Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Gretchen, Wow! That is so cool! It certainly is an inspiration! I am going to have my nephew help me get started with the gym stuff and I'm going to get some aquatic lessons at the pool this summer when I go visit my sister. I think I can get a lot stronger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 , What you described is what I have been doing for years. Especially with the ball between the knees. On land I use a weighted ball, in the pool, I use a pool ball, but same size (about volleyball size). Absolutely great for knees, thighs, abdominals, etc. I use a tennis ball under my foot while at the computer and roll my feet on it - one at a time. Works out tightened feet. Switching exercises to different days is a strategy that I have found helpful. I never hired a personal trainer, I just watched what other people were doing in the gym, then I'd go in off-peak hours and see what I could do. Now and them the floor manager would come over and I'd pick his brain about the exercise I was doing. I had alot of aquatic therapy after back surgery in '02 and have continued a routine in the pool 3-4 days a week since then because I am a water baby at heart. For a period of time I increased that to 6 times a week, as I wanting to loose weight and that goal was accomplished. Now for me exercise is not so much 'theraputic' but just part of my overall wellness goal and it is fun too! Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 Gretchen, Explain to me how you use ball in pool. Are you laying on your back with ball in between knees, otherwise it would float up! My PT is coming over next week to show me some pool exercises. I have been falling alot more lately and am very motivated to prevent it from continuing to happen! On another note, I had my physical and mental eval for SSDI. You were right, mental eval was just like you said! Needless to say, he did find me mentally disabled and even joked that he was not needing to Baker Act me. The physical was more involved. He did spend time with me. He did not have me show him much as far as stooping, bending or holding stuff. I think he saw that my balance was so bad and he did spend time looking at my feet and doing some strength evaluation. He seemed to think my upper body was ok and I showed him my hands. I went in with my 2 quad canes and showed him the helio braces (which he glanced at for 1 second!) My husband seemed to think that the appt went well and he did not have me do stuff because he could see that I couldn't. Will keep you posted when I get my answer! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 As a person with a severe form of CMT, I find that any type of exercise has a negative affect. I enjoy sitting in my chair watching birds in my window feeder. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 Augold123 wrote: " As a person with a severe form of CMT, I find that any type of exercise has a negative affect. I enjoy sitting in my chair watching birds in my window feeder. " Hmm, I've wondered the same thing. Seems yoga aggravates the neuropathy in my feet, so sometimes I wonder if the flexibility is worth the increase in nerve pain. Though I usually opt for the exercise. It seems to have longer lasting benefits versus a couple hours of discomfort. O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 : I wonder if you are over exercising? Overdoing exercise can definitly cause pain in your body if you have neuro disability. Re: Theraputic Exercise Augold123 wrote: " As a person with a severe form of CMT, I find that any type of exercise has a negative affect. I enjoy sitting in my chair watching birds in my window feeder. " Hmm, I've wondered the same thing. Seems yoga aggravates the neuropathy in my feet, so sometimes I wonder if the flexibility is worth the increase in nerve pain. Though I usually opt for the exercise. It seems to have longer lasting benefits versus a couple hours of discomfort. O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 I struggle with the same thing. Exercise always leaves me in pain. So a year or two ago, I decided I wasn't going to do it anymore. But then I started gaining weight and losing muscle even faster, so I finally had to come to terms with the fact that some exercise is needed if I want to be mobile longer. So I do as much as I can tolerate, which means I never exercise when I'm too sore or fatigued and try to stop before pain increases and/or muscles are exhausted. I just do slow, gentle movement in the warm water of a jacuzzi. I still have to leave many days in between where I can't exercise at all due to sore joints & muscles, but I am getting a little muscle back in hips/shoulders, so overall it's worth it...at least for now. I wish there were another way, but it just seems that to not move is to degenerate faster. Quote Link to comment Share on other sites More sharing options...
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