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Hello June, love,

I do hope you pick up, that pain in the ribs, chest and everywhere else is

probably all muscular, but it needs to be warm, have you a hot pad, an

electric one certainly relieves a lot of my pain, as does warming something

with a hot iron, and wrappind around rib area then getting under warm cover.

Along with warm fluids, especially the spud water and later tea with a

little ginger in it, or chammomile with a little ginger.

A lanolin cloth( warm) is wonderfully comforting too.

Glad to hear you had a better night sleep.

I had a lousy night too, asthma, and dreadful pain all over, R/A, but my R/A

is both all joints and internal organs, so constant pain too.

Have a good rest, keep very concious of warming the painful areas and

resting too, try not to do anything that will start you off coughing etc,

lay warm and relaxed for a while.

Love surely helps us all, so does friendship.

I am sure we all get something from being in this group, and hearing how

others cope, or how they too are unwell, pain etc, we all seem to have such

inner strength, but gee we do get challenged don,t we.

Just a bit of a let up for a couple of days is a real bonus, just like a

holiday away from pain and discomfort.

I surely know how that feels.

I had no one to help me change the sheets etc yesterday, and it was a must,

I spilt hot cuppa all over me and bed in the morning( very stiff and agony)

the lid came of my beaker( use a beaker in the mornings).

So had to do it myself, also put a colour in my hair, ( 12 weeks overdue),

thought it would make me feel better.

But, had terrible time trying to wash it out, ( hands above head etc), so

hopped in shower to wash it out, so had to then clean shower too.

Cannot move at all today, had to cancel special meeting for the people I run

the group for and care for.

I din,t get any sleep.

As I finally got into bed, and about to turn light off, 10 -15, got a call,

it was from one of my young fellows with an illness, he is autistic, has

Aspergers, Aitism, Depression, and epileptic, he had some how cut himself,

and not in an area one would imagine, he cannot remember why or how, just

that he had cut his genitals, and was bleeding , was terrified, as he

didn,t remember himself doing it, jus found himself bleeding profusely and

shaking all over, he wanted a lift to hospital, or for me to go to him

I couldn,t drive, I had taken my pain relief and a morphine tab, and neb

etc. So I had to settle him, hang up, ring ambulance etc, then ring him and

stay chatting till the ambos got there.

Well he went intoo shock badly, i had to relay to him to open door and light

etc, then to lay, then to elevate feet, apply pressure etc, but he went into

convulsions, ambulance hadn,t arrived 18 mins later, so had to hang up, and

then recall ambos, then ring him and keep him talking till they got there,

it was 34 minutes before they arrived.

He lives on a main Rd, easy to find, and 6 mins from amb, stn.

I was so angry, but oh well, they got there, and hung the phone up, before

they told me how he was.

I didn,t get back to sleep till after 2, very worried and in so much pain

etc.

Finally dropped off, but woke with asthma and pain 3-45.am.

Did get back to sleep after more pain relief and neb again.

But am in awful way today, no help to any one, except phone help and have

had 4 calls from desperate people.

That young man isn,t normally a self harmer, so something went wrong, he is

32 yo.

I am waiting for a call from hospital.

My computer has given me so much internet trouble, have been all day on the

keyboard, running thru things with technicians, and have had to go back to

dial up( slow too).

So at least can receive and send emails again.

June, love must go, I truly am in a bit of strife myself, you please try and

keep warmth all around you, in and out, am thinking of you, keep your chin

up,

will keep in touch.

Sandy

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  • 5 months later...
Guest guest

Theresa, the rotten tooth could be the culprit, lets hope so, and soon you

will be fine.

Like you I am beginning to take a closer look at what more I can do for

myself, and at least recognising we cannot burn the candle both ends must be

a start.

I don,t live it up or go out for fun much, but I do like to be there for as

many people as I can, thats just me.

I do know how to say NO, just not easy to do, if you think you can do what

is asked without too much hassle.

Good luck when returning to work, keep away from all the nasties though if

you can.

I have just returned home after spending 10 nearly 11 days in Brisbane, with

the old chap, he not only had a hip replacement but 2 heart attacks too.

He was flown home last night, I came by rail 4hrs.

I came out with a dreadful rash, like shingles, its sore, itchy, red,

blotchy and going right down the left side of my face.

I think its nerves, as the whole thing has been an ordeal, daily at the

hospital, working with the staff, every day, getting very little rest, lots

of back and forth travel on public transport etc, lack of a decent meal(

home cooked) , Its the first time I have had such a break out in my life, I

feel lousy with it, seems to be looking worse minute by minute.

I went to the docs, he thinks its shingles caused by nervous system.

Cannot use anything so tonight, I opened up 2 vitamin E caps and 1 cod liver

oil tab, and now have one very oily face, stinks too. But if it helps , well

I will see.

I hope it doesn,t persist, as its getting ino the eye, and mouth.

I have so much physio and rehab to do with the fellow, I cannot afford to

get anything myself really.

Oh gee, what am I saying here,

well at the beginning of this post, I meant all I wrote. LOL.

Keep well, and as I say keep away from all nasties, again. LOL

Sandy( silly)

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  • 3 years later...

Since the beginning of our relationship, we have attempted tosocialize with one couple after another. Generally, if they have abright teen-age child present, that's the person he talks with duringthe whole social encounter. If he does not get an opportunity toexpress himself in the way and to the length that he wants, he clamsup and sulks or he shouts over people. We had exhausted all thecouples I knew when we finally connected with someone with whom he wasworking and his wife. We have hung out with them for years and yet afew months ago, even they confessed to having difficulty enjoying timewith him. I felt profoundly sad when I heard that. He often complainshe has no friends when I go out with my girlfriends. Thank goodness for Marshall Rosenberg's Non-Violent Communication! Myhusband introduced me to this model of communication when we met 15years ago. He had found it when he was going through a divorce. Webegan diligently practicing it (rather than haphazardly) a few yearsago and it has made a huge difference in the quality of ourrelationship. He recently said he thinks this model works for himbecause it provides a structure that he can work within--there arelogical steps that make sense to him. He still has difficulty with the underlying concept, though, asmentioned elsewhere in these messages--and that's empathy. The model(state an observation, say how you feel, identify your needs, and makea doable request--it also works the other way) does provide astructure but the empathy is key.If your goal is to excel at the model and you do not want to make aconnection with the other person, you'll never get there. My husbandis out of town this week at a nine-day intensive on Non-ViolentCommunication. He was both excited and apprehensive about theexperience before he left and I wonder if he will make it through thewhole event. Whatever happens, I'm sure he will come back changed.I, too, am grateful for this list. I feel less isolated and that is ablessing.

It's only a deal if it's where you want to go. Find your travel deal here.

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  • 2 months later...

Just wanted to thank those of you who offered suggestions regarding

resources for children who have a parent with mental illness.

I wanted to share a wonderful book by Magination Press that I found and

have been using with this family. It is called Wishing Wellness: A

Workbook for Children of Parents With Mental Illness, By Anne

e & Illustrated by Bonnie s.

Warm wishes--

Hurwitz, LPC, MSW, MA, ATR

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