disability

[Guest guest]

Wanted to update the group on filing for disability.

I took my last paycheck in December 2008 and applied for SSDI January 2009.I

went in person as i was told people like to help those that they like. I had a 3

ring binder with sections divided out with all my disability paperwork, all

doctor visits since 1984, another section with lab work, emg...... and another

section that explained what CMT is. I made 3 copies of the book; one for

disability, one for my new neurologist and one for me to keep.I then

periodically received the paperwork, filled it out immediately and would fax

back. I then was sent to their psychiatrist (which was BS for me, as i only

indicated i am on antidepressants to help deal with the anxiety of a progressive

disease) Then they sent me to their doctor for a physical and within a week, i

had backpay in my checking account where they determined me disabled May 2008.

This came a week before my award letter, so you can imagine my surprise! All in

all, the process was 5 months for me.

The point here is be VERY organized. I also let my doctors know in advance that

i was applying and my old dr i used to see, i explained to him specifically how

i have progressed and to please be on the lookout for the paperwork.

If anyone would like any suggestions or help in filling out forms, please feel

free to contact me. I filled out all the forms and have them saved in word if

anyone wanted to see what i wrote on the adult function report or my work

reports.

It is wierd being excited because you have officially been found disabled. This

will free me up so i can concentrate more on doing things for CMT and hopefully

start a support group soon. It was just too overwhelming doing it all at once,

along with the regular life problems that occur when you have 3 kids under the

age of 21!

Jackie