Rehabilitation Management of CMT by Dr. Paolo Vinci // How to coordinate care

February 8, 2009

I keep copies of above book, I have a 3 page summary of book and I

have outlined my condition with the stages in book. When I walk

into a health professional I hand them a copy of book. I summarize

my concerns with specific examples and ask for help. The help that

is offered is compared to the help or course that is outlined in

book and a collaberative process is started. I find most

professionals appreciate the added info of the book and my personal

knowledge of my body and the book as it applies to CMT condition. A

greater level of confidence from me and the professional is began.

Not everything that I try works but the majority has!!!!

I have certain pages high lighted that are personal to me. This

really helps to forge a new direction with therapy or to revisit a

therapy that has not worked and may work now.

The most consistent complaint with CMT is ..... Some one help me...

Who can help .... who is a CMT expert? The most wide spread

information about CMT is DNA and gene stuff that is all great but it

will not help any of us today or next year.

Rehabilitation Management of CMT " by Dr. Paolo Vinci is the

best " coordination of care " I can come up with. Since using this

book and with Prolotherapy (not metioned in book) and AFOs

(mentioned in book for a foot drop angle greater than 105 degree) my

life has turned around from inactivity and possible disability to an

activity level close to my peers. I still have a ways to go but

gosh ..... life is a whole lot better! Thank you Gretchen for

sharing Dr Paolo Vinci with us here in USA.

Kim

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