Re: 'normal CMT fatigue'

[Guest guest]

Hi Matt,

I was thinking that you need more rest. CMT related or not, being tired is not

good. What if you get too exhausted to work at all? I love my child too and

spending time with him is the best, but I am rational about it. His father takes

half of the care for him and he spends some weekends with granny.

For you I would recommend that your wife tries to find another job, so that she

can be at home during the weekends. Also engage family and friends (or

babysitters sometimes) to look after the kids.

Getting rest is really important. The kids won't thank you for sacrificing

yourself now if you collapse later... In my case, the weekend-work week

transition is hard too, but I have asked if I can start later on Mondays. In

case there is nothing special going on, I get to my work at 10 am on Mondays,

meaning I can take it easy in the morning.

About walking to the train: I did this too, and yeah, I was always the last

person... I gave it up and now I go by car. I know it's not an option always,

but if you like your job, make the travel to and from it effective. Move closer,

for example.

It is hard to find a balance between work and free time. Always important to try

to minimize the energy lost, so that you have some energy left. This is true for

everybody, but especially for CMTers. So make a list, what can I do better? What

takes too much energy now, and how can I reduce the energy lost?

Good luck and hope you have a better week now!

Beata

[Guest guest]

Matt,

I just wanted to add my 2 cents in and say I could never do what you do and I

admire you for it. first of all, anyone would be yawning sitting in one of thise

classes and i know many people who are yawning come monday morning.

I was a single parent, and although on the weekends I would try to nap in the

afternoon, when it comes to being a parent you do what you have to do, not what

your body tells you to do. I only had one child, so can't imagine 3. My able

bodies friends that had 3 young ones were exhausted.

Of course, it is important to listen to you body and try to accomodate, but

sometimes life just gets in the way. The good thing is as your kids grow older

you will eventually get your time back. I am lucky that I can now spend my

weekends reading and relaxing (in between laundry and cleaning!)

I wholehearedly agree that we cannot sit here and judge each other. We are all

so different in the way that CMT affects us. I can't even

walk on the beach to get to a chair anymore or bend over to lift my laundry

basket, so when I read about how others are doing marathons and biking, it

really makes me aware at how different we all are. At first, I used to think if

only I did more I could be like them, but now realize that if not a

rationalization, but a reality and sometime we just need to vent!

Jackie

[Guest guest]

,

Thanks for sharing and all these years that I have been reading you post, I

always thought you had CMT. You have a wonderful understanding of what it is to

be in a CMT body and what a strong advocate you have been.

Thank You,

Jackie

[Guest guest]

Thanks Jackie. and I tease each other alot about who has the

most aches and pains. He always wins and that breaks my heart. But, we

keep on smiling!