Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 Gretchen You go girl. Yes, that's the spirit. People should focus on goals, charity work and what they can do to help make the world a better place. It uses much less energy to smile and think positively, as opposed to getting depressed and focusing on negativity. There is a time and a place for pain, sorrow and suffering, but your time spent there should be limited. You have got to focus on tomorrow and beyond. I know it sounds easier said than done, but at day's end you've got to thank your higher power for another day and the blessings he or she bestowed, and ask for help, guidance and understanding with the next. It certainly helps me deal with the physical and financial pain I have to endure each and every day. It doesn't make the " bad " things disappear, but helps you to cope better and deal more effectively with the trials and challenges of everyday life. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 My sister is visiting me from Chicago, I live in Texas, 6 months ago she had a double lung transplant. This is the first time in 7 years she is off oxygen and could fly to visit me. She almost died 3 times waiting for a transplant. So am I going to gripe because I have a cane, walker sometimes, AFOs and a scooter...no way...and I'm a residential Realtor and show/sell houses. My motto....keep the glass half full, be grateful for what you have and laugh as often as you can. Life is too short to do otherwise :-) Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 ~ What is good in your life Today? The weather isn't too cold and the pinched nerves in my back are fairly calm. ~ What are your personal goals for this year? Get leaner, eat healthier, avoid alcohol and soda, and get in a pool as much as I can. ~ What are you grateful for? The list is long, but the main things are...my husband, my daughters, my parents, my puppy, and the Internet. I'm also grateful that I can walk, shower, and breathe. ~ How will you help others? Reach out to others through the message boards and offer advice and encouragement to my adult daughters, when they ask. Visit my parents. ~ How will you make this a 'better' world because of your presence? Give love. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Eat, drink and be merry!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 well, i could not have read this on a better day as i am focusing hard on this today as i am feeling down and homesick. Personal goals for this year? To continue physical therapy and keep trying to get stronger physically. To make closer relationships in my new state that i moved to To start a CMT support group in Southeast Florida as there is not one here To help my children find their way in this world and to achieve their happiness. Gratitude: I have a loving husband I have a family that loves me. I have lots of friends that love me, although they are 900 miles away. I have one child who has overcome some very tough circumstances. I have a roof over my head and my husband has a job and we have food on the table. How to make this a better world? To continue to reach out to those that are in pain through this group and other message groups To start a CMT support group. To continue by showing others that " that which does not kill you makes you stronger " To continue to show people by my actions of smiling and persevering that today may be hard, but we still have tomorrow. Jackie What is good in your life Today? What is good in your life Today? What are your personal goals for this year? What are you grateful for? How will you help others? How will you make this a 'better' world because of your presence? Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Jackie Way to go! Although your troubles at the moment won't vanish, they will become easier to navigate since you've focused on what is right, positive and attainable. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 While the three points I will offer will not make the world a better place, they are interesting -- at least I think the are. One is personal and two are helpful to anyone reading these posts. 1. When returning from a PT session today, things did not go exactly as planned. The tram I was riding in stopped and everyone had to leave the cars. One half of the Trastevre -- a main drag thru Rome -- was blocked by police cars. Unfortunately, my way home home was in the direction of the blocked half. So, after a strenuous session of strength and balance exercises, I started to walk. And I walked. On the way, I saw the reason for the blockage. A big demonstration of unionized teachers decided the best way to be noticed was to block the street -- not a great way to gain friends and influence people! So I walked. No Cars, no buses. no trams. And I walked. Eventually I came to the Tiber. Very Caesar-like, I crossed the river and caught my normal bus home. When I arrived home -- tired but unbowed -- I looked at a map and saw my walk was file Kilometers. For those like me who grew up with Avoirdupois measurements, five kilometers is about 3 miles. This time last year, I wouldn't have even tried the walk. Today I didn't even think about how far I needed to walk -- I just walked. 2. For those of us with hand issues, use the handle of an ergonomic toothbrush to create implements to help with the fine points of your hobbies. I build rubber powered stick and paper model airplanes and gluing small parts became very frustrating. After cutting off the brush end, the handle can be used as as a tool handle to go where the fingers won't go anymore. I have attached the points of pins, shafts of a pins with points removed, and the heads of T-pins to handles. The new tools really make a difference. Next time I build a boat with rigging, I'll attach the end of a crochet hook to fish the threads and strings around masts. etc. 3. For those of you that steam milk for cappuccino, try adding a few drops of water to the milk to get better foam. Chemically, the water lessens the surface tension on the milk allowing it to really foam. I always use skim or partially skimmed milk anyway, and stay away from whole milk. Whole milk is very difficult to get a good froth. --Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Oh Gretchen, what a great question for us. My goal is to take care of myself and stay healthy, eat right and continue with my every day life. I want to help my daughter get on her feet after having some health issues and be a positive influence with my family and friends. Yes, life is good. Spy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 What is good in your life Today? I went on a walk in the beautiful sunshine with my kids. What are your personal goals for this year? get more exercise, eat healthier and lose a few pounds What are you grateful for? I am greateful for my HEALTH and my children's HEALTH, yes we have CMT but there are much worse things out there How will you help others? I am pretty focused right now on getting help for my children, but I am also trying to educate my extended family about signs sympotoms and things to help with CMT How will you make this a 'better' world because of your presence? I am trying to be a good example to those around me by living a full and happy life in the face of adversity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Mark, Thank you and today I do feel more postive. I have learned that the hard way that on those worse days when all you can think of is to focus on that which is wrong is more reason why you have to say outloud what is good! The funny thing is, CMT is rarely the " wrong " in my life! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Gretchen, you're the best. I was getting a little discouraged with a few of the threads here that can have a heavy tendency toward the negative, glass half-empty cast. It is so nice to see the positive posts this little one generated. I firmly believe that life is what we make of it. When I have been hugely disappointed in the past (after allowing myself a predesignated span of time to wallow and feel as bad as I want to) I stand up, take stock of what my reality is, despite what I had hoped it would be, and decide what I need to do to pick up and move forward. " Bloom where you're planted " my sister calls it. What is good in my life today is my loving husband who would rather die than intentionally cause me pain. My children who are funny, vibrant and full of life. My new house, which is beautiful. My small zoo, especially Annie the cat and Lacey the dog. My personal goal for this year is to find an excercise program that won't exacerbate my CMT and won't cause injury so I can loose some weight. I'm grateful that I'm still able to do all kinds of things I shouldn't, like lug bricks across the garden and climb ladders. I can still do what I need to do independantly. I'm grateful to know I don't have Multiple Sclerosis (which was entertained prior to a diagnosis with CMT). I'm grateful my father does all the things I do so I'm hopeful that my CMT will remain as mild as his. I have chosen a field and a place to practice that provides for those who don't have the means for medical insurance. I give world-class care to the poor and homeless in our county. I and my staff treat them with dignity that all humans deserve. I'm happy to feel that everyday I'm making the world a better place in just one small corner. Holli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Jackie Nice going. And the fact that you recognize that CMT is not always the bandit, should help greatly dealing with what is actually wrong. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Holli wrote: " I give world-class care to the poor and homeless in our county. " Kudos to you! I thought your response to these questions was excellent and then when I read the last paragraph, I was very touched. That's awesome work you're doing. I send you warm wishes for strength to continue your work of making your 'small corner a better place' for many, many years to come. Quote Link to comment Share on other sites More sharing options...
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