Guest guest Posted May 11, 2009 Report Share Posted May 11, 2009 , Thanks for the suggestion. I have often thought about having his blood checked also but have not done this yet. None of his drs have suggested it. I may just have to approach his ped. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Hey Lori - Anytime. We all get good ideas from one another. I've also found over the years that documenting symptoms and duration of symptoms really helps alot when you are going from pediatrician to neurologist and elsewhere. For instance, we kept taking to the pediatrician for this horrendous cough he has....we took him to an allergist...we took him to a pulmonologist, gastroenterologist etc. all in quest of the cause...it turns out that it's a result of over stimulation of the phrenic nerve... not common, but not unheard of in CMT patients. So, bring your list of symptoms to every doctor and review them in total...I will never again surmise that I know which doc needs to see him for which symptom.... Keep us posted! Quote Link to comment Share on other sites More sharing options...
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