Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 Hypersensitivity pneumonitis is usually treated by a pulmonary disease (lung) specialist. One place that specializes in research and treatment of HP is the National Jewish Medical Center in Denver, Colorado, but you should be able to find a pulmonary disease specialist in most major metropolitan areas. ________________________________ From: <lallen4@...> Sent: Sunday, July 5, 2009 5:53:19 PM Subject: [] Hypersensitive Pneumonitis I was diagnosed with hypersensitive pneumonitis via blood tests (by LabCorp). But PCP didn't know what to do as a result of the test and specialists I was seeing didn't know how to treat. What kind of specialist looks at this test and what do they usually do about it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 A pulmonary specialist generally diagnoses HP. I believe most people are given antibiotics or antifungals. Was your oxygen level tested? Barth www.presenting.net/sbs/sbs.html SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html --- LA> I was diagnosed with hypersensitive pneumonitis via blood tests (by LabCorp). But PCP didn't know what to do as a result of the test and specialists I was seeing didn't know how to treat. What LA> kind of specialist looks at this test and what do they usually do about it? LA> LA> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 Hi, Sorry . I understand you tested positive for HP. You need to be treated for it. HP can progress to pulmonary fibrosis, like in MCS the best treatment is avoidance of the antigen in this case. Avoiding mold. Having a positive HP panel and having fibrosis are 2 different things, you really need to see a Doctor. Where are you ? I am trying to get into see a Dr of Occupational & Environmemtal Medicne specializing in mold exposure. Here is a site where you can find one in your area. http://www.aaemonline.org/ God Bless !! dragonflymcs Mayleen ________________________________ From: <lallen4@...> Sent: Sunday, July 5, 2009 8:53:19 PM Subject: [] Hypersensitive Pneumonitis I was diagnosed with hypersensitive pneumonitis via blood tests (by LabCorp). But PCP didn't know what to do as a result of the test and specialists I was seeing didn't know how to treat. What kind of specialist looks at this test and what do they usually do about it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 There are I believe 13 Centers of Excellance that treat Interstitial Lung Disease. If she has fibrosis, it is different. Hp can progress to fibrosis if left untreated. Yes if you have Lung Disease you see a pulmo HP is rare. There are 200 disease that fall under interstitial lung disease only 2% or less are HP. She needs to see a doc to do a HRCTS right now she says her blood panel for HP is positive. I could say more but I do not want to be alarming. God Bless !! dragonflymcs Mayleen ________________________________ From: <brianc8452@...> Sent: Sunday, July 5, 2009 9:31:11 PM Subject: Re: [] Hypersensitive Pneumonitis Hypersensitivity pneumonitis is usually treated by a pulmonary disease (lung) specialist. One place that specializes in research and treatment of HP is the National Jewish Medical Center in Denver, Colorado, but you should be able to find a pulmonary disease specialist in most major metropolitan areas. ____________ _________ _________ __ From: <lallen4@.... com> Sent: Sunday, July 5, 2009 5:53:19 PM Subject: [] Hypersensitive Pneumonitis I was diagnosed with hypersensitive pneumonitis via blood tests (by LabCorp). But PCP didn't know what to do as a result of the test and specialists I was seeing didn't know how to treat. What kind of specialist looks at this test and what do they usually do about it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 , I would like to know a little more. Did you have a High Resolution CT Scan done ? What were the results if you did ? It makes a big difference. Either way you need treatment for mold exposure. If there is no lung damage, the story is different. Treatment has to be soon to avoid the latter. If you have lung damage here are the centers of excellance for care. According to the list there are 22 in all of US. Please know there is much reading and I could say more however I do not want to get ahead and worry you if there is no need. Please see a Dr of Environmemntal medicine as they know and accept most importantly treat mold exposure. If you need a pulmo and he would let you know he will tell you. Then you can refer to this list to find one that is qualified for HP. I asked if anyone else had it because I have been in this alone as far as HP and would like to share treatment options with someone or be able to discuss this with someone, as I said before HP is rare. Treatment depends on what caused it. Even with HP there are different causes, blood work is not only test to make conclusion, it concludes you have a positive HP blood panel, I pray this is all you have and are treated very very soon. Do not let Dr brush you off, I was and I am worse because of it. Move on to the next Dr quickly, which is why I suggested Dr of Environmental Medicne who knows of mold exposure Please keep me informed. Thank you !! Best Wishes !! https://www.ipfnet.org/ What is the treatment of hypersensitivity pneumonitis? The most important treatment of hypersensitivity pneumonitis is avoidance of repeated exposures to the offending particles. With early diagnosis and prevention, the prognosis is good. Prolonged, repeated exposures can lead to permanent lung damage, scarring, and potentially significant disability. http://www.medicinenet.com/hypersensitivity_pneumonitis/page2.htm Dragonfly ... Breaks illusions, Brings visions of power, No need to prove it, Now is the hour! Know it, believe it, Great Spirit intercedes, Feeding you, blessing you, Filling all your needs. By DCarson JSams God Bless !! dragonflymcs Mayleen ________________________________ From: <lallen4@...> Sent: Sunday, July 5, 2009 8:53:19 PM Subject: [] Hypersensitive Pneumonitis I was diagnosed with hypersensitive pneumonitis via blood tests (by LabCorp). But PCP didn't know what to do as a result of the test and specialists I was seeing didn't know how to treat. What kind of specialist looks at this test and what do they usually do about it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Hi , Hope you are well !! I just wanted to know if you had found help for the HP yet ?? Take Care !! Dragonfly ... Breaks illusions, Brings visions of power, No need to prove it, Now is the hour! Know it, believe it, Great Spirit intercedes, Feeding you, blessing you, Filling all your needs. By DCarson JSams God Bless !! dragonflymcs Mayleen ________________________________ From: <lallen4@...> Sent: Sunday, July 5, 2009 8:53:19 PM Subject: [] Hypersensitive Pneumonitis I was diagnosed with hypersensitive pneumonitis via blood tests (by LabCorp). But PCP didn't know what to do as a result of the test and specialists I was seeing didn't know how to treat. What kind of specialist looks at this test and what do they usually do about it? Quote Link to comment Share on other sites More sharing options...
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