Re: pain from cold

[Guest guest]

Hi Dawn,

I find cold very painful as well. That is why I moved from Northern

Europe to Southern California.

For me, most swimming pools, lakes, and rivers are much too cold for

me to swim, and my feet become ice-cold during the winter and they

hurt. I spent 12 hours once with this kind of pain in an airplane, and

I fainted when I got to the destination.

[Guest guest]

Hi , 

Lucky you! I lived in San Diego when I was in the fourth grade but then my

parents moved back to Buffalo, NY, where I'm from.  That one year in S.D. was

the best year of my childhood. I remember feeling physically better than I ever

had before that and I remember that running (they made us run every day in gym)

was so much easier while I was living in San Diego. I have always wanted to go

back to live.

Now that I am an adult with a child and an ex-husband who insists on visitation,

it looks like I'll never live there (out West) unless it's after my son is out

of high school. Then I would still want him out there with me. 

My point was, however, that I think you picked the right place to live because I

think the dry heat helps preserve the nerves or something.  Glad to " hear " what

you wrote though because I can so identify with what you're talking about. (Hey,

if you ever need a friend to visit you out there, don't hesitate to ask!)

Dawn

[Guest guest]

Hi,

I live in cold Sweden (we have snow today!) but it really doesn't affect me. I

go to warmer places on vacations, and the summer is warm, but the condition is

the same no matter where I am. I never go out without warm boots in winter, and

I acually like my rigid boots, they are like AFO-light, easier to walk in than

my summer ballerinas. But I have trouble with heat/cold sensation. I am

oversensitive. I can't take out my warm (not even hot to others) meals from the

microwave, since it feels too hot, it hurts.

Pain can be like that too. A minor wound on my feet means I can't sleep for 2

nights. (I know what causes it so I don't take painkillers, it goes away by

itself...) Once I had to search my foot thoroughly for the wound, it was barely

visible, but it really hurt.

In my case, moving to cold Sweden from warmer Hungary when I was 8 was really

beneficial. I walked a lot better and could even use the Swedish wooden shoes

(could never wear them now!) to school. All kids had them, so I was glad I got

better and could have them too. Maybe it's the moving that improves the

condition, not the weather?

Bye,

Beata

[Guest guest]

You are right Beata.

The more you move your legs, the better and stronger they will be. I live in

Connecticut, it's cold here too in the fall/winter time. There is no point of

moving.

[Guest guest]

Beata,

Good for you. You know, everyone is different. I lived in Buffalo, NY for 36

years before I moved (Buffalo has cold, icy, snowy winters that cannot be

rivaled by many). I also kept very active but that did not stop the freezing of

my feet and hands no matter what I did. I would think you would know by now that

so many people on this site DO try hard, including keeping moving. However, I

could not make my nerves fire to tell my hands and feet not to stay numb for

hours after coming in from the cold. If you could tell me how to activate these

nerves, then you might just have part of the cure for CMT. Are you a doctor? I

would love to still live in Buffalo, but there are things other than my CMT

preventing me from doing so. By the way, I was always very active as I have a

B.S. in Health and Wellness and being active has always been my way of life and

I also took courses like neurology where I studied the nerves (and got straight

A's in those courses). Yet, I did not find a way to eliminate the problem of my

fingers being paralyzed for hours after being out in the cold, sometimes out

there for only fifteen minutes would freeze them.

Dawn