Re: Uneven back/hip area

[Guest guest]

I'm no doctor but it sounds like it could be hip dysplasia, which can be a

symptom of CMT. Or maybe an underdeveloped muscle area, since you say one leg

does most of the work.

When I used to try to jog for longer distances (about a mile) I got a lot of

pain in one of my hips. I think one is a bit higher than the other, and this is

probably due to CMT.

Anyway I guess you can always see someone about it

[Guest guest]

I have a similar issue, i.e. extreme back pain and hip pain....which radiates

down the leg to the foot.

 

However, I do have scoliosis of the spine, which causes the spine to rotate in a

corkscrew  fashion while it is also going side-to-side in an 'S' curve.

 

The curvature of the spine isn't easily detectible to the naked eye.  For me the

only obvious sign if that the area to one side of my spine bulges out at about

the area of my waist, whereas the opposite side goes in.  This is due to the

corkscrew effect of the curving spine that pushes the rib cage out in one area

and in on the other side..

 

Have you ever been tested for scoliosis?  It's not usually something you can

diagnose yourself.  A doctor can determine if you have it, based on a physical

examination or an x-ray.

 

[Guest guest]

Don't have the indent but drop foot is more prevelent in my left side--my right

foot does more of the work when I walk too. Right side of hip area gives me a

lot discomfort/at times extreme pain. My lower back feels like it is just

completely having spams. I usually have to get off of my feet for awhile.

Chiropractic care has helped me a lot. I had fractured my tail bone area 2

years ago and I think part of the pain is still from that injury.

From: kedleson@...

Date: Tue, 7 Apr 2009 19:20:17 +0000

Subject: Uneven back/hip area

Lately I have been having extreme back pain and right hip pain. The pain is

becoming a permanent part of me instead of just when I do serious gardening or

exercising. I noticed getting dressed in front of a three way mirror at a store

yesterday, that my left back area is indented and looks different from my right

side. It is quite noticeable. As far as I can see, my spinal cord is straight.

Anyone else have this happening I have drop foot on the left side

and my right side basically does all of the " work " when I walk.

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[Guest guest]

In a message dated 4/7/2009 1:47:04 P.M. Pacific Daylight Time,

kedleson@... writes:

Lately I have been having extreme back pain and right hip pain

The chiropractic will fix you right up.

[Guest guest]

Thanks Sara,

Sounds like we have a lot in common. Maybe I will visit a chiropractor soon.

 Haven't been to one yet, but I can't keep taking ibuprofen everyday.  I know

what you  mean when you say you have extreme lower back pain.

Karon

[Guest guest]

Thanks, .  I have been doing a lot of research and hip dysplasia comes up

quite a bit.  I thought only dogs had that!

karon

[Guest guest]

,

You described perfectly what my backside looks like.  I think I will make an

appointment asap.  Should I see my neurologist or perhaps an internist or gp

first???  Thanks!

Karon

[Guest guest]

Yes, I believe CMT causes hip pain. My sister has had hip pain since age 4.

Me, very mild off and on, and 2 of my friends with CMT, one, hip pain since

child hood and his sister, mild off and on. My mom and grandfather both had CMT

and both broke both hips. My sisters CMT doctor said once you break a hip it

is down hill from there and he is right. Get your magnesium, D and calcium

along with the other bone builders and exercise and try to prevent injury. .In

my opinion that's better than drugs.

[Guest guest]

Exdeltalady,

I am a 60 year old female, diagnosed at 53.  As my foot drop progressed my back

issues became more severe.  My foot drop on both feet had become so severe that

I was unable to stand (even with support) without having extreme #10

back pain.   Spine ex-rays indicated I had a very uneven spine.   In February I

had foot surgery to correct foot drop on my right foot (the worst foot),  I had

an Ankle tendon transfer and an Achilles tendon lengthening.   I can't wait to

have the other foot surgery.  I am hopeful these surgeries will help prevent

back pain as well as correcting the foot drop.  If you haven't been referred to

an orthopedic surgeon yet, it might be something for you to look into for

correction of foot drop.  I had thought I was too old for foot surgery, but my

orthopedic surgeon said age was irrelevant.  I had different braces that worked

great for about five years.  After that they couldn't prevent the foot drop. 

Lynda

[Guest guest]

This is my area( I am not giving medical advice): This is how I see it-

Since cmt is a slow progressive diease we all have compensations in our gait and

feet that we are not aware of - 2 main areas come to mind. 

1. The energy system of walking -movement.   A system that has been perfected

over millions of years.  A few little nerves and some big ones stop working

slowing and then the muscles change doing their " perfect job "   so some other

muscles take over(We are not even aware nor can anyone tell) but the energy

required for those other muscles to help or do a new job is high.  I believe

that is a big part of the fatigue cmt'ers report. 

2.  As those muscles take over for the ones not doing their job, a child hood

song comes to mind the toe bone is connected to the ankle bone is connected to

the knee bones is connected to the thigh is connected to the hip bone.  I dont

remember where but some study reports 87% of cmt'ers report back pain.  After

long standing issues go unaddress and it starts to feel normal for your hip to

be under your shoulder now a lot more then muscles get involved.  Ligaments and

tendons get  -

1. loosen from being in wrong place 

2. start to thin and break down from doing the wrong things(this causes pain)

3. tighen from being in the wrong place

Once that goes on for a number of years-

bone on bone wear and tear, artitis, dics thinning and compression etc the

progression of a small dysfunction moves to a larger dysfunction.

My adivice is find a traditional manupulative osteopath.  not a chiro -- Most

physical theapist are not trained in SI dysfunction.  I was lucky that my

dysfunction was fixed with 20 sessions of prolotherapy and a great manupulative

osteopathy.  I live in Ft Worth were there is a Osteopath School.    

 

 

 

From: exdeltalady <kedleson@...>

Subject: Uneven back/hip area

Date: Tuesday, April 7, 2009, 2:20 PM

Lately I have been having extreme back pain and right hip pain. The pain is

becoming a permanent part of me instead of just when I do serious gardening or

exercising. I noticed getting dressed in front of a three way mirror at a store

yesterday, that my left back area is indented and looks different from my right

side. It is quite noticeable. As far as I can see, my spinal cord is straight.

Anyone else have this happening I have drop foot on the left side

and my right side basically does all of the " work " when I walk.

[Guest guest]

Hi Karon,

 

Scoliosis is typically treated by orthopedic surgeons who specialize in the

back.  However, you may want to start with your primary care doctor first, just

depends on your insurance plan and what you're most comfortable doing. 

 

The orthopedist will likely take x-rays and evaluate your leg length.  As an

adult, there isn't much they can do to fix the scoliosis other than surgery. 

However, if your legs are different lengths, they may recommend a lift inside or

outside of your shoe to help offset the difference & possibly prevent it from

getting worse.  My legs are the same length, so I haven't used the lifts. 

However, I was treated with a back brace when I was a teenager, but that's only

helpful when one is still growing.  Now the focus is on pain management, since

the curvatures are causing degeneration in the discs.

 

I'm scheduled to see an orthopedic spine doctor myself next week.  The

orthopedist who did my hip replacement is recommending that I go to a spine guy.

I've rescheduled the appointment twice already and will probably will just

cancel it altogether, because I'm not sure there's anything he can do except

surgery to relieve my pain and I don't want surgery yet.  My pain management guy

is still able to get me relief with injections, so I'd rather continue with that

until it no longer works.

 

If you do see a spine orthopedist, I'd be interested in what he recommends for

you.

 

 

From: kedleson@... <kedleson@...>

Subject: Re: Uneven back/hip area

Date: Wednesday, April 8, 2009, 12:05 PM

,

You described perfectly what my backside looks like.  I think I will make an

appointment asap.  Should I see my neurologist or perhaps an internist or gp

first???  Thanks!

Karon