Re: CMT and Bipolar Disorder

[Guest guest]

,

My late aunt had CMT, and she also was diagnosed with bipolar. She was one of

the best cooks I knew. Great tasting, but not healthy. She was on all kinds of

med's. One medicine led to another, then another. You know the ole routine;

this for this and soon that because of what side effects this caused and so on.

It didn't take long before she had enough drugs she could have opened up her own

pharmacy.

My step-dad was a diabetic and my aunt had mood swings like him so I always

wondered if she was but her dr said NO she isn't! Years

later she was diagnosed with diebetes. Of course the dr gave her more drugs,

then more drugs because of this and more because of that. And of course every

drug he prescribed was totally necessary.

Needless to say she died a very painful death. When I saw her she was drowning

in her own fluids. The dr could have advised her to take the nutritional

approach years ago. She most likely would have still been here. Same with my

Mom. They had the same dr and they

worshiped him. only difference is we got another dr for my Mom towards the end

who gave her enough narcotics so she felt no pain. It made her heart stop and

she just went to sleep. Thank God.

Years ago I was at a MDA clinic appointment and I got a hold of some

pamplets on CMT. One of them said something about metabolism so I asked the dr

if CMT effects metabolism and he said NO!

A few months ago I found a web site called _www.curehunter.com_

(http://www.curehunter.com) . I didn't have he $500.00 to subscribe but it gave

a sample list of what dr's have prescribed. All

the good prescriptons of course weren't from here, but they were enzymes

coenzymes, peptides, and all kinds of healthy things our dr's don't tell us.

Some dr's think CMT is a metabolic disorder. And some think diabetes goes along

with CMT. For sure they'd be secondary conditions if we're not careful.

Just some advice; if I were you I'd eat exactly the way Gretchen does, with a

few other little added stuff; like the grey sea salt because it has all the

minerals, or bee pollen does too.

Good luck to you!

[Guest guest]

HI JUSTIN,

I WAS DIAGNOSED WITH BIPOLAR DISORDER AND DEPRESSION TOO. I THINK I AM NOT

REALLY DEPRESSED BUT SAD BECAUSE THERE ARE A LOT OF THINGS I CAN'T NOW, (BECAUSE

OF MY CMT) THAT I WAS ABLE TO DO BEFORE. I WAS PRESCRIBED LAMICTAL BUT, I

STOPPED TAKING IT. IT MADE ME FEEL ALWAYS TIRED. NOW I AM TAKING ZOLOFT AND I

FEEL VERY GOOD. MY POINT IS I DON'T THINK I AM OR WAS BIPOLAR.

Betania

From: justin111379@...

Date: Sat, 28 Mar 2009 17:57:47 +0000

Subject: CMT and Bipolar Disorder

Has anyone experienced bipolar symptoms and have progressed CMT? I have been

diagnosed 5 times and don't want to believe it is because of a chemical

imbalance, but rather a biproduct of living with this disease.

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[Guest guest]

So sorry, . I imagine that CMT does exacerbate any predisposition that you

may have had toward being bipolar. I suffer from depression and anxiety at

times. And I can tell you, this got much worse when I was diagnosed with CMT.

Just like the CMT, though, being bipolar is an illness. You did not do anything

to get it. Does it matter why you have that or why you have CMT? We could all

ask why all day long. It is not fair. There is no " fair " when it comes to

illness. Are you taking medication and getting therapy for your bipolar

disorder? Take care of yourself.

[Guest guest]

Wow, , that was a depressing story! I too think that it is important to

keep an eye on your meds and keep yourself educated and to not take meds that

are not helping at all. Overmedication can cause huge problems. However, I think

that if you have a diagnosis like bipolar disorder, medication can sometimes

save a life.

[Guest guest]

I'll figure it out. I have met other disabled people and they don't seem as out

of control as I am.

[Guest guest]

:

What do you mean out of control?

Marin

Bridgeport, CT

[Guest guest]

,

I have some very nasty days where I just over whelmed with everything.

Can't get things done like I used to and family not likening the way my house

looks ...not wanting to come and see me as they once did. I just get to sad

about it al too thin-skinned I guess.

Geri

[Guest guest]

See I don't know what it's like to have ever had muscle control. I hear people

say, " I get frusterated with not being able to do what I used to. " I wish I

knew what it " used " to be like. You lucky dogs.

[Guest guest]

Just pissed off one minute, then happy, then tired, then wired. I am never just

one way/

[Guest guest]

Sorry . I think we all have our moods and if you let up on yourself and

tell yourself it's okay to be mad at CMT and the position it puts you in then

focus on what's best for you and just grab it. It is okay. Good nutrition is the

best medicine. You are stuck with CMT but you don't have to let it make you

sick. Unlike CMT ( my therapist told me ) bipolar can go away with the right

nutrition.

[Guest guest]

Hi ,

 

Sorry to read about your aunt and mom. Unfortunately, we are only humans, and we

think the best doctor is the one who gives us the most perscriptions.

Personally, I am a great sceptic. Drugs should only be used temporarily, to

cure. I know that in some cases they are vital, but in most cases (as you said

yourself) they can be avoided.

Diabetes and high blood pressure can in many cases be avoided with a diet and

excercise. I have migraines, so I use some paracetamol, but that's it. I don't

think that CMT can be coupled to any psycological disorders. But an individual

can of course have multiple diseases. 

 

Bye

Beata    

[Guest guest]

Hi ,

I think I know what you mean by " out of control " - somedays I feel just that

way, and I can't describe it any other way either. Mostly it happens

whenever I am confronting aspects of my physical limitations, that is the

trigger, and then I emotionally become all over the place. It is tough. I

am by no means depressed, bipolar, or otherwise, I think that sometimes CMT

and its presence can just make us feel " out of control " - and as I like to

be in control of myself and life, that is hard to deal with!

If you want to email me direct feel free.

Donna from London (originally from Hawaii)

[Guest guest]

,

Many people have chemical imbalances in their brains, with or without CMT. I

have a sister and a brother that are bipolar. My sister has CMT; my brother

does not. I and two of my three children take medication for depression. I

honestly believe there is only so much a person can do about their brain

chemistry and I thank God for medication. In most cases bipolar is controlled

with medication and no one would even know you were taking it. I am quite open

about using anti-depressants because I'm not embarassed by my brain chemistry.

Neither do I attempt to hide my AFOs.

[Guest guest]

Hello Betania and everyone,

I guess I just had to add my two cents to this discussion. lol I too have been

diagnosed with bipolar disease....which quite frankly I think is a wrong

diagnosis. I no longer take my pills that I have been given for the mood

swings...I go to the dr. tomorrow...and I'm sure he won't be happy about

it...but I feel better without them.....less agitated and more energy.

And besides, who knows my body better then me??? lol I do think I have a

problem with depression which I would say is mostly caused by the CMT...and as

Betania said.....a lot of it is because I can't do things now that Iused do to

before and from always having some sort of pain! Also cause I have to depend on

my husband to do so much. I know he doesn't mind, but I just don't feel it's

right....since he works full time at a difficult job and then has to do a lot of

things here around the apartment. He is a darling though.... Well...that

was my two cents...lol I hope everyone has a great day!

Hugs,

Sherry

[Guest guest]

Hi ,

I hope you are doing ok today. I guess your email caught my eye because I

saw the " out of control " . Would you care to explain hon? There are days

when I too feel " out of control " ....but that again is because of me wanting

to do things I can't....or simply wanting to go at something longer then I

am able to. I hope you are having a good day today hon.

Hugs,

Sherry

[Guest guest]

Sherry,

Good for you! There isn't a person on this planet who never gets depressed and

moody. How we choose to deal with it and how long we let it stick around is the

only difference.

[Guest guest]

Hi ,

I don't know what to say. How'd you break your foot?

[Guest guest]

:

You sound like me after my baby was born...lol. It was horrible feeling that

way. It has to do with hormones and chemicals in your brain going hay wire.

The best advice I can tell you is see a therapist. I've had a therapist for

years to deal with my anxiety issues. Getting your thoughts and feelings out to

someone is great therapy, and you feel good after.

Marin

[Guest guest]

,

It sounds like you are experiencing emotions that many, many people have, with

CMT and without. Depression sometimes affects people with CMT, but is treatable.

There is no direct connection between CMT and Bipolor disorder.

Do you have extreme lows and highs? Are you 'out of control' in overeating,

overspending, driving recklessly, using illicit drugs, have increased energy?

How long a time do you feel 'normal'? Do you feel hopeless, guilty, restless, or

worthless? Do you have abnormal thyroid?

Maybe get a journal and each day spend a 1/2 hour writing your 'feelings' out.

While I am not bipolar, but have had periods of situational depression, I have

kept a journal for years writing about emotions I feel. You may find a great

release in this. A really good therapist helped me also. You might also look

into http://www.emotionsanonymous.org/

[Guest guest]

I do have mood swings and plan to seek help for them. I am bringing another

child into this world in December. I need to get this fixed. I only hate how

boring and lazy I am on the mood stablizers. But I was told that's normal and I

don't know what normal is because of my moods. I'll get back with you all in a

few months or more to see how the medication is working.

[Guest guest]

When I say " out of control " I mean just that. I get so irritated I yell at

everyone. I don't know how much more strength I have left. I honestly just

want to be normal. It hurts so bad sometimes.

[Guest guest]

When I say " out of control " I mean just that. I get so irritated I yell at

everyone. I don't know how much more strength I have left. I honestly just

want to be normal. It hurts so bad sometimes.

[Guest guest]

When I say " out of control " I mean just that. I get so irritated I yell at

everyone. I don't know how much more strength I have left. I honestly just

want to be normal. It hurts so bad sometimes.

[Guest guest]

Hi ,

There is one word in the email below that really caught my eye....and that

is " normal " . I've always wondered.....what in the heck is " normal "

anyway????? lol And I don't know if I want to be normal....like everyone

else. I want to be a bit " off " ...lol...be my own person. I hope when you

talk to your wife she will be more understanding and help out more with the

chores around the house. Good luck to you hon.

Hugs,

Sherry

[Guest guest]

Well, my psychiatrist wasn't happy with me today...lol But, then I expected

that. I told him I didn't think I was bipolar...and that when I get in bad

moods it's cause I'm not knowing how to deal with the pain and limitations

of the CMT. He said it could be. He was upset with me cause I stopped my

Tegretol. I told him I now feel better....my blood pressure has gone down

(but he says Tegretol doesn't raise the blood pressure....which I did read

several places online that it did) and also that I feel less agitated. (And

agitation was one of the side effects of Tegretol too) And what really

grabbed my attention was.....when he said to me that he was concerned that I

was " too happy....too up " right now. I thought what the sam heck are you

talking about???? I told him I feel the best mentally then I have in a long

time. Perhaps he is hoping I become depressed and can prescribe more pills

or hospitalize me again??? He said we'll see how you are in time. Also

that if I have depression that losts longer then a week....to call him.

(Like I wouldn't know to do that anyway!) Grrrrrrrrrrrrrr

Ok...I'm done....lol

Have a good rest of the evening everyone!

Hugs,

Sherry