Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 --- have you tried accupuncture?....it helped to balance my body/mind which greatly aided in the natural healing process ....it is not a cure-all, but definitely complimented the medications i was taking for the lymes... bill In , " ConnieK " <conniek@e...> wrote: > You weren't abrupt Sue........ you were upset with a few people and lumped them > in with all the members of this newsgroup.......that's what I found > upsetting.......all is forgotten now. > > I at times disagree with things suggested on this newsgroup and yet at other > times totally agree. I stick around in hopes of helping others in their fight to > return to a life of normalcy. I also benefit in learning how others deal with > the sleep disturbance problems associated with lyme, since I suffer a severe > sleep disorder. > > I am a strong believer in making sure you have balance in your life, and when > the body is unbalanced, all sorts of symptoms surface. After Lyme disease, I > restored the balance in my body with many IV vitamin and mineral drips and many > oral supplements. > > I just wish I could find out the imbalance that is going on in my sleep > cycle..........because it I have to be on medication, nothing natural works. > > Anyway, good luck with your list, I'm sure you will do well. > > ConnieKnwnj > When our bodies & minds are out of balance....... > .......we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Hi Bill, Yes I have tried Acupuncture........actually fell asleep on the table....it was only a temporary remedy......when I stopped going the sleep problems returned. The out of pocket expense got to be too much for me.......thanks for the suggestion....I don't think there is anything I haven't tried. ConnieKnwnj When our bodies & minds are out of balance....... ........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 ConnieK wrote: > Hi Bill, > Yes I have tried Acupuncture........actually fell asleep on the table....it was > only a temporary remedy......when I stopped going the sleep problems returned. > The out of pocket expense got to be too much for me.......thanks for the > suggestion....I don't think there is anything I haven't tried. Have you tried Qigong? It seems to help many people to get better sleep. mei > > ConnieKnwnj > When our bodies & minds are out of balance....... > .......we suffer! > > > Questions and/or comments can be directed to the list owner at -Owner > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Hi Mei, Isn't that also trying to balance the two energies in the body like acupuncture is? Only doesn't it use movements combined with the mind to produce healing? or am I off track on this. I do follow relaxation tapes, and yoga and muscle relaxation tapes before bed time, some times it helps, some times it doesn't. Some one mentioned to me neurotherapy......which when I looked into it, I guess it deals with retraining of your brainwaves. Everything sounds like it will be helpful for my sleep disorder, but then I get started, it works for a little while, I spend a ton of money, and it stops working. I'm so reluctant right now to try anything new, especially where money is involved, I have used up most of my money beating the lyme......so if insurance doesn't cover it.......I have to follow the traditional route for now.......against my better judgment (and my empty pockets) I'll do some research on the internet on Qigong and see what I can find out and if this is something I can do on my own. ConnieKnwnj When our bodies & minds are out of balance....... ........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 ConnieK wrote: > Hi Mei, > Isn't that also trying to balance the two energies in the body like acupuncture > is? Only doesn't it use movements combined with the mind to produce healing? > or am I off track on this. > I do follow relaxation tapes, and yoga and muscle relaxation tapes before bed > time, some times it helps, some times it doesn't. > > Some one mentioned to me neurotherapy......which when I looked into it, I guess > it deals with retraining of your brainwaves. Everything sounds like it will be > helpful for my sleep disorder, but then I get started, it works for a little > while, I spend a ton of money, and it stops working. I'm so reluctant right now > to try anything new, especially where money is involved, I have used up most of > my money beating the lyme......so if insurance doesn't cover it.......I have to > follow the traditional route for now.......against my better judgment (and my > empty pockets) > > I'll do some research on the internet on Qigong and see what I can find out and > if this is something I can do on my own. check out www.wishus.org , I just took their intensive workshop and was impressed with what the members have to say about their experiences. One person said she has not had a good night sleep for three years without pills, but she was sleeping well during the workshop days. They offer tapes and just follow the tape for a specific Qi meditation. > > > ConnieKnwnj > When our bodies & minds are out of balance....... > .......we suffer! > > > Questions and/or comments can be directed to the list owner at -Owner > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 You know that is all any of us can do. No one I know has money to spend on Illness. If you are sick you probably can't work and things get real tight. So I guess I'm saying I hear you. Bless, mm ConnieK <conniek@...> wrote: --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 HI Nothing gave me any energy and then I started to take magnesium malate 3x a day. I need to tell you it is doing the trick. I was skeptical,but instead of getting dressed at 10.00 am I was at the grocery store at 7:30 am this morning. At night I take my anti anxiety pill klopin only .05mg and I am sleeping well to boot. I am so surprised,and to top it off it's raining today and usually it affects me in every possible way. Anything is worth a try right? The health food store here sells it for $8.25 90 tablets 1250mg. They made me feel a bit worse for the first 2 days and then energy plus. Just thought I'd share this. > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 Thank-you Mei, I am going to search this site, I have tried many things to conquer my sleep problems.......but nothing works for any extended period of time. ConnieKnwnj When our bodies & minds are out of balance....... ........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 This is a reply to #6 about Acupuncture. Acupuncture is used to relieve symptoms (pain, etc.) but any acupuncturist will tell you that it does not " cure " anything. Anyone with a progressive disease like RA or PA needs to be diagnosed, treated, and monitored by a rheumatologist. I've been getting acupuncture regularly for probably 6 years now and they do relieve my PA symptoms for days at a time; but I still have the disease and need metho and Enbrel to keep it from progressing. Just my 2 cents worth :-) e in Massachusetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Yes, I am on my 4th treatment, combination of accupuncture and massage for my ankle and hips. I do think it is helping. It is worth a try. Hugs June ----- Original Message ----- From: horse_n_joy Has anyone tried accupuncture for RA? THis is a question from my husband... I think he likes the idea of making me into a pin cushion! Hey I'll try anything that might help! My vet does equine accupuncture, maybe he could do it. Ha Ha! I'll just tell my hubby " You first " . Anyway, any feedback would be nice. Thanks, Voodoo doll Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Yes; I've used acupuncture for about 6 years. I find it very helpful. It is expensive, though--$65/treatment. My current insurance covers a limited amount of treatments. Sierra --- In , " horse_n_joy " <horse_n_joy@y...> wrote: > > Has anyone tried accupuncture for RA? THis is a question from my > husband... I think he likes the idea of making me into a pin cushion! > Hey I'll try anything that might help! My vet does equine > accupuncture, maybe he could do it. Ha Ha! I'll just tell my > hubby " You first " . Anyway, any feedback would be nice. > Thanks, Voodoo doll > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 I tried it... Unfortunately, it did nothing for me. That's not to say that it won't help you... YMMV on that one. Yanosz Descouedresz Email: yanosz@... On : yanoszd The Road goes ever on and on Down from the door where it began. Now far ahead the Road has gone, And I must follow, if I can, Pursuing it with eager feet, Until it joins some larger way Where many paths and errands meet. And whither then? I cannot say. [ ] Accupuncture? > Has anyone tried accupuncture for RA? THis is a question from my > husband... I think he likes the idea of making me into a pin cushion! > Hey I'll try anything that might help! My vet does equine > accupuncture, maybe he could do it. Ha Ha! I'll just tell my > hubby " You first " . Anyway, any feedback would be nice. > Thanks, Voodoo doll > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 I tried it for a while but it hurt more than helped. Take Care Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 On 1/16/06, horse_n_joy <horse_n_joy@...> wrote: > > Has anyone tried accupuncture for RA? THis is a question from my > husband... I think he likes the idea of making me into a pin cushion! > Hey I'll try anything that might help! My vet does equine > accupuncture, maybe he could do it. Ha Ha! I'll just tell my > hubby " You first " . Anyway, any feedback would be nice. > Thanks, Voodoo doll I turned to acupunture a few months before I was diagnosed. It has been almost the only thing that has given me any relief. I go in every two weeks, and feel much better for at least a week afterwards. If I can exercise, the effects last even longer. The acupuncture also helps the pain in my knee, from OA. South Pasadena, CA Polymyaligia Rhuematica, Fibromyalgia, Diabetes, ADH Prednisone, Methotrexate (pills), Lipitor, Fosamax D, Metformin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 Hello, I'm new to the list, so forgive me if this is a well-discussed topic from the past. I began going to an acupuncturist several months ago. My referral came from the owner of my favorite Chinese restaurant. As I struggled into her restaurant with my cane one evening, she told me she knew someone who could help me. Unfortunately, I haven't seen a lot of change since I started, but there has been one strange thing. I had a nerve conduction study repeated about three months after starting weekly acupuncture. It came back much improved. When I asked, the acupuncturist, who is also a US MD, he told me he could impact the nerve study and help me feel a bit better, but he couldn't help the underlying disease. I can't tell that I'm a lot better, but I don't seem to be any worse since I started this. Has anyone else given acupuncture a try in treating CMT? Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Jim: Yeah, this topic has not bin brought up much. I had accupunture done on me for three years, once a week, when I was in my early 20s. My symptoms included horrible pain in my thighs monthly a weak before my period. The pain felt like heavy bricks were inside of them. The pain would subside to just some strain in the muscles for a week each month. Within a year and after the last year of accuputure I noticed the pain in my legs subsiding from 7 days to 6, to 5, 4, 3 to no days of having the thigh pain. Also, the heavy brick pain changed to just mild strain. I mean I still have some pain one day or another in a toe or big toe, but nothing like before. I do want you to know that you are going to be offered chinese herbs for your ailments. Personally, I don't think they did anything for me. Just to let you know, my diagnosis is Hereditary Spastic Paraplegia. It is very similer to CMT in its' symptoms. The only difference is HSP is a central nervous system disorder. The accupunturist will give you a massage that relaxes you and your muscles. Enjoy accupunture, ir hardly hurts, only near the feet maybe. While the syringes are in you for a half an hour, you will end up falling asleep listening to very calm music. Marin Bridgeport, CT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Hi Jim, I have not seen this topic brought up much. I go to the occasional Chinese foot massage and I also use Intramuscular Stimulation (in addition to myofascial release sport massage and stretching techniques). The nerve conduction studies will not improve - our nerves are damaged at present, and maybe someday technology and advance may help us. But through treatment we can improve circulation (even if only for for the moment) helping our muscles a bit. And we can stretch out and release our muscles - which will not improve the efficiency of the way they are used as that relates to nerve problems and is only somewhat offset by innervations - but it can release them, relax them, and make them a bit more able to accept movement and exercise. Good luck. Donna from London Stay tuned for my 2009 fundraising efforts, on behalf of Breakthrough Breast Cancer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2010 Report Share Posted January 8, 2010 Bridget, Glad you had a dental workup but sorry to hear you still have pain. Did they offer any type of PT or massage in the area? If it is Lyme you want to break up some of the Lyme there like we do for neck pain, etc. I'm sure they have rx warm moist packs. Then do some gentle massage yourself as you need to break up those toxins. Have you tried wearing the nightguard for awhile in the time that you feel you are grinding..even the middle of the day? Anything to break up the pain and spasms from getting worse...my motto is to stay ahead of the pain. I feel for you as I have seen so many people suffer with jaw pain. Does it feel any different when you have been on abx or other tx for Lyme? Those darn bugs go everywhere. If you can find an ONDAMED practitioner in your area that would really help you after a few visits. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2010 Report Share Posted January 8, 2010 Bridget, Forgot to add that I would try acupuncture for the jaw pain. It may help the Lyme and will help the pain. Good Luck K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 I had one treatment on my bad foot. For two days I was pain free. But for only two days, at $60 a treatment, I questioned the long term value and did not continue treatments. O Quote Link to comment Share on other sites More sharing options...
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