Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 Hi Gretchen and Group, I live in Elgin, which is about 25 miles east of Austin. I do get to travel Texas to see my step daughter in Lubbock, but other than the windmills there is not much to see out in west Texas. My wife has a lot of family in Fredrickburg, so we do get to see the hill country often as well. Even though we are 25 miles from Austin, we are still a very small town, which after growing up in St. Louis is really strange for me. I am not sure how many people in the group are from Texas, but I know there is no CMTA support group around here. I have contacted the CMTA and am working to try to set up a central Texas support group. I have not been able two work in over a year so I am now a stay at home dad to five kids(3 step children and 2 of my own), and they are all under the age of 9. Sorry to carry on, was not my intention. Hope everyone has a great day! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Welcome Kris........ I'm from Minnesota. Geri Hi Gretchen and Group, I live in Elgin, which is about 25 miles east of Austin. I do get to travel Texas to see my step daughter in Lubbock, but other than the windmills there is not much to see out in west Texas. My wife has a lot of family in Fredrickburg, so we do get to see the hill country often as well. Even though we are 25 miles from Austin, we are still a very small town, which after growing up in St. Louis is really strange for me. I am not sure how many people in the group are from Texas, but I know there is no CMTA support group around here. I have contacted the CMTA and am working to try to set up a central Texas support group. I have not been able two work in over a year so I am now a stay at home dad to five kids(3 step children and 2 of my own), and they are all under the age of 9. Sorry to carry on, was not my intention. Hope everyone has a great day! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Welcome Kris, I am from Florida and have a 29 year daughter that lives in San . Good luck on trying to get a support group together. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Welcome Kris I am from Florida and have a 29 year daughter that lives in San . Good luck on trying to get a support group together. Elaine From: Geri Logan <hotwheels@...> Subject: Re: Central Texas CMT Date: Wednesday, May 27, 2009, 7:51 PM Welcome Kris........ I'm from Minnesota. Geri Hi Gretchen and Group, I live in Elgin, which is about 25 miles east of Austin. I do get to travel Texas to see my step daughter in Lubbock, but other than the windmills there is not much to see out in west Texas. My wife has a lot of family in Fredrickburg, so we do get to see the hill country often as well. Even though we are 25 miles from Austin, we are still a very small town, which after growing up in St. Louis is really strange for me. I am not sure how many people in the group are from Texas, but I know there is no CMTA support group around here. I have contacted the CMTA and am working to try to set up a central Texas support group. I have not been able two work in over a year so I am now a stay at home dad to five kids(3 step children and 2 of my own), and they are all under the age of 9. Sorry to carry on, was not my intention. Hope everyone has a great day! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Hi Kris, I live in Sugar Land SW of Houston. I was diagnosed 5 years ago with CMT, decided to have the Athena genetic test which was pd by insurance (thankfully, since it was around $15K) and they determined that I don't have CMT, I have HNPP (hereditary neuropathy with presssure palsy). I'd have never known this w/o the test, it masks as CMT. Basically, I am missing the PMP22 gene. But I still need all the aids...cane on a good day for short in the house walks, a walker for longer/more tiring trips and a scooter for stores, airports etc. My handwriting is a mess, numbness, basically the same symptoms as CMT. I walk and have the limitations of someone with CMT, so I guess we're all in the same boat. So welcome to the group. I found a support group for HN (not CMT) in West Houston, my neuro says there is a CMT group in the med center. If the group is well run and welll moderated, you do get good info. That's how I found out to AVOID vitamin B6. So knowledge is power, good luck with your group. We need all the info we can get. Jeanne Quote Link to comment Share on other sites More sharing options...
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