Re: Lee/ME AGAIN!!!

[Guest guest]

Lee, this is just a thought, but Xanax is a benzodiazepine as is Ativan and

benzodiazepines are on the bad list of medications for LBD. They may work for

some, but not all. There are some like Effexor XR that are not benzodiazepines

for anxiety.

ME AGAIN!!!

Ok folks... Mother is now in Hospice. Her combative and aggressive

ways have finally burned me out... SOOOOO.... I hired my own private

team of 24/7 care. It is an expensive team, but I picked this crew for

a reason. (I'M ABOUT TO BUTT HEADS WITH HOSPICE)

a is a CNA and in middle of Nursing School (she has the summer off)

is nursing home experienced CNA

is Alzheimers Unit experienced CNA

Terry is a High School Registered Nurse with the summer off.

is a retired Registered Nurse.

and 1 Personal Assistant (she was the only one willing to work that

time slot)

There is much chatter about possible med problem. Is it drug

interactions? or are we lacking a drug we should try? etc... Of course

non of these women had ever heard of LBD until they got a phone call

from me. I understand what it's like to live in Lewyland 24/7, but

they understand the medical stuff.

I have attempted to read through those files about meds, but to be

honest, my brain turns to mush trying to make heads or tails out of

those articles. And the poor gals cant read those articles cause

Mother just keeps them occupied NON STOP with her difficult ways. I

had to hire all 3 shifts all 7 days cause Mother's brain wont shut

down to sleep. This is some pretty nasty aggitation.

So here is what my crew is curious about.... Is she currently taking

any meds that are NORMALLY/USUALLY considered major No-No meds?

Carbo/Levodopa

Requip

Seroquel

Xanax

Lexapro

Plavix

And we are currently mid way of weaning her off Aricept and Namenda

I'm not going to offer dosages cause we are interested in whether or

not a particular drug could be the OBVIOUS culprit.

Back a few weeks ago, Hospice gave the Avian and Morphine and after

the 1st few days that was an OBVIOUS DISASTER!!!! (which seems to be a

real head butting issue with Hospice right now)

And I just want to point out that Mother started having multiple mini

strokes as of early March. PRIOR TO MARCH... Xanax and Seroquel were

the MAGIC meds that I worshipped. Doesnt seem to be doing jackcrap any

more. Ever since the mini strokes started happening in early March....

life has been HELL SINCE MARCH!!!!!!!!! and it just keeps getting

worse. (maybe the mini strokes are the true culprit of this combative

problem?)

These poor gals are earning their paycheck the hard way. I have

declared 1 gal the supervisor of the crew, and it's her job to

maintain communication with Hospice. When the Hospice Nurse does show

up twice/week... most of the crew tries to be here at the same time to

offer their input of this situation.

(Hospice and doctors cant claim the problem is me)

Lee

------------------------------------

Welcome to LBDcaregivers. 

[Guest guest]

Why is your mom on two anxiety disorder medications? Lexapro is for anxiety as

is Xanax, but not a benzodiazepine, why not just have her on Lexapro and take

her off of Xanax. That's seems harsh having her on two antianxiety medications

at once.

ME AGAIN!!!

Ok folks... Mother is now in Hospice. Her combative and aggressive

ways have finally burned me out... SOOOOO.... I hired my own private

team of 24/7 care. It is an expensive team, but I picked this crew for

a reason. (I'M ABOUT TO BUTT HEADS WITH HOSPICE)

a is a CNA and in middle of Nursing School (she has the summer off)

is nursing home experienced CNA

is Alzheimers Unit experienced CNA

Terry is a High School Registered Nurse with the summer off.

is a retired Registered Nurse.

and 1 Personal Assistant (she was the only one willing to work that

time slot)

There is much chatter about possible med problem. Is it drug

interactions? or are we lacking a drug we should try? etc... Of course

non of these women had ever heard of LBD until they got a phone call

from me. I understand what it's like to live in Lewyland 24/7, but

they understand the medical stuff.

I have attempted to read through those files about meds, but to be

honest, my brain turns to mush trying to make heads or tails out of

those articles. And the poor gals cant read those articles cause

Mother just keeps them occupied NON STOP with her difficult ways. I

had to hire all 3 shifts all 7 days cause Mother's brain wont shut

down to sleep. This is some pretty nasty aggitation.

So here is what my crew is curious about.... Is she currently taking

any meds that are NORMALLY/USUALLY considered major No-No meds?

Carbo/Levodopa

Requip

Seroquel

Xanax

Lexapro

Plavix

And we are currently mid way of weaning her off Aricept and Namenda

I'm not going to offer dosages cause we are interested in whether or

not a particular drug could be the OBVIOUS culprit.

Back a few weeks ago, Hospice gave the Avian and Morphine and after

the 1st few days that was an OBVIOUS DISASTER!!!! (which seems to be a

real head butting issue with Hospice right now)

And I just want to point out that Mother started having multiple mini

strokes as of early March. PRIOR TO MARCH... Xanax and Seroquel were

the MAGIC meds that I worshipped. Doesnt seem to be doing jackcrap any

more. Ever since the mini strokes started happening in early March....

life has been HELL SINCE MARCH!!!!!!!!! and it just keeps getting

worse. (maybe the mini strokes are the true culprit of this combative

problem?)

These poor gals are earning their paycheck the hard way. I have

declared 1 gal the supervisor of the crew, and it's her job to

maintain communication with Hospice. When the Hospice Nurse does show

up twice/week... most of the crew tries to be here at the same time to

offer their input of this situation.

(Hospice and doctors cant claim the problem is me)

Lee

------------------------------------

Welcome to LBDcaregivers. 

[Guest guest]

Thank you for your comment about Xanax. This is one of many sore

subjects I'm about to butt heads with Hospice. My crew has given their

opinion to Hospice about the Xanax... and Hospice has decided to

INCREASE the dosage as of YESTERDAY!!!

Just to let ya know... her Xanax is 0.25/pill and was taking ONE pill

3 times/day PRIOR TO THE MINI STROKES in early March. Since the mini's

we raised it to TWO pills 3 times per day... and as of yesterday

Hospice just raised it to THREE pills per day.... EVEN AFTER MY CREW

TEAM EXPRESSED THEIR CONCERNS!

One 12 hr shift she had 12 Xanax... and it was like giving her

NOTHING!!! I cant say that it is making her worse... but the team

agrees, it doesnt seem to phase her at all! It's like giving her nothing.

(1 of many subjects I'm gritting my teeth about right now)

Lee

>

> Lee, this is just a thought, but Xanax is a benzodiazepine as is

Ativan and benzodiazepines are on the bad list of medications for LBD.

They may work for some, but not all. There are some like Effexor XR

that are not benzodiazepines for anxiety.

>

>

> ME AGAIN!!!

>

> Ok folks... Mother is now in Hospice. Her combative and aggressive

> ways have finally burned me out... SOOOOO.... I hired my own private

> team of 24/7 care. It is an expensive team, but I picked this crew for

> a reason. (I'M ABOUT TO BUTT HEADS WITH HOSPICE)

>

> a is a CNA and in middle of Nursing School (she has the summer off)

> is nursing home experienced CNA

> is Alzheimers Unit experienced CNA

> Terry is a High School Registered Nurse with the summer off.

> is a retired Registered Nurse.

> and 1 Personal Assistant (she was the only one willing to work that

> time slot)

>

> There is much chatter about possible med problem. Is it drug

> interactions? or are we lacking a drug we should try? etc... Of course

> non of these women had ever heard of LBD until they got a phone call

> from me. I understand what it's like to live in Lewyland 24/7, but

> they understand the medical stuff.

>

> I have attempted to read through those files about meds, but to be

> honest, my brain turns to mush trying to make heads or tails out of

> those articles. And the poor gals cant read those articles cause

> Mother just keeps them occupied NON STOP with her difficult ways. I

> had to hire all 3 shifts all 7 days cause Mother's brain wont shut

> down to sleep. This is some pretty nasty aggitation.

>

> So here is what my crew is curious about.... Is she currently taking

> any meds that are NORMALLY/USUALLY considered major No-No meds?

>

> Carbo/Levodopa

> Requip

> Seroquel

> Xanax

> Lexapro

> Plavix

>

> And we are currently mid way of weaning her off Aricept and Namenda

>

> I'm not going to offer dosages cause we are interested in whether or

> not a particular drug could be the OBVIOUS culprit.

>

> Back a few weeks ago, Hospice gave the Avian and Morphine and after

> the 1st few days that was an OBVIOUS DISASTER!!!! (which seems to be a

> real head butting issue with Hospice right now)

>

> And I just want to point out that Mother started having multiple mini

> strokes as of early March. PRIOR TO MARCH... Xanax and Seroquel were

> the MAGIC meds that I worshipped. Doesnt seem to be doing jackcrap any

> more. Ever since the mini strokes started happening in early March....

> life has been HELL SINCE MARCH!!!!!!!!! and it just keeps getting

> worse. (maybe the mini strokes are the true culprit of this combative

> problem?)

>

> These poor gals are earning their paycheck the hard way. I have

> declared 1 gal the supervisor of the crew, and it's her job to

> maintain communication with Hospice. When the Hospice Nurse does show

> up twice/week... most of the crew tries to be here at the same time to

> offer their input of this situation.

>

> (Hospice and doctors cant claim the problem is me)

>

> Lee

>

>

> ------------------------------------

>

> Welcome to LBDcaregivers.

>

>