Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 What kind of testing did she have for Parkinson's? As far as I know there is no " medical " test for it such as a blood test or something. When Mom was evaluated for PD, they gave her the same test they just gave her for LBD which involved evaluating her mobility, balance, coordination, and cognitive function as well as evaluating her tremors for type, duration, severity, etc As for the Sinemet, Mom takes Parcopa which is a time released form of Sinemet for her tremors and Parkinsonian symptoms. However, the risk with Sinemet is that it can make the hallucinations worse. So, she (and you) need to decide which is more bothersome - the stiffness and tremors or the hallucinations? It's a damned if you do/damned if you don't kind of decision.   Gladys Stefany Milford, Pike County, PA Caretaker to Mom (Grace) age 76 - appears to be in between stages 3 and 4 Diagnosed with " probable " Diffuse Lewy Body Disease Current Meds: Benadryl, Exelon Patch, Lunesta, Namenda, Nexium, Parcopa, Premarin, Synthroid, Vytorin, and Zoloft -- Re: p.s. Seroquel & Hallucinations The hallucinations were not " scary " but maybe a bit bothersome, if for no other reason than they existed, period. She has been on Risperdol sense July of 2007. Last month the neuro Dr. reduced her dosage from 2 to one, taken in the evening, because I complained that she seemed so tired all of the time. She also prescribed Cinemet for her, a low dose, 2 a day. This was to help with the " shuffeling " she was starting to experience and possibly also to help her make decisions quicker. Something about Dopamine... does this sound familiar to anyone? Anywho, that was on a Thursday and she fell on Easter Sunday, three days later. I don't know if the med's were at fault or if it was just a coincidence. She was walking without her walker and fell sideways, not forwards or backwards. She has been tested for Parkinson's and tested negative. Her MRI showed no signs of a stroke or a tumor. There was atrophy but nothing out of the ordinary for her age. Hugs, Pammie **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Pammie, How she acted differently (disturbed, hallucinations) since taking the Sinemet? (You would notice it right away.) Sinemet is a drug for Parkinson's and help with the rigidity and tremors. kickbuttbooks@aol .com Sent by: To LBDcaregivers@yah octoryrose@... oogroups.com cc LBDcaregivers Subject 04/15/2008 07:31 Re: p.s. Seroquel PM & Hallucinations Please respond to LBDcaregivers@yah oogroups.com The hallucinations were not " scary " but maybe a bit bothersome, if for no other reason than they existed, period. She has been on Risperdol sense July of 2007. Last month the neuro Dr. reduced her dosage from 2 to one, taken in the evening, because I complained that she seemed so tired all of the time. She also prescribed Cinemet for her, a low dose, 2 a day. This was to help with the " shuffeling " she was starting to experience and possibly also to help her make decisions quicker. Something about Dopamine... does this sound familiar to anyone? Anywho, that was on a Thursday and she fell on Easter Sunday, three days later. I don't know if the med's were at fault or if it was just a coincidence. She was walking without her walker and fell sideways, not forwards or backwards. She has been tested for Parkinson's and tested negative. Her MRI showed no signs of a stroke or a tumor. There was atrophy but nothing out of the ordinary for her age. Hugs, Pammie **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 Please be careful to only discontinue meds under a doctors guidance. Stopping meds cold turkey can cause serious problems. You need to taper off most of them.   Gladys Stefany Milford, Pike County, PA Caretaker to Mom (Grace) age 76 - appears to be in between stages 3 and 4 Diagnosed with " probable " Diffuse Lewy Body Disease Current Meds: Benadryl, Exelon Patch, Lunesta, Namenda, Nexium, Parcopa, Premarin, Synthroid, Vytorin, and Zoloft -- Re: p.s. Seroquel & Hallucinations After her fall I discontinued it, so she had only been on it for three days But at the same time that she started the Sinemet she was lowered on her Risperdol dose so who knows if this caused her fall or it was just a coincidence!? I am afraid to put her back on Sinemet until I talk to her nuero Doc. again. What do you think? <<snip>> How she acted differently (disturbed, hallucinations) since taking the Sinemet? (You would notice it right away.) Sinemet is a drug for Parkinson's and help with the rigidity and tremors. <<snip>> Hugs, Pammie, proud daughter of the " Little Queen " , 76 years old, Diagnosed with LBD in the fall of 2007, currently taking Avapro, Aricept, Risperdal, Foltrin, Verapamil ER, Nexium, Prednisone, Ketoprofen and Boneva. **************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp00300000002851) Quote Link to comment Share on other sites More sharing options...
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