Re: Scientists find virus link to chronic fatigue...Lamisil -

[Guest guest]

When my insurance required a pre-authorization to fill my rx for Sporanox, I

asked doctor for a rx for a different antifungal because I didn't think the

pre-auth would be accepted, so he gave me a rx for Vfend/voriconozole, which is

a newer 'ozole' for aspergillus which is what I was exposed to mainly at home,

and took it to my pharmacy. only to find out that my " co-pay " for the one month

supply of Vfend was $600.00! I said, " doesn't my insurance cover it? " . They

said, " yes, they're going to pay $2,000.00 " Honestly! The one month supply

cost $2,600.00! It's under patent and there is no generic.

Can you imagine! All alone that is astounding but when you further realize that

people usually are on antifungals for 3 to 6 months, even more astounding. Of

course I didn't pick it up. So I decided to pay for the Sporanox myself and

started taking it two days and already it is clearing up some skin lesions that

are at least two years old. No affect on my swollen foot yet, but two days

isn't long so I can still hope.

Seems trying to get help for a moldy home or fungal infected body is nearly

impossible. If you get help, it's always outside of any insurance coverage.

>

> I did quite a bit of research on Lamisil particularly since I did not want

kidney damage caused by amphotericin B, or other antifungals. What I learned on

European sites was that it was used on Bone marrow transplantees and AIDS

patients for aspergillosis infections and it seemed to kill the fungus without

taking the patient with it.

[Guest guest]

I did not want anything else but Lamisil. It specifically " acted " on aspergillus

fumigatus. For me it was like a " smart bomb " - but did not help with the

fatigue. It did feel as though every day, poison was being sucked from my

sinuses.

It did not act with the cognitive, and language which I feel is still not back

100%. Essiac helped with word " recall " and I was careful not to use more than

one new thing at a time. It is a long road but at least we are alive and still

fighting for treatment.

>

> When my insurance required a pre-authorization to fill my rx for Sporanox,

[Guest guest]

That's very interesting. I read up on Lamisil but all I read was about the

Dermatophyte. It would have been very inexpensive for me. Should have asked

here first! There is so much experience here!

What do you mean by Essiac helping with the word 'recall'?

>

> I did not want anything else but Lamisil. It specifically " acted " on

aspergillus fumigatus. For me it was like a " smart bomb " - but did not help

with the fatigue. It did feel as though every day, poison was being sucked from

my sinuses.

>

> It did not act with the cognitive, and language which I feel is still not back

100%. Essiac helped with word " recall "

[Guest guest]

Think I could switch over and if it didn't help, switch back to Sporanox? I

tried to read everything first because I figured I didn't want to do that but

didn't see anything about other fungus for Lamasil but I read only the standard

reference material, like rxlist.com and government drug list, etc. I probably

should have branched out. Sporanox cost me 135 for 2 week supply. I could have

gotten Lamisil 90 for 10.00 after joining their discount drug program, which I

think cost 20 or 30 dollars.

>

> I did not want anything else but Lamisil. It specifically " acted " on

aspergillus fumigatus. For me it was like a " smart bomb "

[Guest guest]

I knew what I was exposed to. It would seem that it should be specific to what

you were exposed to. I was offered some other multi-purpose antifungal but I

wanted something to be " susceptible " to aspergillus fumigatus. It should depend

on what you have not what I have had. I don't espouse antifungals taken

indisciminately or lightly - they can have very serious side effects, like

vision issues, and liver issues, so prudence and good lab work should be the

rule. I would also read every product insert to find out the

" contra-indications " or risks of using any medication.

Lamisil for aspergillus was an " off-label " use in this country at the time. It

was only approved for payment for toenail fungus in the US.

It was studied in Europe and I was determined to get some competent treatment,

because doing " nothing " was not an option.

>

> Think I could switch over and if it didn't help, switch back to Sporanox?

[Guest guest]

I have avoided antifungals but have very serious situation of swollen foot and

skin inflamation since last March that nothing has worked for. My house was

primarily infected with aspergillus flavus, which I read more likely to infect

skin than other aspergillus and aspergillus noted as infective agent in bone, as

in aspergillus osteomyletis and I have bone marrow inflamation. I have not been

able to walk on foot for nine months now so desperate. Dermatologist and foot

doctor tried antibiotics on me.

I have been diagnosed with RDS by two podiatrist and that is something there is

no treatment for, you just hope to get over it. I usually am right on self

diagnosis, although I seek help from a doctor first. Curent doctor is going

along with my theory. So far on just second day of Sporanox skin shows signs of

clearing up. Just ashame if I could have had results from medicine that was so

inexpensive, as I'm coming to the bottom of my financial barrel so to speak. No

definate answer yet but hopeful.

>

> I knew what I was exposed to. It would seem that it should be specific to

what you were exposed to. I was offered some other multi-purpose antifungal but

I wanted something to be " susceptible " to aspergillus fumigatus.

[Guest guest]

You're lucky that you've found a doctor to listen to you. I've just

changed, so we'll see what happens here. I didn't like the N.P. who

didn't really go into my history. Will give the doctor a chance when I

see her later on.

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

---

BW> I have avoided antifungals but have very serious situation of swollen foot

and skin inflamation since last March that nothing has worked for. My house was

primarily infected with aspergillus

BW> flavus, which I read more likely to infect skin than other aspergillus and

aspergillus noted as infective agent in bone, as in aspergillus osteomyletis and

I have bone marrow inflamation. I have

BW> not been able to walk on foot for nine months now so desperate.

Dermatologist and foot doctor tried antibiotics on me.

BW> I have been diagnosed with RDS by two podiatrist and that is something there

is no treatment for, you just hope to get over it. I usually am right on self

diagnosis, although I seek help from a

BW> doctor first. Curent doctor is going along with my theory. So far on just

second day of Sporanox skin shows signs of clearing up. Just ashame if I could

have had results from medicine that was

BW> so inexpensive, as I'm coming to the bottom of my financial barrel so to

speak. No definate answer yet but hopeful.

[Guest guest]

Keeping you in our prayers !

 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: Barb W <barb1283@...>

Sent: Sat, October 10, 2009 8:17:12 PM

Subject: [] Re: Scientists find virus link to chronic

fatigue...Lamisil -

 

I have avoided antifungals but have very serious situation of swollen foot and

skin inflamation since last March that nothing has worked for. My house was

primarily infected with aspergillus flavus, which I read more likely to infect

skin than other aspergillus and aspergillus noted as infective agent in bone, as

in aspergillus osteomyletis and I have bone marrow inflamation. I have not been

able to walk on foot for nine months now so desperate. Dermatologist and foot

doctor tried antibiotics on me.

I have been diagnosed with RDS by two podiatrist and that is something there is

no treatment for, you just hope to get over it. I usually am right on self

diagnosis, although I seek help from a doctor first. Curent doctor is going

along with my theory. So far on just second day of Sporanox skin shows signs of

clearing up. Just ashame if I could have had results from medicine that was so

inexpensive, as I'm coming to the bottom of my financial barrel so to speak. No

definate answer yet but hopeful.

>

> I knew what I was exposed to. It would seem that it should be specific to what

you were exposed to. I was offered some other multi-purpose antifungal but I

wanted something to be " susceptible " to aspergillus fumigatus.

[Guest guest]

Ginloi,

How long did you have to use the lamisil for? What tests did you take to keep

track of how you were doing and if it was getting rid of the fungus.

Is it known to cause liver problems?

Thanks,

Sam

 

I did quite a bit of research on Lamisil particularly since I

did not want kidney damage caused by amphotericin B, or other antifungals. What

I learned on European sites was that it was used on Bone marrow transplantees

and AIDS patients for aspergillosis infections and it seemed to kill the fungus

without taking the patient with it.

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