Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 OK so that's what that word meant. I'll write that down for the next eval. thanksRoxanna <madideas@...> wrote: Hi Rose, I did mention that problem - proprioception. I know that problem also as my two boys have it! RoxannaAutism Happens ( ) Stamina I've had a post from Roxanna back on Oct 17th spinning in my head. The subject was leg pains, but what got me curious was what she wrote about stamina. If I understood correctly, this can also be a generic problem for kids with AS? Is that so? Why? And how do you handle it?I've always thought of my son being extremely lazy and having a fear for getting exhausted in any form, both physical and mentally. So I thought this was an interesting perspective...Rannveig/. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Hi Rose, I think vision therapy can work for some, but be warned. My son started with therapy when he was 6. In 2 week he developed a severe eye tic. I stopped therapy and within 2 weeks it was gone, hasn't been back over a year later. It stresses the neurological system and some of our kids can't withstand that. Those administering the therapy are not trained in the spectrum and don't recognize the overstress till it's too late! Thanks, Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Debbie, your awesome to share this with me!!! I know nothing about 'visual therapy' nothing! I do know this is a problem for my son "sees nothing below waist". I have ideas of teaching other ways. just like for remembering things - have reminder cards. thanks for reading. Rosedebramelamed <melamedj@...> wrote: Hi Rose,I think vision therapy can work for some, but be warned. My son started with therapy when he was 6. In 2 week he developed a severe eye tic. I stopped therapy and within 2 weeks it was gone, hasn't been back over a year later. It stresses the neurological system and some of our kids can't withstand that. Those administering the therapy are not trained in the spectrum and don't recognize the overstress till it's too late!Thanks,Debbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 That is a tough question. I guess I would keep an eye on overall development. There are plenty of websites online that can give you "developmental milestones" (google that) and you can compare and see if your ds is meeting those goals. But now at 6.5 yo, they are not as specific. I usually go over the standards for each grade at school, which are usually specific, and see if my ds meets all the area criteria. Do most schools hand out yearly goals for that grade? I'm not sure if this is just a nice thing my school does or if you all get them too. But I get a list each year of everything my kids will learn in that grade/should learn in that grade. So that way, I know if my kid is on track or behind in anything. Also keep tabs on the social skills and pragmatic language issues. I would say that if he has a few friends to hang out with, that's good. If he doesn't, he is probably struggling in that area and might need a little help. Watch him play at recess once in a while or in the neighborhood and see if he is always frustrated or if he seems to get along ok with other kids. RoxannaAutism Happens ( ) Stamina> > > > I've had a post from Roxanna back on Oct 17th spinning in my head. The > subject was leg pains, but what got me curious was what she wrote > about stamina. If I understood correctly, this can also be a generic > problem for kids with AS? Is that so? Why? And how do you handle it?> > I've always thought of my son being extremely lazy and having a fear > for getting exhausted in any form, both physical and mentally. So I > thought this was an interesting perspective.th> > Rannveig/.> > > > > > > > > > > > > > > > > > > > Debbie Salerno> Maine Coon Rescue> Board Member> DNA Manager> Eastern Regional Director> Vice President> www.mainecoonrescuewww.> > > > > ____________________________________> See what's new at _AOL.com_ (http://www.aol.com/?NCID=AOLCMP00300000001170) > and _Make AOL Your Homepage_ > (http://www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169) .> > > > > > > > > > > > > > > Debbie Salerno> Maine Coon Rescue> Board Member> DNA Manager> Eastern Regional Director> Vice President> www.mainecoonrescuewww.> > > > > ____________________________________> See what's new at _AOL.com_ (http://www.aol.com/?NCID=AOLCMP00300000001170) > and _Make AOL Your Homepage_ > (http://www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169) .> > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 I just felt I had to comment on the STAMINA. Yeah, don't you know it. I can say " it takes people with CMT twice as much energy to do 1/2 as much " - BUT then I continue to do " too much " . Only each one of us can determine what is too much but I find it very difficult to accept my limitations. I hold down a full time job that really does take most of my energy and still manage to grocery shop, cooks meals (although not every day) and keep up with laundry and house work on an as is needed basis. I have learned to let go of a lot, but find it frustrating to never have a totally clean house or the energy to do anything else other than what is necessary (work - to pay the bills, cook - to eat and housework - so as not to live in a complete PIGSTY!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 yes i do not have any energy. i work as a waitress and it is killing me. i have to clean. it sometimes feel like i do everything, and to much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 Hi all, I am new to this group, but not new to CMT. I live in Southern Oregon and there are no support groups near me, so I appreciate being able to post here. I totally understand what was saying about stamina. I always have way more planned for each day than I have energy to accomplish. I am a disabled/retired educator and now the only job I can hold is one working from home, so I can monitor my time. I am a Xango Distributor and please do not think I am trying to get you to join me, but I do feel it very necessary to let all CMT people know how my life has been changed with the Xango juice. I actually do not suffer from any sort of pain any longer and my energy levels are improved. Coming out on July 20th is a new product from Xango that I am really looking forward to trying called X-51. I am a real people person and I love being able to share this great news. Please contact me if you would like more information, for me it has been life changing. Blessings to you all. ~Suzan McNally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 I know I could never do a job that was on my feet all day. I can work because I don't have to walk or stand a whole lot. But then as I said, just working takes my energy so I don't have a lot for cooking and cleaning when I get home! I HATE having my 2 days off to re-cuperate and then back at it for another week! But I am not ready to give up and go on a " benefit " . I will continue for a while and I am for fortunate to be with an agency that understands. I manage a home that has 3 indiviudals living in it wth cognitive disability - 2 also have health concerns - so a lot of work, but not physically demanding! yes i do not have any energy. i work as a waitress and it is killing me. i have to clean. it sometimes feel like i do everything, and to much __________________________________________________________________ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr.com/gift/ Quote Link to comment Share on other sites More sharing options...
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