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Re: 6 year old with CMT

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Hi and ,

What about an all terrain tricycle or bicycle for your daughter to use?

http://www.thefind.com/family/info-all-terrain-tricycle

If she can't ride a tricycle or bike, maybe something like a Radio Flyer Wagon

or a Childrens Bike Bicycle Trailer this site has alot of choices.

http://www.thefind.com/family/info-all-terrain-tricycle

some other sites http://rhinotrikes.com/rhinotrikes.htm

http://www.wagonworld.com/

http://www.globalsources.com/manufacturers/All-Terrain-Tricycle.html

http://www.qualitytoys.com/berg-steppy-scooter.html

http://www.wheelandsprocket.com

Surf around, there are many more sites, and prices vary depending on what you

want.

I spent 3 summers in Guatemala, mostly at Tikal, Bonampak and Tulum working on

my thesis. I have fond memories of the people, culture, Chicastenago, and of

course the rainforrest,parrots, and other creatures.

Gretchen

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Here in San Diego, on Mission Beach, you can get a free, daily, loan of a beach

worthy wheel chair. You have to return it at the end of the day, but you can't

argue with free.

O

>

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and ,

After a long day in the orchards picking fruit, then the drive home I had

another thought about transport for your daughter in Guatemala - and that is a

horse, a mule, or a donkey. From what I remember there were mules, donkeys and

some ponies doing alot of work. It may also be rather fun for your daughter.

Maybe you can connect with these people - I don't know exactly the area you are

in or how remote. If I remember correctly, every place I visited (this was early

70's) was pretty much covered in massive jungle and the roads were extremely

narrow, with people and their stuff on mules or donkeys.

http://www.thebrooke.org/content.asp?id=612 & cachefixer=cf03516845679649aybe

http://www.tikalcnx.com/

Or maybe you can connect with one of the Rotary clubs,the Peace Corps, or the

U.S. Embassy to arrange 'rental' of an animal for your daughter to ride.

Gretchen

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and ,

My daughter was 6 when we found out she had CMT. We live in the country and

being horse people we got one for her. It was the best form of physicle therapy

we could get. She is 28 now, 3 children and not only rides but she trains

horses.

Sharon

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Hi and Cheryl,

I have had CMT since I was a child. My parents used to hold my  hands, that was

enough for me. With a more severe problem and uneven ground I would recommend a

child walker. That means your daughter can walk without having to concentrate on

her balance. A tricycle could be great too, there are bigger models for bigger

kids.

Also, I like cool looking aids, and something that looks really cool and would

be great for your daughter is the carts you can hang after bikes, but also

remove and use as a " buggy " . They are big enough to accomodate a bigger child +

package, and there is a raincover! There are 4 or 3 wheeled versions. No need

for a bike at all, but of course it is a plus, to be able to go biking to. Think

your daughter would prefer this! My son loved his, and he does not have CMT. We

just stopped using it, because he can bike around on his own well now (he is 6)

but no problem for him to sit in it still (+ a couple of bags fit too...)

Good luck!

Beata

 

From: BRIAN LADD <hbministries2@...>

Sent: Friday, August 21, 2009 5:55:12 PM

Subject: 6 year old with CMT

 

We have an adopted Mayan daughter from Guatemala with CMT. As missionaries we

travel a lot through Guatemala. Our daughter does well after she had surgery to

lengthen her Achilles tendons but gets tired after walking for a length of time.

A wheelchair is impractical as the terrain in most of the places that we go is

not suitable. Does anyone have an idea what we could use to cart her around when

she gets tired? We have been carrying her but we are in our sixties and she is

not overweight but solid and it is causing us some medical problems.

& Ladd

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