Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Everyone, Since 2004 has had a Celiac test done every six months, just blood work - since she has to have blood work done for hypothyroidism they just do another test on the blood. Every other test, she comes up with a high marker for Celiac's - there are 3 markers in your blood and has had each one come up high multiple times. So when this happens the GI specialist does a scope of her intestine to see if the villi in her intestine are dead or blunted. She has always been fine, with one spot that looks iffy. This has been going on for SIX YEARS! The doctor is fed up - there is another test - a genetic test - it is more expensive to run and I have to find out if our insurance will cover it - but it will (I hope and the Dr. hopes) give us a better answer. Has anyone else been diagnosed with Celiac's disease and MDS? I do know of a girl in 's school who has DS, Celiac's and Diabetes. If she has Celiac's then we all have to go on a gluten free diet (and I HATE that diet). Darlene - Mom to (11) and (13) -- “Knowing is not enough, we must apply. Willing is not enough, we must do.” Johann Wolfgang von Goethe Quote Link to comment Share on other sites More sharing options...
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