Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Francine, I just re-read your post about the YMCA. I didn't realize you are in Calif. So am I, in Santa Barbara County. We just started a great support group for the Tri-Counties area. You'd be welcomed with open arms. I'd be happy to show you my gym and pool that I use. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2009 Report Share Posted July 4, 2009 gretchen. thanks for the the invite. i just received a note about a support group in palos verdes and santa barbara is far. but you never know when i could come up. i am going to fight the ymca and i hope for me and others i win. francine Francine, I just re-read your post about the YMCA. I didn't realize you are in Calif. So am I, in Santa Barbara County. We just started a great support group for the Tri-Counties area. You'd be welcomed with open arms. I'd be happy to show you my gym and pool that I use. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2009 Report Share Posted July 4, 2009 Francine, what part of So. Ca are you in? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 I know i'm not Francine but i'm in the east San Valley. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Wow you are close! I am in the Antelope Valley. In a message dated 7/5/2009 10:24:23 A.M. Pacific Daylight Time, r.fraigun@... writes: I know i'm not Francine but i'm in the east San Valley. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 Ron- I am from Newbury Park (in Thousand Oaks) and am working on getting a support group together for CMTers in this area or who anyone would like to attend a support group in this area. Right now we have four people. If you would be interested or know others who would I can be reached at lsacks.5101@... or 805-498-5313. Lynda Sacks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 my sister is in palm springs and i just sent her this site to join, i will let her know. she and her daughter both have CMT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 Perhaps we could do a central location meeting like in Burbank. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 lynda, i live in tarzana and would like a close support group francine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 I am also in Tarzana (West San Valley). I attempted to make it to the last meeting in Solvang but got caught in concert traffic on the 101. Was so disappointed to miss it. I'd love to get together with some of you that are closer. Holli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 In a message dated 7/6/2009 9:56:44 A.M. Pacific Daylight Time, r.fraigun@... writes: Perhaps we could do a central location meeting like in Burbank. I could do Burbank. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 HI FROM BARB C I ASKED BEFORE( QUITE AWHILE AGO IF SOMONE KNEW OF A DOCTOR IN OTTAWA ONTARIO WHO WAS KNOWLEDGEABLE ABOUT CMT SOMEONE GAVE ME A NAME FOR A DOCTOR IN MONTREAL ROAD MY OLD COMPUTER DIED AND I LOST MOST OF MY SAVED EMAILS IF THE PERSON WHO GAVE ME THE NAME STILL REMEMBERS IT PLEASE GIVE IT TO ME AGAIN THANK YOU BARB C -- Re: So. California CMT my sister is in palm springs and i just sent her this site to join, i will let her know. she and her daughter both have CMT. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Well thats 2 of us that can do that then, anyone else? Re: So. California CMT In a message dated 7/6/2009 9:56:44 A.M. Pacific Daylight Time, r.fraigun@... writes: Perhaps we could do a central location meeting like in Burbank. I could do Burbank. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Ron and , im in tarzana and burbank would be great that's 3 francine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Ron, and Francine -- I'm also in Tarzana so that's 4! Holli > > Ron and , > > im in tarzana and burbank would be great that's 3 > > > francine > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Perhaps with 3 of us only then (of course my family will come) we could meet up for dinner somewhere. There are quite a few places in the media center. Re: So. California CMT Ron and , im in tarzana and burbank would be great that's 3 francine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Alright, we got 4 of us. Shall we set up a meeting, maybe a dinner or something. I'm so interested to meet anyone else with CMT and compare experiences. Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Count me in! > > Alright, we got 4 of us. Shall we set up a meeting, maybe a dinner or something. I'm so interested to meet anyone else with CMT and compare experiences. > > Ron > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Well, Ron, why don't you pick a time and place? I'll be there if I can. For planning purposes: I'll be on vacation out of town from 7/18-31. Holli in Tarzana > > Alright, we got 4 of us. Shall we set up a meeting, maybe a dinner or something. I'm so interested to meet anyone else with CMT and compare experiences. > > Ron > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Ok it looks like we have 5 of us so if you can all email me your email addresses we can work this out that way. I'd say to start lets do a meetup in a resturant or something just to meet each other and see where it goes from there. Ron Fraigun <r.fraigun@...> Quote Link to comment Share on other sites More sharing options...
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