RSD

[Guest guest]

I have RSD. Does anyone have this. Also have atrophy in my hand from RSD.

Thanks,

[Guest guest]

For those of us who don't know what Reflex Sympathetic Dystrophy is, can you

tell us or provide a link?

http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystrophy/reflex_sympathet\

ic_dystrophy.htm

[Guest guest]

My sister had this and if one can have transient RSD, I have. She thought I did

because pain was amplified horrendously for me at one point.

She was very ill and healed after leaving a humid basement apartment. She was

ill before living there, but was her worst there. She blamed everything on

dysautonomia and simplified and it seems generalized all her symptoms to

dysautomonia.

She was a physical wreck and we thought she had multiple system failure and was

dying. One thing after another physically. Doctor after doctor, etc. Could not

care for her children. She did have a stroke and near death experience. She also

moved out of the basement which may be where she had it, not sure. Then she

started to heal.

the RSD.. this too she " blamed " on dysautonomia, but she didnt blame

dysautonomia. She used it to help her frame her illness and crazy symptoms like

becoming paralyzed when her narcolepsy was acting up or when she loss the use of

a leg or when he BP woudl swing wildly and very very high and very very low. If

she focused on every symptom, it made things worse I suppose.

She told me how when she would become paralyzed that if she had any emotion (

seemingly common with narcolepsy) that her body would seize up more, so she had

to be completely calm and she would count down from 100 until her body released.

Long ramble, sorry. She never got scientific but she did get methodical in her

own way about addressing her dysautonomia.I know people dont like the idea of

" psychological " cures, but she did focus alot on bringing her ANS into balance

by talking her body down (as she phrased it), reframing her illness (she had no

choice.. no explanation, no board to discuss this or that theory with, no doctor

to help her.. many were abusive to her). She also leanred trigger point therapy

and reiki.. she was a bit gifted after the NDE so this was easy for her. I

know.. so simplistic it sounds patronizingly silly and yes she was very very

ill.

She had a total change in how she viewed illness and herself. I cannot explain

it.. I am not saying anyone can do this.. I havent been able to, but she did. I

dont beleive God chooses people to heal. Thats me. I dont think she healed

herself but I have met other people who ahve also healed from this or that

illness and everyone of them was transformed in some sort of way.

After reading Guptas Amygdala retraining program.. I think talking her bdy down

was very similar to what he is describing. She stopped participating with her

symptoms. Again.. I am not saying its all in my head or anyone elses head. Just

what I was told and what i have seen.

One woman I know who is now an exercise instructor who was very sick with cure

unknown lyme also has this kind of perspective. She beleived she was sick (she

didnt undermine that or need to prove it) and she beleived she would heal. That

helped her shift emotionally and that kind of perspective does help some people

heal.. for some reason.

I see these people like my sister and then I get so into every detail of my own

illness so laboriously and the man I ran into who has had mold illness and is so

much better after leaving his home hes the same way.. maybe its all been easier

for him so he can have this let go and let god..listen to my instincts, do the

best I can, learn as I go, gather just enough info to make the next decision and

let go and live attitude.. what gives there?

I met someone who was in a wheel chair, oxygen 24 hours a day, and frail thin...

her too. She had this shift in perspective in how she viewed illness and

herself.. on longer a victim.. so much more I dont grasp yet. She is so much

better now. Looks healthy.. few issues she still works on but is in love with

life, her life.

Everyone of these people had " cure unknown, " " invisible " , " youre on your own and

probably going to die or never get better " illnesses and yet they did in this

same sort of way.. all in different ways but coming out the end with this same

kind of perspective.

Sorry for the ramble. RSD made me think of my sister and Im researched out,

having problems breathing, muscles are tremoring and just tired.

Robin

> >

> >

> > Has anyone had RSD? If so what helped you get past it?

> >

> > http://www.neurologychannel.com/rsd/index.shtml

> >

> >  I jammed my toe in the spring & it hurt like I just did it for days, burned

& swelled. I thought it went away but came back.

> >

> > It's gotten so bad I don't know what to do. The skin  feels hot. I should

say nerve endings over-react & feel like they're stuck. You can still move but

they burn & are numb.

> >

> > I considered the ER last night & thought what would they do? It's either on

the left, right head to toe. The scariest is when goes to the thoractic area

down through the core. I ordered a TEN's nerve stimulator but don't have it yet.

> >

> > Hot bathes or hot water in an ice bag, since they're soft help some.

> > I thought had shingles in July. The weird thing is the dried up

> > crusty things never left, but faded.

> >

> > Wonder if it's from mold or c/b morgellen's. Read you can self test w grape

juice switching in your mouth & spitting it out. If there are fibers you have

it.

[Guest guest]

I have an old injury of sublexed vertabra in the thoratic spine that caused

pinched nerves.  My x-rays show mild degeneration on that disk.

The injury to my toe that caused swelling, numbness & pain that locked did stop.

It might be pinched nerves that haven't been treated for awhile & the two have

nothing to do with each other.  We'll see what the chiropractor or neuro says.

I'm sorry I let go last night.

Kathy