Re: I miss you guys so much!

[Guest guest]

Carol, you have always been dear to me. You are a very social person with a

beautiful sense of humor. I hope you feel better soon, and will be sharing

funnies with us again.

It's those alone moments that seem to weigh so heavy, and writing is a

perfect outlet, and we need you.

Throw yourself into clay? Wouldn't that be rather dirty? Or is that your way

of getting a facial all over? Poor Carol in a vat of clay. Don't stay in it

too long dear, it might harden, and you are prettier being soft.

Love you a lot,

Imogene

In a message dated 5/18/2008 8:36:31 PM Central Daylight Time,

adhd5464@... writes:

For eight months I relied on you guys for support.

You were my family.

I feel like I lost all of my friends when I was thrown out of Lewyville

by Millie's passing.

I know that I am always welcome here, and maybe when school ends I will

have time to get back into a Lewy mindset.

I used to hurry home to check this forum and now I barely have anything

to say.

I have tears, so I think I have hit upon why the sadness is so profound.

This is actually good, at least I know what has hit me so hard.

I grieve for Ron and . I followed their relationship like one of

my soaps.

Has anyone heard anything from Emma?

I know you all wish me the best, and I am not seeking advice, I just

want you to know how much all of you meant to me.

I am so glad to finally figure out why I have been at such loose ends.

Identifying the problem is the first step fixing it. I am just

caregiver without a care! How codependent is that?

It is probably time to throw myself back into clay, or something.

Love,

Carol

**************Wondering what's for Dinner Tonight? Get new twists on family

favorites at AOL Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

[Guest guest]

Hi Carol! Yes, you've been missed. We miss hearing you give us your

many 'poor babies' :)

Of course you're always welcome here. We loved to hear your stories

of manatees and poo. You put a smile on our faces when the caregivers

need it most.

I came to a conclusion somewhat recently myself. I had thought I

lost 'me'. After being my mom's advocate and b/c her journey was so

short I jumped in the Lewy waters to help any way that I can. I

became too consumed by Mr. Lewy - felt like I was doing nothing but

Lewy stuff. So I decided that I need to step back some. Not from this

list, but in other areas...

I wanted to find 'me' - b/c I felt that what I do w/ Lewy made me my

mom's daughter only, not me. But I realized that doing the stuff I do

(e.g. not-for-profit stuff, charity stuff, volunteer stuff) is me.

I'm just doing it for you caregivers of Lewy at the moment. So I

didn't lose 'me', I was just doing too much. Now my family & friends

are in the fore front, which they should be, and I continue to do

Lewy stuff but I don't allow it to overwhelm me. If I wasn't helping

out in Lewy land, I'd be helping out elsewhere, b/c that's

just 'me'...

Anyhoo - you don't have to just share your caregiving tricks here.

Your OT comments help in more ways than you know! Take care Carol and

hopefully we'll hear from you again soon!

>

> For eight months I relied on you guys for support.

>

> You were my family.

>

> I feel like I lost all of my friends when I was thrown out of

Lewyville

> by Millie's passing.

>

> I know that I am always welcome here, and maybe when school ends I

will

> have time to get back into a Lewy mindset.

>

> I used to hurry home to check this forum and now I barely have

anything

> to say.

>

> I have tears, so I think I have hit upon why the sadness is so

profound.

>

> This is actually good, at least I know what has hit me so hard.

>

> I grieve for Ron and . I followed their relationship like

one of

> my soaps.

>

> Has anyone heard anything from Emma?

>

> I know you all wish me the best, and I am not seeking advice, I

just

> want you to know how much all of you meant to me.

>

> I am so glad to finally figure out why I have been at such loose

ends.

>

> Identifying the problem is the first step fixing it. I am just

> caregiver without a care! How codependent is that?

>

> It is probably time to throw myself back into clay, or something.

>

> Love,

>

> Carol

>

[Guest guest]

Carol,

I do keep waiting for you to come back. You are do missed here. I use to laugh

and laugh at all your shanigans.

I do hope you let us help you get past the grieving part too. Maybe you could

come back and help us? Just sharing what happen to you with others is helpful.

There are a lot of people who are new and your sharing helps just as much if

Millie is here or gone. We really need your help and it isn't co dependant

either! We just miss you a whole lot.

Hugs, and more hugs from one that really misses your being here.

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

I miss you guys so much!

For eight months I relied on you guys for support.

You were my family.

I feel like I lost all of my friends when I was thrown out of Lewyville

by Millie's passing.

I know that I am always welcome here, and maybe when school ends I will

have time to get back into a Lewy mindset.

I used to hurry home to check this forum and now I barely have anything

to say.

I have tears, so I think I have hit upon why the sadness is so profound.

This is actually good, at least I know what has hit me so hard.

I grieve for Ron and . I followed their relationship like one of

my soaps.

Has anyone heard anything from Emma?

I know you all wish me the best, and I am not seeking advice, I just

want you to know how much all of you meant to me.

I am so glad to finally figure out why I have been at such loose ends.

Identifying the problem is the first step fixing it. I am just

caregiver without a care! How codependent is that?

It is probably time to throw myself back into clay, or something.

Love,

Carol

[Guest guest]

Carol, I look forward to when you can come back with your new found wisdom, with

your

sense of humour and sharing. You were such a creative spirit here, something we

all need

during this trial. If you need us to help you through the after Lewy life,

please stay

connected. After Lewy needs as much support as during Lewy.

I miss you.

>

> For eight months I relied on you guys for support.

>

> You were my family.

>

> I feel like I lost all of my friends when I was thrown out of Lewyville

> by Millie's passing.

>

> I know that I am always welcome here, and maybe when school ends I will

> have time to get back into a Lewy mindset.

>

> I used to hurry home to check this forum and now I barely have anything

> to say.

>

> I have tears, so I think I have hit upon why the sadness is so profound.

>

> This is actually good, at least I know what has hit me so hard.

>

> I grieve for Ron and . I followed their relationship like one of

> my soaps.

>

> Has anyone heard anything from Emma?

>

> I know you all wish me the best, and I am not seeking advice, I just

> want you to know how much all of you meant to me.

>

> I am so glad to finally figure out why I have been at such loose ends.

>

> Identifying the problem is the first step fixing it. I am just

> caregiver without a care! How codependent is that?

>

> It is probably time to throw myself back into clay, or something.

>

> Love,

>

> Carol

>