Re: Caregiver rates

May 16, 2008

<snip> She gets up and walks into the living room where the aide

sleeps to check if they should get up yet. <snip>

This sounds familiar... my mother would do the same thing when I

slept over (only a couple times during the journey - the first being

one of the reasons I figured something was wrong...) It was the night

before the 2 of us were going on vacation. She slept in her room and

I was in the living room on the couch. Every 5-10 she shuffled in

wondering if it was time to leave yet. We had to leave at some crazy

hour like 3 AM. But this not only told me my mom pretty much lost her

sense of time (what was actually 10 minutes would feel like an hour)

but also she apparantly couldn't tell the time then either - and it

was a digital clock in her bedroom...

For the links re: sleep that Donna mentioned. Go here:

and go into the folder marked:

Sleep Issues

Sleep disorders associated with LBD, Bedtime comfort needs

; loving daughter of Maureen of Boston, MA; dx'd with LBD in

2/2006 (confirmed via brain biopsy;) fell victim to rapid decline

from Risperidone; Mom fell into the 50% category of those who could

not handle antipsychotics; Was successful on Celexa, Exelon, ALA &

B1; Mom became my Guardian Angel on Sept. 30th, 2006.

May 16, 2008

<snip> While with the diagnosis of LBD, she was given Namenda and

Exelon (but not together!) but did not tolerate them so they were

stopped. <snip>

One more thing... if one of the cholinesterase inhibitors doesn't work,

don't be afraid to try another - they're all slightly different. The

other two being Aricept or Razadyne.

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