Re: Paralysis caused by mold

[Guest guest]

Division of Clinical Immunology and Rheumatology, Department of Medicine, School

of Medicine and University Hospital Center Zagreb, Zagreb, Croatia.

ncikes@...

Connective tissue diseases can be characterised by central nervous system (CNS)

involvement, in some patients manifested by demyelination areas in the white

matter of the brain and spinal cord, which are difficult to differentiate from

multiple sclerosis (MS) and other demyelinating processes, such as transverse

myelitis and optic neuritis. Demyelinating process may be the feature of nervous

impairment in systemic lupus erythematosus, Behcet's disease (BD), Sjoegren's

syndrome (SS), systemic sclerosis (SSc) or very rarely other systemic autoimmune

diseases. An acute isolated neurological syndrome, as the most common symptom of

MS can sometimes be the only feature or even first manifestation of nervous

impairment in connective tissue disease, hence presenting the diagnostic

problem. Although the white matter abnormalities seen by magnetic resonance

imaging may be similar in non-MS autoimmune demyelination and MS, it is the most

important diagnostic tool

in the differential diagnosis of the mentioned conditions. Investigating the

presence of various autoantibodies potentially involved in the pathogenesis of

demyelinating lesions as well as cerebrospinal fluid (CSF) analysis can be

helpful.

 

http://www.ncbi.nlm.nih.gov/pubmed/18928881

 

 God Bless !!

dragonflymcs

Mayleen

________________________________

From: <brianc8452@...>

Sent: Wednesday, July 1, 2009 10:45:12 PM

Subject: [] Paralysis caused by mold

Has anyone ever heard of a progressive paralysis

(non MS/demyelination) occurring in the presence of a mold or candida

infection?

Would this kind of thing always show up on MRI?

Is the treatment for mold illnesses always IVIg's?

If so, does everybody improve with IVIg's?

Does everybody improve when they remove the source or leave the environment?

This is for a 15-year old girl who is paralyzed, on a ventilator, and unable to

speak.

Thank you.

[Guest guest]

At 07:45 PM 7/1/2009, you wrote:

>Has anyone ever heard of a progressive paralysis

>(non MS/demyelination) occurring in the presence of a mold or candida

>infection?

Yes.

>Would this kind of thing always show up on MRI?

" always " is a strong word to get a reply on a mailing list of volunteers.

>Is the treatment for mold illnesses always IVIg's?

>If so, does everybody improve with IVIg's?

No, and no. But it can keep her alive. And if the right stuff is

put in them (see below), you can reduce mold illness.

If her body has mold colonies inside it, then most likely yes, if an

anti-fungal is being added.

Your post did not contain much information, that would lead to any

strong conclusions.

I've included what I could in the time I have available.

I know several people like her, and include myself, years ago.

My suffering is complicated when exposed to carbon monoxide or sewer

gas of any type.

>Does everybody improve when they remove the source or leave the environment?

No. Near permanent damage can result, but I have almost fully recovered from

being similarly paralyzed. I believe a full recover is

possible. Doctors will not

likely be primary care practitioners as they do not have the training

for recovery,

unless you get to a doctor trained in immuno-neurology.

>This is for a 15-year old girl who is paralyzed, on a ventilator,

>and unable to speak.

You do not explicitly state what professional aid she is

getting. The assumption

I have is she is in the hospital, under doctor's care. For a MCS person that

is the last place she will recover from. I do not know your

relationship to her,

but I'll voice the level of concern for a possible recovery, is low, given her

treatment " environment " is likely includes multiple external exposure

to chemicals

and substances her body is " inflamed " from.

And that leads to how to treat her properly in this environment, that is

convincing the doctors how to test her, and then treat her.

Inflammation is the key. The doctors can run tests for this. Why

inflammation?

I had progressive paralysis and I halted it with two primary changes.

First, I eliminated the external cause of my body's inflammation.

This is a change of environment, and touching only 'natural materials'

and no man made ones. Hospitals are full of unnatural substances

and smells. It's not that hospitals can not supply a natural environment,

it's just an expense they do not think of, until the doctor says so.

And then it can be achieved by inexpensive means, all cotton sheets,

and PJs. Remove bad smelling furniture. Stop using chemical cleaners

in the bathroom and room. Open the window and force fresh air in all

the time. It could be her room is the " exhaust " path of the building,

and all the bad fumes enter her door, and exit via the window.

Second, medical blood tests and other tests can show inflammation a

doctor can " treat. " Supplements might stop or slow the inflammation,

but might even reduce it (but not as long as the external exposures

remain in place that cause the inflammation). No fluoride or chlorine

in the drinking water, or food preparation. No fluoride toothpaste.

Both these chemicals will severely impact her immune system,

causing decline. 10% improvements can be had by removing these

two chemicals from her diet, or exposure (bathing chlorine is hard

to eliminate).

Diet change can result in a 50 to 80% improvement or more. If she

has not been tested for food allergies, and other allergies, the skin

prick tests, on her back or arm, then have them done, immediately.

Increase her B vitamin intake. 200 mg with each breakfast and dinner,

for 5 meals, just once every 2-3 months. And do a normal daily

dose between these therapeutic levels. Why B vitamins? They

are called B due to being used to build and heal the body's nerve

fibers, spine and brain. As the paralysis is likely due to nerve

system impact, consuming more nerve healing molecules should

reduce systems.

There is so much more I could post, but if these basics can not

be taken care of, as the doctors are skewed, then my time is better

spent typing to earn a living, so my life can return to normal.

Good luck, and my best wishes for her best, rapid recovery.

[Guest guest]

- My sincere best wishes for this young woman.

- I am absolutely glued to your post. My husband works in a

very very nasty sick building. It's a bomb shelter under a local justice

center. The inmates above them routinely flush things too large - shirts

and undies - then the overflow ends up in my husband's office. Guarantee

they do NOT clean adequately. Then to top it off they keep the AC set to 80

degrees. Being underground this leads to 80% humidity (measured). *Every*

one of his staff is sick....

This march he was at work, came home with flu like symptoms. 2 days later

he was in the ER for unilateral tingling which progressed to unilateral

partial paralysis and inability to swallow. I fear he too was steps away

from a ventilator.. that's when I brought in our supplements - probiotics, B

vitamins, elderberry, nerve shield, alpha lipoic acid, co-q-10, d-ribose,

l-carnitine, to name but a very few.

He's slowly showing improvement - 3 months later and he's out of the

wheelchair, off the walker and today finally got on a treadmill - 1.0 mph,

no incline, for 10 minutes. This is a man who last year was dead for a few

minutes after an ER flushed his magnesium and his cardiologist told him his

net step was a heart transplant then we were told he would be dead within 2

weeks. Since then we've rebuilt his heart using supplements and nutrition

and as much natural in his environment - we've eliminated a number of

chemicals but I'm sure we've got a long ways to go. The thing is, we've

rebuilt him once - his heart is now " normal " sized, no longer severely

enlarged and his ejection fraction is back to the 49% or higher (virtually

normal pumping action) - if we did it once, we can do it again. He was up

to 3.2 mph, for 20 minutes with an incline... so just getting back on the

treadmill is very motivating for him. Afterall, just 3 months ago he

wondered if he would ever swallow again.

Can you share any other enlightenment? What helps to clear the yeast,

candidea or whatever he may have? What supplements should we consider that

we may not have considered previously?

I've long suspected his work environment on this odd illness. They've

called it TIAs and Stroke yet his tests for these were all negative. He was

told he had a microblockage - negative and MELAS - negative. He's tested

negative for every infectious disease they can think of - HIV, Herpes,

chickenpox, shingles, etc so now they are calling it an unknown viral

enchephylitis of unknown cause. But I really suspect his environment -

since he's returned to work I immediately saw a major setup in his recovery.

He's slowly progessing forward again, but not nearly at the pace he was

previous to returning to his office.

Jeri

On Thu, Jul 2, 2009 at 2:33 PM, <pete-@...

> wrote:

>

>

> At 07:45 PM 7/1/2009, you wrote:

> >Has anyone ever heard of a progressive paralysis

> >(non MS/demyelination) occurring in the presence of a mold or candida

> >infection?

>

> Yes.

>

> >Would this kind of thing always show up on MRI?

>

> " always " is a strong word to get a reply on a mailing list of volunteers.

>

> >Is the treatment for mold illnesses always IVIg's?

> >If so, does everybody improve with IVIg's?

>

> No, and no. But it can keep her alive. And if the right stuff is

> put in them (see below), you can reduce mold illness.

>

[Guest guest]

-If this girl was my relative, I would-in order, remove her to a pristine

environment, put her on CSM, get an appointment with Dr Berkson in Las Cruces so

she can start ALA IV's and LDN, and get an app with Shoemaker.

-- In , <brianc8452@...> wrote:

>

> Has anyone ever heard of a progressive paralysis

> (non MS/demyelination) occurring in the presence of a mold or candida

> infection?

>

>

[Guest guest]

> >

> > Has anyone ever heard of a progressive paralysis

> > (non MS/demyelination) occurring in the presence of a mold or candida

> > infection?

> >

> >

>

I am the uncle of the 15-year old girl, andria (), who is paralyzed and

on a ventilator. I pretty much have devoted the last 4 years to trying to

figure out this puzzle. I hadn't realized that this got posted here on this

forum- whomever did, thank you. I'll add more information. I know these posts

can get tough to read, so I'll list and try to be succinct:

-Identical twin (twin sister is healthy)

-Twin sister had a 1 ½ year battle with GERD- the day of her last appointment

with the GERD doctor, began having symptoms!

-Seemed like everything started after a fall while playing basketball (reverse

whiplash, no fracture)

-Currently living at home (in 3 different hospitals in 2006)

-ALL genetic testing for neuromuscular disease are negative

-Some genetic testing for ability to remove toxins suspect (have not had HLA

testing done)

-Initially, thought it was Guillain-Barre' Syndrome

-Lives in a town where there seems to be a lot more illnesses than national

norms. The illnesses seem to have begun when they began dredging the

lake…stirring up the heavy metals maybe…????

-The plumbers in town were so busy they had a meeting to discuss how to keep up

with all the business due to small leaks in piping. (the town brought in an

independent firm from out-of-state to test and it was found the drinking water

was safe- but who knows if it's truthful).

-They have however, always used bottled water

-They live near a lake, a small reservoir with many, many birds, the water plant

and an airport

-Hog and turkey plants in town

-They left their home and started IVIg's; never saw improvement, just a steady,

consistent decline

-IgM and IgG serum mycoplasma pneumoniae testing was positive as well as IgG CSF

-Not CDC positive for Lyme disease, but 2 Western Blots are questionable

-Highest positive for a Qualitative Rapid Identification for Borrelia

burgdorferi test. For those unfamiliar with this test, it is a darkfield

microscopic test that identifies the " cyst form " of lyme, but it was not a well

respected test. We're not sure what they saw under the microscope, but clearly

there was " something " there.

-IgG positive for Bartonella species by blood smear, but PCR negative. She does

have the characteristic red striae/streaks on her kneecaps, abdomen, and hips.

These are NOT stretch marks as she cannot move to allow the skin to be

" stretched " .

-Positive for candida antibodies (unclear if this was a result of all the

antibiotics OR the cause of her paralysis)

-Elevated/High heavy metals: nickel, aluminum, arsenic, mercury, cadmium, and,

of all things… tungsten!

-Babesia testing negative

-HHV-6 IgG titers were positive, although infectious disease doctor didn't think

this was significant

-RBC abnormalities; the bartonella slide showed something " adhering " to RBCs

and other facility testing indicated a poikilocytosis, or abnormal shape of

RBCs, so there is consistency there. The RDW (RBC width in weekly testing is

constantly abnormal).

-The latest research from this lab is indicating this adherence is due to a

protozoan organism.

-Serum mold antibody testing revealed:

-Stachybotrys chartaru -Cladosporium herbarum

-Chaetomium globosum -Alternaria tenuis

-Asper niger -Penicillium notatum

-Aspergillosis fumigatus -Phoma herbarium

-Geotrichum candidum -Pullularia pullulans

-Candida -Geotrichum candidum

-Aflatoxins -Satratoxins

-Trichothecene -Aspergillus hemolysin

-T-2 toxin -Mycophenolic acid

-Alternariol -Vomitoxin

***Her twin sister had many of these same species in testing.

-A Netherlands test showed:

1. My findings indicate a strain of " Strep " bacteria which resembles a fungus in

its branching filamentous structure. Consequently, this bacterium can harbor

within fungus or Candida in one's body which appears to create an environment

which makes the bacteria more difficult to overcome. This bacterial

inhabitation in humans is quite common and can even be transmitted through

air-borne contact. Symptoms may vary in each individual and have been known to

manifest(but not always) in the organ systems that are prone to stress or

weakness.

2. There appears to be Lyme Disease that could be mutated within a secondary

organism. This combination could cause fluctuation in blood sugar levels,

disturbances in nervous tissue, and possible loss of energy and resistance.

-3 EMGs showed " no " demyelination (which rules out all demyelinating disorders)

-The first of 3 lumbar punctures did reveal WBCs, the second was less and the

third there was no WBCs seen. Cultures did not reveal anything significant.

-It seems a bit unusual that two previous swallow tests were normal and she eats

and swallows fine for 8 months, and then all of a sudden, once we begin

Zithromax, she starts to have swallowing problems. From April, 2005 to Dec.,

2005, her decline was consistent.

Then, from the time she was ventilated in March, 2006 to Dec., 2006, there is no

progression,whereas the previous 8 months, she progressed consistently. I have

read that the macrolide antibiotics, especially Zith., has anti-inflammatory

properties. So if this was an inflammatory-mediated disease, the Zith. should

probably not have caused what it did. Agree…???

-Her C-reactive protein can be all over the place one week and normal the next

week.

-One of the things she did growing up was that she would delay defecation. She

would " hold it in " and typically plug the toilet (re-circulating toxins???)

All nutrition through a g-tube in stomach. She receives supplements called

Reliv with no refined sugars. This, and her liquid vitamin contains; vitamins,

minerals, antioxidants, amino acids, enzymes, phytonutrients, electrolytes, and

bioflavinoids,She also does get probiotics each day; 20 billion units.

-Just completed a course of IV-Mycamine for candida

-Started samento and will begin garlic (allicin) for infections

-Will also be starting oral chelation soon

-She absolutely, positively cannot travel; it is life threatening for just a

simple " appointment " . If we knew for a fact that we could get her to someone

who would be able to offer immediate help, we would have her on a plane

tomorrow. But at this point, it would work better if someone came to her.

-We have appealed to Shoemaker with no luck. Even contacted people who state

they know him and had no luck.

I have no doubt inflammation is playing some sort of role, but how, where, and

from what are the questions?

I don't know what is causing this…mold/mycotoxins?, bacteria/lyme?, virurs?,

some sort of stealth pathogen?, candida?, some new mystery bug/protozoan?, heavy

metals? Where to start…???

How do heavy metals circulate in the blood; freely?, attached?

Is mold/fungi/candida/mycotoxins easy to culture from CSF?

Thanks!

Mike

mikej2323@...

www.caringbridge.com/visit/angelsforalex

[Guest guest]

Mike, thanks for posting the details. I'm sorry for what you and your family

and have had to endure over the past four years. I hope you get your

miracle soon and a medical expert comes to and is able to help. I was glad

to read that will be starting oral chelation. I hope it helps. I was

wondering---with all of the different types of molds in her test results, has

tried Lamisil? I tried many different treatments and nothing worked until

I tried Lamisil. Please keep us posted on 's progress.

________________________________

From: mikejh2323 <mikej2323@...>

Sent: Wednesday, July 8, 2009 1:12:07 PM

Subject: [] Re: Paralysis caused by mold

> >

> > Has anyone ever heard of a progressive paralysis

> > (non MS/demyelination) occurring in the presence of a mold or candida

> > infection?

> >

> >

>

I am the uncle of the 15-year old girl, andria (), who is paralyzed and

on a ventilator. I pretty much have devoted the last 4 years to trying to

figure out this puzzle. I hadn't realized that this got posted here on this

forum- whomever did, thank you. I'll add more information. I know these posts

can get tough to read, so I'll list and try to be succinct:

-Identical twin (twin sister is healthy)

-Twin sister had a 1 ½ year battle with GERD- the day of her last appointment

with the GERD doctor, began having symptoms!

-Seemed like everything started after a fall while playing basketball (reverse

whiplash,

[Guest guest]

Just some quick, off the top of head, feedback.

Some things may make sense to you.

I can connect a couple dots, perhaps.

At 01:12 PM 7/8/2009, you wrote:

>I am the uncle of the 15-year old girl, andria (), who is

>paralyzed and on a ventilator. I pretty much have devoted the last 4

>years to trying to figure out this puzzle.

Good for you. She's lucky to have you on her side.

>-Identical twin (twin sister is healthy)

>-Twin sister had a 1 ½ year battle with GERD- the day of her last

>appointment with the GERD doctor, began having symptoms!

>-Seemed like everything started after a fall while playing

>basketball (reverse whiplash, no fracture)

Look into Closed Head Injury. Did her brain and skull get xray'ed

and MRI looking for

internal bruising? Even if she says she did not strike her head, it

should have been done.

CHI gives MCS symptoms, to a 95% match. Treatments for one, works

for the other.

Apparently, MCS may be a chemical injury to the brain, near identical to CHI.

>-Currently living at home (in 3 different hospitals in 2006)

It's likely the decline is caused by something at home?

This home is all she has ever know?

>-Lives in a town where there seems to be a lot more illnesses than

>national norms. The illnesses seem to have begun when they began

>dredging the lake…stirring up the heavy metals maybe…????

Well, you've heard this before. Time to move her. Upwind, and upstream.

>-The plumbers in town were so busy they had a meeting to discuss how

>to keep up with all the business due to small leaks in piping.

These " leaks " were they in house pipes, or the city supplied fresh water

pipes in the street? If both, then something is in the water. The leaks

were at the pipe joints? Copper sweated joints, or steel pipe? Or in the

walls of the pipe? Copper or steel?

Once you have these answers, I'd call an out of state plumber, and ask

questions. Or web search. Do not let anyone know what city you are

from.

>-They have however, always used bottled water

Supplied from where? The same reservoir that gives the tap water?

>-They live near a lake, a small reservoir with many, many birds, the

>water plant and an airport

>-Hog and turkey plants in town

Oh dear. Hog plants? You mean farms, or slaughter?

Uphill of your home, or downhill? Thinking water table contamination?

Upwind or downhill?

>-They left their home and started IVIg's; never saw improvement,

>just a steady, consistent decline

They? It sounds like a parasite. Or several.

>-Highest positive for a Qualitative Rapid Identification for

>Borrelia burgdorferi test. For those unfamiliar with this test, it

>is a darkfield microscopic test that identifies the " cyst form " of

>lyme, but it was not a well respected test. We're not sure what they

>saw under the microscope, but clearly there was " something " there.

Picture?

>-IgG positive for Bartonella species by blood smear, but PCR

>negative. She does have the characteristic red striae/streaks on her

>kneecaps, abdomen, and hips. These are NOT stretch marks as she

>cannot move to allow the skin to be " stretched " .

Picture?

I can not help with the pictures, but I'm pointing out if you had them,

then you could be making a very good email to send to experts to evaluate.

Verbal descriptions...

>-Positive for candida antibodies (unclear if this was a result of

>all the antibiotics OR the cause of her paralysis)

>-Elevated/High heavy metals: nickel, aluminum, arsenic, mercury,

>cadmium, and, of all things… tungsten!

Ah, I connect this to the constipation. It means more absorption of

" everything " .

Did any doctor make this connection?

Has this been " fixed? " It has to be for detox to begin.

>-HHV-6 IgG titers were positive, although infectious disease doctor

>didn't think this was significant

I think the ID doctor is not significant. Ignoring symptoms... only happens

when the doctor is not willing to profess a lack of knowledge. Sales

people do the same thing. One could expect more from a doctor.

>-RBC abnormalities; the bartonella slide showed something " adhering "

>to RBCs and other facility testing indicated a poikilocytosis, or

>abnormal shape of RBCs, so there is consistency there. The RDW (RBC

>width in weekly testing is constantly abnormal).

The abnormal RBC was one thing I posted about.

What is being done to restore the RBC?

It's a key to getting better.

Bad RBC shape is a huge clue, and must be treated.

I would not treat it with " drugs " as much as find the cause

and treat the cause. I read it takes 4-6 weeks to see any small

change, if any. And 4-6 months to for sure see a small change.

So, it's a long hard road for treatment.

>-The latest research from this lab is indicating this adherence is

>due to a protozoan organism.

>

>-Serum mold antibody testing revealed:

>-Stachybotrys chartaru-Cladosporium herbarum

>-Chaetomium globosum-Alternaria tenuis

>-Asper niger-Penicillium notatum

>-Aspergillosis fumigatus-Phoma herbarium

>-Geotrichum candidum-Pullularia pullulans

>-Candida -Geotrichum candidum

>-Aflatoxins-Satratoxins

>-Trichothecene-Aspergillus hemolysin

>-T-2 toxin-Mycophenolic acid

>-Alternariol -Vomitoxin

>***Her twin sister had many of these same species in testing.

Did you compare the two sister's ranges? What is missing?

What has a large disagreement? Then treat for that, in order

to get her back on her feet, like her sister.

>-A Netherlands test showed:

>1. My findings indicate a strain of " Strep " bacteria which resembles

>a fungus in its branching filamentous structure. Consequently, this

>bacterium can harbor within fungus or Candida in one's body which

>appears to create an environment which makes the bacteria more

>difficult to overcome. This bacterial inhabitation in humans is

>quite common and can even be transmitted through air-borne contact.

>Symptoms may vary in each individual and have been known to

>manifest(but not always) in the organ systems that are prone to

>stress or weakness.

I'm thinking Dr. Hulda 's zapper. Detox might be extreme, so go slow.

Get expert advise, even hire her.

>-The first of 3 lumbar punctures did reveal WBCs, the second was

>less and the third there was no WBCs seen. Cultures did not reveal

>anything significant.

Cultures not showing something is not significant, and should not rule out

what could have showed up. Culture technology is in it's infancy.

It's not reliable. Given the situation, false negative is likely.

>-It seems a bit unusual that two previous swallow tests were normal

>and she eats and swallows fine for 8 months, and then all of a

>sudden, once we begin Zithromax, she starts to have swallowing

>problems. From April, 2005 to Dec., 2005, her decline was consistent.

She is off zithromax now? Did you search for zithromax hate web sites?

>Then, from the time she was ventilated in March, 2006 to Dec., 2006,

>there is no progression,

Positive or negative? It sounds like her diaphragm is involved, or

that area.

Ventilation allows those muscles to relax, meaning that area and the

surrounding tissue gets less movement. Did the doctors mention this?

Bring it to their attention. Research of ailments where this occurs.

>whereas the previous 8 months, she progressed consistently. I have

>read that the macrolide antibiotics, especially Zith., has

>anti-inflammatory properties. So if this was an

>inflammatory-mediated disease, the Zith. should probably not have

>caused what it did. Agree…???

The timing ... I disagree. If the Zith was 'effective " , then a die

off effect might cause the current symptoms.

>-Her C-reactive protein can be all over the place one week and

>normal the next week.

Is her diet being tracked and compared to this test?

And wind direction. Hospital air gets external fresh air,

to replenish the oxygen, and they will " claim " it's filtered,

but it's never " fully " filtered. It's typically not HEPA, but

electrostatic, and that lets mold spores through, gasses,

light and heavy molecules, and other substances given

they have dipole moments that can cancel the electrostatic

effect long enough to get through the filter.

Doctors and staff are " not " experts in the effectiveness of air filters.

Point this out to them.

>-One of the things she did growing up was that she would delay

>defecation. She would " hold it in " and typically plug the toilet

>(re-circulating toxins???)

Not just re-circulating them, but taking them out of the food, and putting

them into the body, faster than the body can detox.

>All nutrition through a g-tube in stomach. She receives supplements

>called Reliv with no refined sugars. This, and her liquid vitamin

>contains; vitamins, minerals, antioxidants, amino acids, enzymes,

>phytonutrients, electrolytes, and bioflavinoids,

Oh my, how sad for a 15 year old.

>She also does get probiotics each day; 20 billion units.

Oh, good grief. Why so high? Due to test results indicating it was needed?

Such high levels, will cause constipation, and poor digestion.

What species? Ratio? Brand? Inert ingredients?

Allergy testing to these supplements?

>-Just completed a course of IV-Mycamine for candida

Probiotics could be so high due to that.

>-Started samento and will begin garlic (allicin) for infections

Skin ailments? Treating those is " key " , but not with drugs, but safe things.

>-Will also be starting oral chelation soon

Good. What type? For what metals? Doctors expectations are?

Duration of chelation? Get this info ahead of time.

>-She absolutely, positively cannot travel; it is life threatening

>for just a simple " appointment " . If we knew for a fact that we could

>get her to someone who would be able to offer immediate help, we

>would have her on a plane tomorrow. But at this point, it would work

>better if someone came to her.

Is the room air she is in HEPA filtered? Buy an IQAir (with VOC

cartridge in case it's a gas).

Positive pressurize the home so all air is clean from the HEPA, and forces,

any bad air in the walls, floors, or ceiling out of the room.

My expectations are she should have a 5% recovery within the week,

which is not getting out of bed.

Also, what is her bedding and pillow made from? All organic white cotton?

>-We have appealed to Shoemaker with no luck. Even contacted people

>who state they know him and had no luck.

Most doctors will not get involved with differential diagnose for

three or more diseases,

as it's very time consuming, not measured in hours, but weeks of the

doctor's time.

Meanwhile, other patients suffer, die, and the doctor would be liable

for those deaths.

>I have no doubt inflammation is playing some sort of role, but how,

>where, and from what are the questions?

What is being done to keep her immune system from being over worked?

Any raw glandulars? Or other OTC health store supplements designed

for immune system support? Do NOT use immune system boosters,

as at this stage it will burn out the immune system. Use only " support. "

>I don't know what is causing this…mold/mycotoxins?, bacteria/lyme?,

>virurs?, some sort of stealth pathogen?, candida?, some new mystery

>bug/protozoan?, heavy metals? Where to start…???

>

>How do heavy metals circulate in the blood; freely?, attached?

>Is mold/fungi/candida/mycotoxins easy to culture from CSF?

Those are good questions. Most of the answers are not known, and

those people who have answers, are called " researchers " , as these

fields are in their infancy.

As the entire town is harmed, putting all their test results into a computer,

with dates, and doing a comparison and contrast...

Putting as many people who will allow it. Map by geo area (google

maps and gears).

Look for plume shapes of similar groups of symptoms, and follow the

wind, or the water.

Good luck.

[Guest guest]

Cyanobacteria? ALS connection? See Lake Mascoma,Darmouth College NH recent

newspaper findings? Don't know if this is helpful, but have read Shoemaker's

works. God bless. 15 is too young for such an awful experience. At that age

especially, the body can heal.

>

>I am the uncle of the 15-year old girl, andria (), who is paralyzed and

on a ventilator. I pretty much have devoted the last 4 years to trying to

figure out this puzzle. I hadn't realized that this got posted here on this

forum- whomever did, thank you. I'll add more information. I know these posts

can get tough to read, so I'll list and try to be succinct:

[Guest guest]

I'll add to my previous posts, IgA and IgM testing is done as a measure

of " sensitivity " or hypersensitivity, meaning there is an exposure to an

external substance (touch, inhaled or digested), that is causing her

immune system to increase these molecules. It's new science the

last 5-10 years, not taught in med school yet, and most doctors who

take CME courses do not get adequate understanding of how to treat it.

Remove the substance(s). It's the only treatment to eliminate the

increase in IgA and IgM.

Immunoscience Labs in Los Angeles had an excellent web site with

info on this. www.Archive.org might have some of their resources left

online, that detail the protocols involved in how IgA and IgM levels can

be used as a test (expensive compared to just removing substances)

for sensitivity. The ratio of their levels determine how many days since

the last exposure.

Getting the inflammation down, IgA and IgM are inflammation markers,

is going to get her back on her feet. Inflammation in the CNS is likely

the issue for her.

Along with intestinal pressure pinching swollen nerves shut that go to

her legs. The nerve conduction to her legs should be measured and

determined where the signals are stopping along the CNS.

Has a MRI for spinal lesions been done? These can also cause loss

of movement.

[Guest guest]

After sitting in the IV room in Las Cruces, NM for almost a year, I have yet to

see an illness which did not respond to ALA IV, plus nutrition and LDN, So for a

mystery illness such as this ,I think it would be worth a trip to Dr Berksons

office. It takes 6 months to get an appointment, and treatment is only in Las

Cruces, so I still stand by my recommendation of ALA IV's, read the book, the

Alpha Lopeic Acid Breakthrough, I have seen miracle cures there.

>

> I am the uncle of the 15-year old girl, andria (), who is paralyzed

and on a ventilator. I pretty much have devoted the last 4 years to trying to

figure out this puzzle. I hadn't realized that this got posted here on this

forum- whomever did, thank you. I'll add more information. I know these posts

can get tough to read, so I'll list and try to be succinct:

>

[Guest guest]

have you seen the repair of the MYELIN SHEATH?  that, i'd have to see, to

believe.

victoria

From: <kdeanstudios@...>

Subject: [] Re: Paralysis caused by mold

Date: Friday, July 10, 2009, 11:51 PM

After sitting in the IV room in Las Cruces, NM for almost a year, I have yet to

see an illness which did not respond to ALA IV, plus nutrition and LDN, So for a

mystery illness such as this ,I think it would be worth a trip to Dr Berksons

office. It takes 6 months to get an appointment, and treatment is only in Las

Cruces, so I still stand by my recommendation of ALA IV's, read the book, the

Alpha Lopeic Acid Breakthrough, I have seen miracle cures there.

>

> I am the uncle of the 15-year old girl, andria (), who is paralyzed

and on a ventilator. I pretty much have devoted the last 4 years to trying to

figure out this puzzle. I hadn't realized that this got posted here on this

forum- whomever did, thank you. I'll add more information. I know these posts

can get tough to read, so I'll list and try to be succinct:

>

[Guest guest]

I do not know specifically about that, I will inquire in the next month, but I

know people who were in wheel chairs with Multiple dystrophy and lupus, who are

now very happy-Also ,I have seen people with MS respond very well to LDN

-- In , Frohna <vafrohna@...> wrote:

>

> have you seen the repair of the MYELIN SHEATH?  that, i'd have to see, to

believe.

> victoria

>

>

[Guest guest]

let me know, karen, will ya?  and i'm forgetting what LDN stands for?

vicki

From: <kdeanstudios@...>

Subject: [] Re: Paralysis caused by mold

Date: Sunday, July 12, 2009, 3:00 PM

I do not know specifically about that, I will inquire in the next month, but I

know people who were in wheel chairs with Multiple dystrophy and lupus, who are

now very happy-Also ,I have seen people with MS respond very well to LDN