Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Not me. I've had the tendency to catch whatever is blowing around. But since weaning off steroids that has improved somewhat. Any thoughts on what it may mean one way or the other? Sam Yes. Me too. I haven't had a cold or flu since I was exposed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 This topic has come up before, so yes. I have had that where I have felt awful, and tired and fear a cold because I feel so weak and yet never get one, even through flu season. I came to believe my immune system was typed by anxiety. Perhaps anxiety caused by mold exposure or perhaps other reasons but I sure didn't feel well at all, so it surprised me greatly. Now I am the other way. I can't 'throw' anything. For me, I think change came when I was put on a prescription medicine that had a side affect of suppressing my immune system. I got sick on it and then essentially have never felt well since then, even though for a while I was alot worse and have recovered some better health, but definately not back to where I was before taking that medicine. > > Have you guys ever noticed that you don't get colds, even when people in > your household get them? I haven't had a cold or any virus since I became so > sick from mold-anyone else have that experience?? > > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 At 06:48 PM 5/31/2009, you wrote: >This topic has come up before, so yes. I have had that where I have >felt awful, and tired and fear a cold because I feel so weak My weakness I know is caused by swelling of the nerves in the spine, causing weaker signals to the muscles. On good days, I am strong. On bad days I can not hold my arm out at full length without pain in the small of my back. Inflammation is the root of many of our symptoms. Treatment with herbs works wonders, diet too, and supplements pull up third, in my opinion. >and yet never get one, even through flu season. I came to believe my >immune system was typed by anxiety. I still feel that way. But I am less anxious, and now do not get colds or flus. I also cook my fish and chicken very well, and I think that is why I do not get flus much. Google for more info the flu virus living in mostly fish and chicken, and you get it from under cooked, or barely cooked fish or bird. My flus stopped when I stopped each fish and chicken. When I resumed I got flus again. Then I cook the meat well, and no flu in about 5 years. >was put on a prescription medicine that had a side affect of >suppressing my immune system. Immune systems like ours, with a small communication snafu for some very few external substances, do not do well with many immune drugs. It's like a car. If your car is running rough, one adds oil, not remove oil. The immune system has about 10,000 components. We only have 1 in that 10,000 going wrong (well most of us, a few have 2 or 3, but these have huge symptoms). Most of us have saturated MAST cell binding sites. See my post last month. >I got sick on it and then essentially have never felt well since >then, even though for a while I was alot worse and have recovered >some better health, but definately not back to where I was before >taking that medicine. Most western meds have a detox method available from other modalities, to remove it from the body. Takes about 1-4 weeks, and can be done years later, or so I have been told. I first heard of this for childhood vaccines. You know that vaccine scar on your shoulder? Those go away after one detoxes. The theory is the disease of the vaccine is located at that injection point, a colony, and prevents the body's normal healing process. I've had two people tell me their scar went away. Google for this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 At 06:46 PM 5/31/2009, you wrote: >Not me. I've had the tendency to catch whatever is blowing around. >But since weaning off steroids that has improved somewhat. Any >thoughts on what it may mean one way or the other? Steroids - bad voodoo. Very strong medicine. Impacts many organs in the body, to varying degrees, while masking symptoms. Every one I know who wean off steroids to natural equivalents over a 2-6 month period had 50-80 of their symptoms go away. They all realized that at least 50% or more of they symptoms started after they got on the steroids. The first edition of the Vitamin Bible book had an equivalent section, but not the 2nd or 3rd. I considered that section key to getting off drugs. It was only 4-5 pages long, in the back, like an after thought. Since then I google for the same information. Then I take both and reduce dose of the med over time. To know why the steroid have you illnesses, you'd have to post which one. Or google for side effects yourself. There are about 100 base steroids, hazy recall, and they have vastly differing effects on the body, but have immediate and big effects, and why the substance gets called a steroid, as it's powerful effects on the body. Hormones are the same. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 , Have you heard of what these detox modalities are that can have such a strong impact in 1-4 weeks? Is it similar to the sauna type protocols that Dr. Rea and Dr. Leiberman use? Thanks, Sam Most western meds have a detox method available from other modalities, to remove it from the body. Takes about 1-4 weeks, and can be done years later, or so I have been told. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 I agree steroids are horrid. I know in some cases it can keep us alive or reduce symptoms but mainstream med has little alternative or interest in weaning you off for all the reason that we're to aware of. I've done everything I can to reduce my need for it due to asthma. The final straw actually happened by accident when I came down with the flu and was getting worse after steroid treatments. So, I stopped to give it a break for a few days and low and behold felt better and stayed off a little longer and so on and found that even my use of rescue inhalers reduced by more than 50% and even more as time went on. I worried at times that I didn't wean myself off as you wrote, but seemed to work ok, although I'd had some pretty severe fatigue afterwards for many months and still do at times. I'd worried that I should have weaned myself but was feeling so much better was afraid to backslide and just enjoying any kind of improvment. And that leads me to this question that has always botthered me about steroid use; Isn't it's purpose to reduce inflamation by replacing the low levels of cortisol that are depleted due to stressed, fatigued or non-functioning adrenals? And wouldn't one also be able to mimic the positive effects of reduced inflamation by using natural adrenal or cortisol supplements? This way you would avoid the immuno-suppressing side-effects of long-term synthetic steroid use. Natural cortisol extracts were many years ago a common therapy for asthma; which I'd only found out recently. With that in mind; has anyone heard of, or used adrenal supplementation to improve any effects of mold and/or chemical exposure? Thanks, Sam **************************** Steroids - bad voodoo. Very strong medicine. Impacts many organs in the body, to varying degrees, while masking symptoms. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 At 11:08 AM 6/1/2009, you wrote: >Have you heard of what these detox modalities are that can have such >a strong impact in 1-4 weeks? Is it similar to the sauna type >protocols that Dr. Rea and Dr. Leiberman use? Most are identical to what would be used to cure the disease. They complement the drug, working by different mechanism, most times, or so they think. Other drugs have different methods. Spans a wide range I heard. So, a catch all solution does not work. It's an oral pill you put in your mouth in most cases, as that is the bulk of homeopathy. It can be supplemented by other methods. Sometimes you have to take 2-4 homeopathics, a few to protect other organs, or aiding the detox, or... I do not have " more " info, and you'll be on your own with google. I just posted the info in case you are of a mind to try it, or to find out more. I know people who are western med only, and are willing to die for this devotion. So, my posts are information, not intended to raise hope. Heat detox works on " everything " in the body. But it also energizes everything, meaning a drug that localizes will be detox by distribution through out the blood system, meaning organs that should not get much of dose, might do a little poorly. Which is why detox has detox symptoms. Nothing new. If you do use heat detox with other detox methods... watch out. Speeding up the detox, or changing the detox pathways to what is not expected may give unexpected results. One example is too much toxin in the blood, and damage to organs. Follow the instructions. Get more info. Play it safe. Go slow and test first. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 At 11:25 AM 6/1/2009, you wrote: >I agree steroids are horrid. I know in some cases it can keep us >alive or reduce symptoms but mainstream med has little alternative >or interest in weaning you off for all the reason that we're to >aware of. I've done everything I can to reduce my need for it due to >asthma. The final straw actually happened by accident when I came >down with the flu and was getting worse after steroid treatments. >So, I stopped to give it a break for a few days and low and behold >felt better and stayed off a little longer and so on and found that >even my use of rescue inhalers reduced by more than 50% and even >more as time went on. I worried at times that I didn't wean myself >off as you wrote, but seemed to work ok, although I'd had some >pretty severe fatigue afterwards for many months and still do at times. Two things. Weaning off steroids is not what you think it is. Wish I had more time. Second, some steroids can be quickly stopped with no ill side effects. Was yours? Oh, treat yourself for this fatigue from two angles, one if it's a side effect of withdrawal, and two why were you taking steroids... continue treating that condition. Just use something milder than steroids. Google for such. > I'd worried that I should have weaned myself but was feeling so > much better was afraid to backslide and just enjoying any kind of improvment. Yes. Very common with us. Good for you. Question: Did you get the symptoms reduced or eliminated? That is, you were taking steroids for a reason. Did that reason go away? >And that leads me to this question that has always botthered me >about steroid use; Isn't it's purpose to reduce inflamation by >replacing the low levels of cortisol There are a few steroids, out of many, that fall into this class. Most steroids are not cortisol based. So, I can not answer the question per your steroid use, unless you say the name of the particular type of steroid you were taking. Even then I would have to research it, unless it was the one steroid I know about (cortisol based - I've shots, oral, and topic usage... now I none of those preferring more natural treatments, slower acting, and I would use topical cortisol steroids if life threatening, but never oral again, and shots into muscles are okay, at reduced dose.) >that are depleted due to stressed, fatigued or non-functioning >adrenals? And wouldn't one also be able to mimic the positive >effects of reduced inflamation by using natural adrenal or cortisol >supplements? I can not say definitely. >This way you would avoid the immuno-suppressing side-effects of >long-term synthetic steroid use. Natural cortisol extracts were many >years ago a common therapy for asthma; which I'd only found out >recently. With that in mind; has anyone heard of, or used adrenal >supplementation to improve any effects of mold and/or chemical exposure? Try ACE drops. $45 for 1 ounce, and lasts 1 month. Most people have great results in the first month. ACE drops are hard to find. ACE extracts are available and do much the same. I've done both. And there are ACE precursors, even cheaper. Which to take? It all depends where your internal systems are broken. Do only one at a time. I did ACE drops for 3 months. 8 months later I tried them again... no gain. I had acheived a new level of organ health and did not need the drops. So, I tried a powder precursor, and did well for 1 month. Tried it again 4 months later, no gain. Again I had renormalized my adrenal system enough to not need them. Most ACE are beef derived, so if you anti mad cow.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 --- : Your comment about stopping some steroids abruptly is disturbing to me. If people take steroids for a length of time, your body becomes dependent on them because they cause your adrenals to shut down. SO, stopping them abruptly is not only a bad idea but can be LIFE THREATENING. Do you have any medical training?? Best not to give medical advice if you do not. D In , <pete-@...> wrote: > > At 11:25 AM 6/1/2009, you wrote: > > > >I agree steroids are horrid. I know in some cases it can keep us > >alive or reduce symptoms but mainstream med has little alternative > >or interest in weaning you off for all the reason that we're to > >aware of. I've done everything I can to reduce my need for it due to > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 I took steroids for a year and they finally weaned me off a little at a time. Do not just stop. Janet In a message dated 6/3/2009 7:40:13 P.M. Eastern Daylight Time, dianebolton@... writes: --- : Your comment about stopping some steroids abruptly is disturbing to me. If people take steroids for a length of time, your body becomes dependent on them because they cause your adrenals to shut down. SO, stopping them abruptly is not only a bad idea but can be LIFE THREATENING. Do you have any medical training?? Best not to give medical advice if you do not. D In _@ic_ (mailto: ) , <pete-@pet> wrote: > > At 11:25 AM 6/1/2009, you wrote: > > > >I agree steroids are horrid. I know in some cases it can keep us > >alive or reduce symptoms but mainstream med has little alternative > >or interest in weaning you off for all the reason that we're to > >aware of. I've done everything I can to reduce my need for it due to > **************Shop Inspiron, Studio and XPS Laptops at Dell.com (http://pr.atwola.com/promoclk/100126575x1222616459x1201464730/aol?redir=http:%2\ F%2Fad.d oubleclick.net%2Fclk%3B215218145%3B37264238%3Bd) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Hi Diane, I have to step in here and take the hit, as did not write the comment below. I did. But I did not write it as a recommendation at all and even shared my concern for my own ignorance about it being a dumb move on my part a few sentences later; " I'd worried that I should have weaned myself but was feeling so much better was afraid to backslide and just enjoying any kind of improvment. " I have no wish to offer any medical advice and was sharing this info as a means of understanding the implications. To further clarify (which I should have before), I was on a lower dose steroid inhaler which and not any medications like prednisone. Again, my lack of clarity sometimes gets me in trouble and I apologize. Certainly a longer period of weaning would have been preferable for sure. I get that now. I do not claim to know what I'm doing and apologize if it came off in any way that I was offering advise as opposed to looking for feedback. And, I do agree with you about the kind of advice we need to be careful of giving. Never my intent. I do thank you for your feedback. I hope that I haven't done myself any harm nor anyone else. I have been on some medically advised adrenal support for some time as well. Hopefully that has helped to minimize problems. Thanks again and again my apologies. Sam : Your comment about stopping some steroids abruptly is disturbing to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Diane, sorry, have been away ,the pacific yurts are made of fabric and wood, and very expensive, would not recomend them for any moldy. Please refer to Shelter Systems tent info I sent you-only way to go. The hexy-yurt -you must google. It is a home made structure for $200 made out of insulation panels taped together. My land mate made a cement floor, then we taped the panels together-put a tarp over it, then a shade cloth-staked down all around for stability-it is working for him. -I find the least bit of water slides in between the plastic coating on the panel and growes a microscopic amount of mold-enough for me to be out of there. - -- In , " dianebolton52 " <dianebolton@...> wrote: > > --- > : You stated " hexi-yurt working for the non-myco. " MY son just sent me some information on yurts (made by Pacific, I think). For what reason do they not work for the mycotoxin-sensitive? thanks D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 --- Thank you Sam, for stepping up. I just did not want to see anyone get in trouble healthwise with that statement. Steroids are tricky meds to say the least. Hope your adrenal support is helping you. Take care D In , Sam <yaddayadda53@...> wrote: > > Hi Diane, > > I have to step in here and take the hit, as did not write the comment below. I did. But I did not write it as a recommendation at all and even shared my concern for my own ignorance about it being a dumb move on my part a few sentences later; " I'd worried that I should have weaned myself but was feeling so much > better was afraid to backslide and just enjoying any kind of improvment. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 At 10:12 AM 6/3/2009, you wrote: >: Your comment about stopping some steroids abruptly is disturbing to me. I did not post anything like that. Someone else might have. I read nothing like what you said in this thread. I did post the below that does agree with you: Two things. Weaning off steroids is not what you think it is. Wish I had more time. Second, some steroids can be quickly stopped with no ill side effects. Was yours? I've included the rest of your post, so you can easily see that you likely were responding not to my words, but to someone else's quote that I included. However, even that quote does not have anything I could read that has anything about " abrupt. " > If people take steroids for a length of time, your body becomes > dependent on them because they cause your adrenals to shut down. > SO, stopping them abruptly is not only a bad idea but can be LIFE > THREATENING. Do you have any medical training?? Best not to give > medical advice if you do not. D > >In ><mailto:%40> , > <pete-@...> wrote: > > > > At 11:25 AM 6/1/2009, you wrote: > > > > > > >I agree steroids are horrid. I know in some cases it can keep us > > >alive or reduce symptoms but mainstream med has little alternative > > >or interest in weaning you off for all the reason that we're to > > >aware of. I've done everything I can to reduce my need for it due to > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 --- : After apologizing etc, I realize it WAS your comment afterall. In my world abruptly and quickly mean the same thing. All this going back and forth about it is nonsense, I was just stating that stopping steroids can be dangerous if not done properly and wanted to make sure that everyone here knew that. D In , <pete-@...> wrote: > > At 10:12 AM 6/3/2009, you wrote: > >: Your comment about stopping some steroids abruptly is disturbing to me. > > I did not post anything like that. Someone else might have. > I read nothing like what you said in this thread. > > I did post the below that does agree with you: > > Two things. Weaning off steroids is not what you think it is. Wish I > had more time. > Second, some steroids can be quickly stopped with no ill side > effects. Was yours? > > I've included the rest of your post, so you can easily see that you > likely were responding not to my words, but to someone else's > quote that I included. However, even that quote does not have > anything I could read that has anything about " abrupt. " > > > > > If people take steroids for a length of time, your body becomes > > dependent on them because they cause your adrenals to shut down. > > SO, stopping them abruptly is not only a bad idea but can be LIFE > > THREATENING. Do you have any medical training?? Best not to give > > medical advice if you do not. D > > > >In > ><mailto:%40> , > > <pete-@> wrote: > > > > > > At 11:25 AM 6/1/2009, you wrote: > > > > > > > > > >I agree steroids are horrid. I know in some cases it can keep us > > > >alive or reduce symptoms but mainstream med has little alternative > > > >or interest in weaning you off for all the reason that we're to > > > >aware of. I've done everything I can to reduce my need for it due to > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2009 Report Share Posted June 7, 2009 " If people take steroids for a length of time, your body becomes dependent on them because they cause your adrenals to shut down. SO, stopping them abruptly is not only a bad idea but can be LIFE THREATENING. " I go to the Fibromyalgia and Fatigue Center and I TAKE steroids. I take them for adrenal insufficiency and a study has shown that adrenal steroid hormone production is not decreased by the small amounts of replacement doses I take (10-20 mg. per day of bio-identical hydrocortisone). Therefore I can stop abruptly and would not be impacted. If you want I'll ask them to provide me with the study and post it here. " Do you have any medical training?? Best not to give medical advice if you do not. D " Good grief! I can't remember the last time I have found wisdom in conventional medicine. When you work for profit and the pharmaceutical company health is not a motivating factor. It's called conflict of interest and doctors are more concerned with a.) Keeping their license; b.) Profits. The health of the patient has to come after these two conditions are met. That's my opinion. Anyone see how the FDA is going after General Mills and Cheerios because they said eating Cheerios reduces your cholesterol? Our pharmaceutical company run FDA is going after General Mills. " Hey, General Mills: If you want to say Cheerios is " clinically proven to lower cholesterol, " you better get your whole-grain Os approved as a new drug by the FDA. " Now say what you like about the merits of this warning but I can certainly think of better things the FDA could be doing with their resources (our tax dollars). http://blogs.wsj.com/health/2009/05/12/fda-warns-general-mills-cheerios-is-a-dru\ g/ Quote Link to comment Share on other sites More sharing options...
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