Extreme amount of pain/AZ CMT doc

[Guest guest]

I am new to this site and have found it to be very insightful. This is

my first post. My father (56yrs old) lives in AZ and was diagnosed

about 2 years ago and he has seen a few doctors so far. They all seem

to be a little unfamiliar with CMT and most of them are confused by

some of his symptoms. He has lost all feeling basically in his feet and

legs and has the neuropathy, however he has excruciating pain 24/7 in

his feet and legs.

One of the docs said this is unusual and thinks it may be something totally

unrelated to the CMT? Does anyone have someone they recommend in AZ that knows a

lot about CMT and is this common for CMT that he is having this much pain

whether he's on his feet or sitting down, it doesn't matter. I would appreciate

any feedback.

Thank you,

Jocelyn McCarthy