Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 Plaquenil; does anyone know what medication that is? I've never heard of it. ) Thanks Happy Holidays!!! Love, Reneé and Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 rheumatic leaving the group > > Please take me off the list, antibiotics didnot work How long were you on the antibiotics? Do you have other infections that need to be treated? Have you checked the FAQ on www.rheumatic.org for other possible reasons why the antibiotics are not working for you? Instructions for unsubscribing are at the bottom of this email. Ethel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Faye, I'm sure you'll get some feedback from parents who banded over twelve months. The window of opportunity is closing, but there may be a chance for some correction too. It really aggravates me when Doctors say it's only a marketing ploy when orthotists/clinicians say they can help a child. When one doctor told me this I reminded him that he made money off the vaccines he recommended using. That didn't seem to be a conflict to him! There is a boy in my son's class who didn't get his DOC Band until he was 13 months old. He had to wear two of them, but he looks great today. His mom actually IS a doctor and she said he was severe before treatment. The decision is yours. If you feel she doesn't need treatment then you're right to just put it behind you and not look back. Good luck and congratulations again on your baby! Mom to Dane 4 yo (DOC Grad) and Cece 11 mo (DOC Band) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Faye, I'm sure you'll get some feedback from parents who banded over twelve months. The window of opportunity is closing, but there may be a chance for some correction too. It really aggravates me when Doctors say it's only a marketing ploy when orthotists/clinicians say they can help a child. When one doctor told me this I reminded him that he made money off the vaccines he recommended using. That didn't seem to be a conflict to him! There is a boy in my son's class who didn't get his DOC Band until he was 13 months old. He had to wear two of them, but he looks great today. His mom actually IS a doctor and she said he was severe before treatment. The decision is yours. If you feel she doesn't need treatment then you're right to just put it behind you and not look back. Good luck and congratulations again on your baby! Mom to Dane 4 yo (DOC Grad) and Cece 11 mo (DOC Band) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 As an odd sidenote, the doctor I was speaking of said he didn't believe in banding PRIOR to 12 months. He said he refused all requests for a band until the baby was a year old. He said they rounded out too much on their own while infants. When I told him I read that babies get better correction the younger they are he told me that was " hype from the helmet people. " I just remembered that! Nobody seems to be on the same page! > > Faye, > I'm sure you'll get some feedback from parents who banded over twelve > months. The window of opportunity is closing, but there may be a > chance for some correction too. > It really aggravates me when Doctors say it's only a marketing ploy > when orthotists/clinicians say they can help a child. When one doctor > told me this I reminded him that he made money off the vaccines he > recommended using. That didn't seem to be a conflict to him! > There is a boy in my son's class who didn't get his DOC Band until he > was 13 months old. He had to wear two of them, but he looks great > today. His mom actually IS a doctor and she said he was severe before > treatment. > The decision is yours. If you feel she doesn't need treatment then > you're right to just put it behind you and not look back. Good luck > and congratulations again on your baby! > > Mom to Dane 4 yo (DOC Grad) and Cece 11 mo (DOC Band) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 As an odd sidenote, the doctor I was speaking of said he didn't believe in banding PRIOR to 12 months. He said he refused all requests for a band until the baby was a year old. He said they rounded out too much on their own while infants. When I told him I read that babies get better correction the younger they are he told me that was " hype from the helmet people. " I just remembered that! Nobody seems to be on the same page! > > Faye, > I'm sure you'll get some feedback from parents who banded over twelve > months. The window of opportunity is closing, but there may be a > chance for some correction too. > It really aggravates me when Doctors say it's only a marketing ploy > when orthotists/clinicians say they can help a child. When one doctor > told me this I reminded him that he made money off the vaccines he > recommended using. That didn't seem to be a conflict to him! > There is a boy in my son's class who didn't get his DOC Band until he > was 13 months old. He had to wear two of them, but he looks great > today. His mom actually IS a doctor and she said he was severe before > treatment. > The decision is yours. If you feel she doesn't need treatment then > you're right to just put it behind you and not look back. Good luck > and congratulations again on your baby! > > Mom to Dane 4 yo (DOC Grad) and Cece 11 mo (DOC Band) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 My son is 15 months old his soft spot is gone and he just got his doc band. The specialist told us we wouldn't get as much bang for our buck but it would help more than if we did nothing at all. No redmarks so far. We are waiting to see some results and remain hopeful. It really will be too late to get a helmet one day so I truly hope you don't regret this decision. I have seen a few parents on the older plagio board who probably wish they could go back to the age of 15 months to get a band. With the issues that are arising for their little ones now I think they would be happy to give it a try even though there is less of a chance for correction. I guess it depends on whether you beleive plagio is a cosmetic issue only. Haylee --- In Plagiocephaly , " Faye & Mike " <chinadopt@y...> wrote: > > Thanks to everyone for your support. We were finally able to see the > cranial specialist at Children's Hospital on 11/23. She diagnosed > Camille with moderate plagiocephaly but said at her present age (15 > months) there is nothing (non-surgical) that can be done for her. We > feel that surgery is too big of a risk so that is a definite " no " . I > did tell her that I had read that babies can be banded up until age > 2. She assured me that literature like that is put out by the > companies who make the helmets (they want to sell more helmets) and > there is usually no benefit in banding after 11-12 months. None of > the doctors in her group will band at such a late age. She also said > that older kids run a greater risk of pressure sores, so we're not > going to persue it. > > As Camille grows and her hair gets longer, I am sure her head shape > will become less noticable. Just wanted to thank everyone for their > support and best of luck to all of you who are going through the > banding process with your little one. > > Faye > Mom to Camille > Adopted from China 7/05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 My son is 15 months old his soft spot is gone and he just got his doc band. The specialist told us we wouldn't get as much bang for our buck but it would help more than if we did nothing at all. No redmarks so far. We are waiting to see some results and remain hopeful. It really will be too late to get a helmet one day so I truly hope you don't regret this decision. I have seen a few parents on the older plagio board who probably wish they could go back to the age of 15 months to get a band. With the issues that are arising for their little ones now I think they would be happy to give it a try even though there is less of a chance for correction. I guess it depends on whether you beleive plagio is a cosmetic issue only. Haylee --- In Plagiocephaly , " Faye & Mike " <chinadopt@y...> wrote: > > Thanks to everyone for your support. We were finally able to see the > cranial specialist at Children's Hospital on 11/23. She diagnosed > Camille with moderate plagiocephaly but said at her present age (15 > months) there is nothing (non-surgical) that can be done for her. We > feel that surgery is too big of a risk so that is a definite " no " . I > did tell her that I had read that babies can be banded up until age > 2. She assured me that literature like that is put out by the > companies who make the helmets (they want to sell more helmets) and > there is usually no benefit in banding after 11-12 months. None of > the doctors in her group will band at such a late age. She also said > that older kids run a greater risk of pressure sores, so we're not > going to persue it. > > As Camille grows and her hair gets longer, I am sure her head shape > will become less noticable. Just wanted to thank everyone for their > support and best of luck to all of you who are going through the > banding process with your little one. > > Faye > Mom to Camille > Adopted from China 7/05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 Hi Faye, I would really encourage you to not listen to the cranial specialist. I have seen so many cases of older babies receiving excellent results that I really think it's worth it to try. Check out the amazing progress one baby had who started with a DOCband at 19.5 mos of age: http://www.cranialtech.com/treatment/casef.html My daugther Hannah wore three DOCbands starting at 4.5 mos, but her last band she wore from 15.5 to 19.5 mos and her results were great--VERY worth doing that band. Here are the pics from just that last band: You can see the difference in her ear alignment and the overall roundness in her head in those pictures from behind really well! Every case is different, but I do think it's worth a try, especially if you think it's noticable. I've never heard of there being any correlation in an increase of red marks in older children either, so I wouldn't base your decision on that at all. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com <sarahhollis@...> wrote: Thanks to everyone for your support. We were finally able to see thecranial specialist at Children's Hospital on 11/23. She diagnosedCamille with moderate plagiocephaly but said at her present age (15months) there is nothing (non-surgical) that can be done for her. Wefeel that surgery is too big of a risk so that is a definite "no". Idid tell her that I had read that babies can be banded up until age2. She assured me that literature like that is put out by thecompanies who make the helmets (they want to sell more helmets) andthere is usually no benefit in banding after 11-12 months. None ofthe doctors in her group will band at such a late age. She also saidthat older kids run a greater risk of pressure sores, so we're notgoing to persue it.As Camille grows and her hair gets longer, I am sure her head shapewill become less noticable. Just wanted to thank everyone for theirsupport and best of luck to all of you who are going through thebanding process with your little one.FayeMom to CamilleAdopted from China 7/05--- End forwarded message --- Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 Hi Faye, I would really encourage you to not listen to the cranial specialist. I have seen so many cases of older babies receiving excellent results that I really think it's worth it to try. Check out the amazing progress one baby had who started with a DOCband at 19.5 mos of age: http://www.cranialtech.com/treatment/casef.html My daugther Hannah wore three DOCbands starting at 4.5 mos, but her last band she wore from 15.5 to 19.5 mos and her results were great--VERY worth doing that band. Here are the pics from just that last band: You can see the difference in her ear alignment and the overall roundness in her head in those pictures from behind really well! Every case is different, but I do think it's worth a try, especially if you think it's noticable. I've never heard of there being any correlation in an increase of red marks in older children either, so I wouldn't base your decision on that at all. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com <sarahhollis@...> wrote: Thanks to everyone for your support. We were finally able to see thecranial specialist at Children's Hospital on 11/23. She diagnosedCamille with moderate plagiocephaly but said at her present age (15months) there is nothing (non-surgical) that can be done for her. Wefeel that surgery is too big of a risk so that is a definite "no". Idid tell her that I had read that babies can be banded up until age2. She assured me that literature like that is put out by thecompanies who make the helmets (they want to sell more helmets) andthere is usually no benefit in banding after 11-12 months. None ofthe doctors in her group will band at such a late age. She also saidthat older kids run a greater risk of pressure sores, so we're notgoing to persue it.As Camille grows and her hair gets longer, I am sure her head shapewill become less noticable. Just wanted to thank everyone for theirsupport and best of luck to all of you who are going through thebanding process with your little one.FayeMom to CamilleAdopted from China 7/05--- End forwarded message --- Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 I agree with - I don't think that it's too late to band if you chose to do so, so don't let the age discourage you. It may be worth at least looking into if you're interested, if not, I think that Camille's hair will hopefully cover a lot of it as she grows and her head shape may still change a little!! good luck with whatever you decide! toral mom to Dillon, doc band grad 9/28/05 > > Thanks to everyone for your support. We were finally able to see the > cranial specialist at Children's Hospital on 11/23. She diagnosed > Camille with moderate plagiocephaly but said at her present age (15 > months) there is nothing (non-surgical) that can be done for her. We > feel that surgery is too big of a risk so that is a definite " no " . I > did tell her that I had read that babies can be banded up until age > 2. She assured me that literature like that is put out by the > companies who make the helmets (they want to sell more helmets) and > there is usually no benefit in banding after 11-12 months. None of > the doctors in her group will band at such a late age. She also said > that older kids run a greater risk of pressure sores, so we're not > going to persue it. > > As Camille grows and her hair gets longer, I am sure her head shape > will become less noticable. Just wanted to thank everyone for their > support and best of luck to all of you who are going through the > banding process with your little one. > > Faye > Mom to Camille > Adopted from China 7/05 > > --- End forwarded message --- > > > > > > > > > > --------------------------------- > Music Unlimited - Access over 1 million songs. Try it free. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 I agree with - I don't think that it's too late to band if you chose to do so, so don't let the age discourage you. It may be worth at least looking into if you're interested, if not, I think that Camille's hair will hopefully cover a lot of it as she grows and her head shape may still change a little!! good luck with whatever you decide! toral mom to Dillon, doc band grad 9/28/05 > > Thanks to everyone for your support. We were finally able to see the > cranial specialist at Children's Hospital on 11/23. She diagnosed > Camille with moderate plagiocephaly but said at her present age (15 > months) there is nothing (non-surgical) that can be done for her. We > feel that surgery is too big of a risk so that is a definite " no " . I > did tell her that I had read that babies can be banded up until age > 2. She assured me that literature like that is put out by the > companies who make the helmets (they want to sell more helmets) and > there is usually no benefit in banding after 11-12 months. None of > the doctors in her group will band at such a late age. She also said > that older kids run a greater risk of pressure sores, so we're not > going to persue it. > > As Camille grows and her hair gets longer, I am sure her head shape > will become less noticable. Just wanted to thank everyone for their > support and best of luck to all of you who are going through the > banding process with your little one. > > Faye > Mom to Camille > Adopted from China 7/05 > > --- End forwarded message --- > > > > > > > > > > --------------------------------- > Music Unlimited - Access over 1 million songs. Try it free. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 The subject says your leaving the group why did some thing or some one upset you emale me. pmgamer18@... Phil kieran suttonryan <kieran215@...> wrote: >From: philip georgian >Reply- > >Subject: Re: Re: beginner needs some advice >Date: Mon, 13 Mar 2006 08:03:57 -0800 (PST) > >Hi we have a load of info in the links and files section at the home >page. On the left side of the screen. And at the data section we have >Dr.'s names men see and abreviations here is a link. > > /database?method=reportRows & t\ bl=2 > The best thing you can do is go there and read to learn as much as you >can about low T so you know if your Dr. is doing a good job. > I feel the first thing you need to do is have your Estradiol checked if >high this can make your prostate act up. You need a test like this. > http://www.labcorp.com/datasets/labcorp/html/chapter/mono/sr012000.htm > If your levels end up high getting them down to between 10 to 30 can >help you with your problems a lot. > Phil > > Hadley wrote: > Hello, > >WOW !! I have never received so many emails in my life. I do appreciate the >thoughtfullness. This is a lot more complicated than I thougt, and you >folks throw abreviations around like industry buzz words. I have no idea >what much of it means. >First, I have no intention of having my prostate removed simply to avoid >taking anti-biotics. The doctors did try several different anti-biotics, >but every time I completed the program, I would get sick again. It is >apparently very difficult for the prostate gland to get rid of some >infections. I was on 2 Cipros a day, then down to one, and now I am on only >1/2 pill a day. The urologist said that if I stay healthy for a couple of >years this way, he will then cut it back to 1/2 every other day, and that >will likely be for life. >Perhaps there is no correlation between prostate infection and using T >shots for most people. But my limited experience is that the symptoms of >the sick prostate were decreased remarkably when I started taking the T >shots. My wife can tell when I need a shot as I get really cranky and >irritable too. >Much of the advice received is to get the actual numbersw from these tests, >and to become more knowledgeable about this so that I can take more control >of my own health. That makes good sense. I will get the history of these >blood tests, and will then see what all they have been testing me for. I >know they do a test bi-annually for prostate cancer, and that was just done >last November. I was concerned that taking T shots might make this PSA >number go higher and they would take me off the T shots. I feel so much >better taking these shots that I do not want to give it up, so getting >things in balance by being more aware surely must be the right path here. >Thanks for the DEA and government tip. The Barry Bonds syndrome. This also >makes sense and is why the doctors do not want to talk about it. I have >noticed that I have gained body mass. I am 6' 1 " tall and now weigh about >240 pounds. If I lifted weights I would likely have no neck. I still doubt >I could hit 70 HRs in the Bigs though. >I will start the process of getting the test results and learning where I >am at now. Then I will submit these numbers and look forward to some >comments from some of you who are far more knowledgeable than I will ever >be. I just want to feel good and not risk my future health. Thanks again > > > > > > > > Summers wrote: > Won't removal of the prostate " cure " you? -- > >Yikes, that would be like amputating a finger to cure an infected >cut. Not something you'd do unless gangrene and blood poisoning set >in. Radical prostectomy is only indicated in cases of prostate >cancer. Even with nerve sparing RA, side effects are varying degrees >of erectile dysfunction and/or incontinence, some temporary; some >permanent. > >----Now I am just wondering out loud here, but isn't it a bad thing to >be on an antibiotic for life? ---- > >Definitely. Although for persistent infections an extended course of >high dose antibiotics is necessary. Lowering the dose or shortening >the prescribed course is extremely ill-advised because this will >create bacteria that are resistent to the antibiotic. Whenever an >antibiotic course is embarked on it is imperative to continue that >course for the duration. Generally response to antibiotic treatment >is seen by most patients after 48 hrs or so, but discontinuing the med >prematurely will bring back the infection back with a vengeance and >this time the bacteria will be resistent to the med. >It might be advisable to start a new course on a different antibiotic >and this time take the full (high end) dose for the longest timeline >specified in the package literature for physicians. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 Just want to wish everyone in the group well. I have made the decision to leave the group. If I need information regarding CMT...I'll look it up online or ask my doctor. Take care. Hugs, Sherry Quote Link to comment Share on other sites More sharing options...
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