Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Hi, I was wondering if anyone is on Dilaudid for their CMT,it's a powerfull narcotic pain pill,it helps me to a point ,if anyone is on this can I get some feedback please, I started out on the 2mg and then the 4mg and now im on 8 mg ,I take 8-9 tabs a day.I'm also on Trazadone at night time for depression,I'm also a diabetic,I'm ready to give up on my myself. Can someone please help me as I have a 10 yr old boy who needs his mom as I'm a single parent and its very difficult to cope with all this going on. Thanks Roxanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Our doctor won't allow people with CMT to take Dilaudid. I am not sure why. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Hi Roxanne, I took Dilaudid prior to back surgery. At first it minimized the pain. But, as the days went by, I needed to take more of it to get the desired relief. My experience was it completely dulled my brain, and even the most simple tasks were complicated. Another time in my life, I also took Trazadone. It gave me headaches, muscle stiffness and slurred speech. Both medications made me extremely sleepy/drugged - both day and night. I begged my doctors to discontinue the medications; once surgery was over, I detoxed on my own from the Dilaudid (plus others for pain). As for the depression at a difficult time in my life, talk therapy was much more effective than any medication. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 , I wonder why? Maybe you could ask? Thanks, Roxanne > Our doctor won't allow people with CMT to take Dilaudid. I am not sure why. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Roxanne, Sure, I will ask next time I see him. That should be in a few weeks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Roxanne, Wow that is a huge amount of Dilaudid. Like you said it's a very strong narcotic. I take Dilaudid 2 mgs 4 times a day now. Within the last year I started at 1 a day then 2, 3 and now 4 I build a tolerance quickly and as much as it seems to help I can see how it can be abused. I am parodoxical because it makes me more energetic and when I don't have it I get out of sorts but if I took any more then that I get headaches and it actually makes me feel worse. I can honestly say I like the Ultram CR the best and when I run out I feel it the most. The Neurontin seems to be ok with cramping and I must say the Cymbalta helps with nerve pain and is also an anti-depressant. I completely understand how hard this disease is I am in a lot of pain and work a lot of hours and I try hard to be as active as I can be especially having a 9 year old child. I feel like I am wilting away and trying to suck the the little life I have in me but I also know it could be worse. If you need anyone too talk to privately feel free to conact me. I worked in mental health 9 years and have my degree in that as well. Thanks Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Hi Andy, Well thanks i could use someone to talk to ,i am a single mom of a 10 yr old boy and i too feel like my life is being sucked out of me,i also am a diabetic and have alot more health issues,i feel sometimes, most times it would be easier if i just gave up up on myself but for my son i go on.....it's very hard to cope some days,i just feel like staying in bed and forget about the day,,yeah it's alot of Dilaudid but i could use more some days,on those days i take oxy's cause i only get 250 d's a month i think im so tolerate to the drug that i just need more but am afraid to ask my dr for more,please get back to me ,thanks and have a great day! Roxanne Quote Link to comment Share on other sites More sharing options...
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