[Guest guest]

in Bridgeport,

Yes, sometimes CMT can be fatal - can affect breathing/lungs and the

heart as well.

Gretchen

[Guest guest]

Wow, I was surprised to see Windsor Star. That the city I grew up in. Nice to

see some research going on there. I don't think they are well known for

research. I too was a little surprised to see that CMT could be fatal although

not really. I have always found it interesting when people call it the

" peripheral nerve disease " . My opinion and it just my opinion. How can a

disease like we have affect only the peripheral nerves. Never made any sense to

me. Yes the hands and feet as impacted first, and to me this makes sense since

I would assume they are the weakest muscles.

Personally, CMT impacts all my muscles. I can feel it in my lungs, my stomach,

my back, hands, arms, legs, feet, well you get the point. My daughter too, has

breathing problems, among the rest. Don't get me wrong, I do think we are going

to pass away tomorrow, but I do believe that CMT impacts way more then just my

feet and hands.

Well, that's my first thought of the day. Another thought coming in a few

minutes.

Matt

(now, Hamilton, Ontario, Canada) LOL

[Guest guest]

Hello Gretchen,

We've come a long way! I wasn't sure I would hear that an article would say CMT

could be fatal. It's sad, but at the same time now people can be aware and get

help sooner. If only my sister could have been one of them! Now, hopefully

others can get help and slow down the progression from the diaphragm

deteriorating.

Wow! I'm so glad I saw 's post. Gretchen a big thanks to you too!

;-)

Kay