Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 Hi everyone, I just seen another doctor today and he basically told me I needed around 6 more surgeries. I have had almost 20 already. Apparently, I have screws and plates coming loose, (I already knew I had screws loose but this is ridiculous) I have a joint that didn't fuse, my heel was not in the right position, one of my foot bones was broken and calcified wrong, bone spurs, bunions starting, toes curling, all this making one hip lower then the other causing my spine to curve. I have to have that done to both feet. He wants to take the screws and plates out first then attack the other problems. I asked why he couldn't do everything to the left foot then do the right but he said he didn't want me under anesthesia that long. I just went back to teaching this year and now I am going to have to quit. I hope I can get back on SS. Sometimes, I think it would be easier to amputate. Sorry, just needed to vent. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Jen, Wow, sorry to hear you have fallen on such hard times. I am on my 3rd surgery right now. (I also had surgery years ago to release some tendons and lengthen the achilles.) I started in June 07 having my rt ankle fused, March 08 having the left ankle fused and 1/09 had my heel moved and a triple arthodesis. I was hoping to have the same surgery on the left foot this fall but am out of FMLA - NH going through layoffs (I work for Health & Human Services) and I don't want to chance losing my job. (they allowed non-FMLA leave in March) I'm with you - I would rather have had all the crap done at once - I know people who have been under anesthesia for 8 - 10 hours and they survived. What in hell is the problem? I cannot afford to lose my job - I am single and have only my income to survive on. Good luck to you, I hope everything works out for you. Hope Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Hi Jen. Your situation seemes really tricky and disturbing. I really feel so sorry for you. I was thinking if you should get a seccond opinion on how to work through these treatments/operations.I mean the logistical side of this. Does the doctor at all consider the emotional, existential side of all this??? You have just gone back to teaching which is absolutely great. You should not be put in a position where you may end up with " empty hands " in the process of supposingly getting better, if it at all can be avoided!!! Well, as you probably here I am so sorry for you and I just wish that may find some support in sensible professionals to contemplate all this, before you go ahead with it all! - And of course, in good people here and in your private life. much love, Anne in Denmark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Jen, Why did you have so many surgeries, was it for pain, balance, walking?How old are you? B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 B., It was for foot deformities and the surgeries keep failing. I am 36. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Jen, I think you need a second opinion. The surgery that my son and I had was called a triple fash e ah do mi. (sorry can't spell it) . With one technique your arches will be repaired allowing your toes to come down on their own. During the surgery they put your heel in the correct position that corrects your heel cord placement. Once you are proper weight bearing bunions should go away. I am not a doctor but I did listen really good to my doctor and I asked a million questions when my son had it done on each foot. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Alice, You are truly an inspiration as is everyone on this list. I dont post all the time but when I do I always get the answers to my questions. Thank you for creating this list and god bless you. Lori From: llkc1234 <alice@...> Subject: Multiple Surgeries Date: Monday, October 12, 2009, 3:35 PM To answer the question about multiple surgeries, it is totally unusual for this to happen. I just happened to be the unusual. The CI is 98% successful but on rare occasions, there are physical conditions that interfere with the sound process. This by no means should prevent a person from going forward with the surgery and laying out the question in someone's mind is the very last thing I wanted to do. I felt that it was time that I came forward and expressed where I am these days but I cannot expound enough on the benefits of this device. I loved my 9 years. Given what I know today - I probably should have had none of them. I was blessed to have 9 very special years of hearing with my miracle. Don't let yourself be deprived of any time with sound. It's too precious. Alice http://www.. net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Alice, We've never " met " but you have been invaluable to me over the past several months. I searched the internet for information on CI's and finally found this group. It's a wonderful list you've started, full of helpful friendly people with so much information. I can't thank you enough for providing and maintaining this forum. I wish you the best on your own continuing hearing journey. You never know what might be just over the horizon. Even so, I'd like to channel your attitude into my own life. Take care. Maggie > > To answer the question about multiple surgeries, it is totally unusual for this to happen. I just happened to be the unusual. The CI is 98% successful but on rare occasions, there are physical conditions that interfere with the sound process. This by no means should prevent a person from going forward with the surgery and laying out the question in someone's mind is the very last thing I wanted to do. I felt that it was time that I came forward and expressed where I am these days but I cannot expound enough on the benefits of this device. I loved my 9 years. Given what I know today - I probably should have had none of them. I was blessed to have 9 very special years of hearing with my miracle. Don't let yourself be deprived of any time with sound. It's too precious. > > Alice > http://www..net > Quote Link to comment Share on other sites More sharing options...
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