Re: stomach and digestive solutions

[Guest guest]

http://lindacrabtree.com/cmtnews/Gastrointestinal/%27s%20intro.html

[Guest guest]

Debbie,

CMT came down to me through my father and grandfather. My grandfather had to

have part of his stomach removed due to ulcers. My father has no stomach

problems that I'm aware of, but coincidently he also is by far the least

affected by his CMT (only some toe weakness in his sixties). I also had a lot of

stomach upset.

It turned out I was allergic to wheat and gluten. AND it turned it that cutting

those out even improved my CMT symptoms some. It reduced the fatigue

dramatically.

D. Hilliard

[Guest guest]

Hi Debbie,

CMT wouldn't cause polyps. If the daughter is not active or at least move around

then her digestive problems could very well be related to CMT. But if she is

pretty mobile, then no CMT does not directly affect the digestive system.

Ed

I all,

I live in Ohio and my husband has been diagnosed with CMT. His

sister, aunts and seveal cousins also have it. We also think his two

kids ( adults) and several of his grandkids have it although none have

been tested.

I have been reading so much about stomach and digestive problems in the posts.

Do these problems relate to CMT ? Although my husband doesn't have any problems,

his daughter does. She had scopes awhile back and they found polyps and and an

ulcer. I think she is ready to go to the doctor about CMT and I am wondering if

she should mention the stomach and digestive problems to him/her ?

Are they going to say it has nothing to do with the disease and brush her off or

will that say it is related ? Also how about some recomendations for

knowledgeable doctors in Ohio ?

Thanks

Debbie

[Guest guest]

Debbie,

My mother had digestive problems really bad. In fact, I'm sure that

contributed to her death. I don't think her CMT caused the digestive

problems, I think it was all the med's she was on. My son has always had

digestive problems. I didn't feed him very good until he was 9 because I didn't

know any better, now it's his not listening to me. He also has CMT.

However, my sister who has CMT, has always ate very healthy and always exercised

at the gym or in her weight room, does way better than me with the CMT, yet, I

have no digestive problems. But my sister takes med's because she listens to

the dr and I won't take a pill unless I'm more than half dead because I use real

food for healing and take most of my supplements that are natural

occurring.

[Guest guest]

>

> Debbie,

>

> CMT came down to me through my father and grandfather. My grandfather had to

have part of his stomach removed due to ulcers. My father has no stomach

problems that I'm aware of, but coincidently he also is by far the least

affected by his CMT (only some toe weakness in his sixties). I also had a lot of

stomach upset.

>

> It turned out I was allergic to wheat and gluten. AND it turned it that

cutting those out even improved my CMT symptoms some. It reduced the fatigue

dramatically.

>

> D. Hilliard

>

[Guest guest]

My personal experience with CMT, and food allergies, is that gluten is a

neurotoxin (this has been reported in research, too), thus worsening my CMT.