Re: Dr's Visit Miami/ University Center of Excellance

[Guest guest]

This is exactly the information we need to see here. Thanks for your update on

your experience.

From: dragonflymcs <dragonflymcs@...>

Subject: [] Dr's Visit Miami/ University Center of

Excellance

Date: Sunday, August 2, 2009, 6:50 PM

 

Hi All

  I have ILD from mold.     I had a Dr.'s visit for a pulmo. So you do not waist

your TIME or money, do not see Dr:  Department of Pulmonary Critical Care

Medicine

 Glassberg, Marilyn K., M.D.

Associate Professor of Medicine

Director, Interstitial Lung Disease Clinical Research Program

305-585-7340

http://ww3.med. miami.edu/ medicine/ x556.xml

My apponitment was for 10:15 am.  The B>> made me wait until 1:30.  This is what

happened next:

She was probably the rudest, most impersonal Dr I have ever seen.  To have

traveled such a distance and have the first words that came out of her mouth

were " You are in the wrong place "    This woman had my documents before I got

there for at 2  weeks or more. You think she would have reviewed her papers

since she apparently only takes guinny pigs for research, that is what I got

from her attitide, demeanor, etc.  She only wanted guinny pigs for Idopathic

Pulmonary Fibrosis.

Then she tried to blame my Dr who sent me there stating she had made a mistake. 

This w>>> is the Director with about as much bedside manner as a bull.  She also

said " We do not treat mold illness "   Everytime I said something she twisted

what I said, I stopped taliking since I had no witness.  However did correct her

in front of collegues. 

There are supposed to be 21 centers of Excellance in the US who are dedicated to

ILD.  This was one of them. ( Follow the link below. ) 

This is the forth Dr I see. The third said " What makes you think that if the

Cleaveland Clinic did not touch you that I would ?  That was also the extent of

his conversation and the extent of the visit. 

I am sick and tired and most of all disgusted.  I wish I did not have to see any

regular IDIOTS or idiots on a regular basis.  Had my appointment been for 1:30

in the afternoon I would not have spent the initial night at the hotel. 

Second Dr tht day was better and saw how upset I was from the first.  Asked

about my appointment and what if anything anyone had done. She ordered tests,

and reffered me to another pulmo at the hospital.

Either way I am not up for this Dr's line of guinney pigs. I had someone pass

not long ago, about one moth ago. Like me he had  ILD his type was different

since there are about 200 different types.  However he did a trial, the trial

meds detroyed his bone marrow.  Now he needed a bone marrow transplant, but

because of his lung disease he could not get one, and  visa versa. He suffered

much as his family.

Sorry about typo's

 https://www. ipfnet.org/

God Bless !!

dragonflymcs

Mayleen

[Guest guest]

My pleasure, sorry if my words were offensive I do not think I am over the

experience.

 

 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: <ur_shtnme@...>

Sent: Monday, August 3, 2009 12:55:01 AM

Subject: Re: [] Dr's Visit Miami/ University Center of

Excellance

 

This is exactly the information we need to see here. Thanks for your update on

your experience.

From: dragonflymcs <dragonflymcs>

Subject: [] Dr's Visit Miami/ University Center of

Excellance

Date: Sunday, August 2, 2009, 6:50 PM

 

Hi All

  I have ILD from mold.     I had a Dr.'s visit for a pulmo. So you do not waist

your TIME or money, do not see Dr:  Department of Pulmonary Critical Care

Medicine

 Glassberg, Marilyn K., M.D.

Associate Professor of Medicine

Director, Interstitial Lung Disease Clinical Research Program

305-585-7340

http://ww3.med. miami.edu/ medicine/ x556.xml

My apponitment was for 10:15 am.  The B>> made me wait until 1:30.  This is what

happened next:

She was probably the rudest, most impersonal Dr I have ever seen.  To have

traveled such a distance and have the first words that came out of her mouth

were " You are in the wrong place "    This woman had my documents before I got

there for at 2  weeks or more. You think she would have reviewed her papers

since she apparently only takes guinny pigs for research, that is what I got

from her attitide, demeanor, etc.  She only wanted guinny pigs for Idopathic

Pulmonary Fibrosis.

Then she tried to blame my Dr who sent me there stating she had made a mistake. 

This w>>> is the Director with about as much bedside manner as a bull.  She also

said " We do not treat mold illness "   Everytime I said something she twisted

what I said, I stopped taliking since I had no witness.  However did correct her

in front of collegues. 

There are supposed to be 21 centers of Excellance in the US who are dedicated to

ILD.  This was one of them. ( Follow the link below. ) 

This is the forth Dr I see. The third said " What makes you think that if the

Cleaveland Clinic did not touch you that I would ?  That was also the extent of

his conversation and the extent of the visit. 

I am sick and tired and most of all disgusted.  I wish I did not have to see any

regular IDIOTS or idiots on a regular basis.  Had my appointment been for 1:30

in the afternoon I would not have spent the initial night at the hotel. 

Second Dr tht day was better and saw how upset I was from the first.  Asked

about my appointment and what if anything anyone had done. She ordered tests,

and reffered me to another pulmo at the hospital.

Either way I am not up for this Dr's line of guinney pigs. I had someone pass

not long ago, about one moth ago. Like me he had  ILD his type was different

since there are about 200 different types.  However he did a trial, the trial

meds detroyed his bone marrow.  Now he needed a bone marrow transplant, but

because of his lung disease he could not get one, and  visa versa. He suffered

much as his family.

Sorry about typo's

 https://www. ipfnet.org/

God Bless !!

dragonflymcs

Mayleen