Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 Hi Geri, I don't remember kids being nasty to me for having CMT. They asked why I walked like that, but they never teased me. I thought that this was rare, and that teasing is more common, but I recently read an article about things kids tease others for, and it is usually things that the teased kid can do something about: Like teasing someone who is overweight. Kids think that the person could go on a diet and become thinner, but since they don't, it is ok to tease. Kids rarely tease others for something that they can't do anything about, like a cronical disease. Good to know for you with CMT children! Beata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 It was my experience that the children were brutal tyrants who did tease people about the things that they could not change. I had a terrible gait that progressed greatly from the sixth-grade into the eighth grade. kids were merciless in demanding that I learn how to walk correctly. Trouble was... I didn't know what they were talking about. I know that sounds like a Monty Python skit, but it's true: I did not know what they were talking about. And it wasn't only me. At that time in the 70s they were doing a thing called mainstreaming which was placing people who were obviously seriously learning-disabled, and placing them in regular schools with rich kids who have no problems. Further, if you weren't into skiing basketball baseball football or some other sport, including hunting, and if you were not good at which ever sport by the time you were 12, you were just simply no good as a person. You may think I'm exaggerating, but I am not. I think these days it might be easier because there's all kinds of awareness programs and laws and rights have been through adjudication increased the protection for kids like me. So I think that the blame that would happen now is nowhere near the bullying that I had to deal with 25 years 30 years ago. And I really didn't know what was wrong. I had no diagnosis until I was 13, and out of junior high school. I sincerely hope that any kids who are involved in harassing other children because of something, " they are supposed to be able to do, " are severely disciplined if not thrown completely out of the school. Actually I oppose suspension as a means of behavioral control for kids in school, because those disruptive people who might deserve a suspension, really probably don't want to be in school anyway. So suspension is no punishment. Detention is punishment, but not suspension. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 Lets ask the group .if they got treated nasty by kids for being different.... Kids were very nasty to me..I hated each and every day of school. Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 OH BOY.DO I HEAR YOU ERIC!!! The teachers weren't very nice either!They acted like I had a mental disability as well, and didn't stop the kids when they were mean but looked they other way. If I tried to defend myself..guess who stayed after school and had to walk three miles to get home! I would be exhausted!I would be sick every morning ,knowing what my day was going to be like. Geri It was my experience that the children were brutal tyrants who did tease people about the things that they could not change. I had a terrible gait that progressed greatly from the sixth-grade into the eighth grade. kids were merciless in demanding that I learn how to walk correctly. Trouble was... I didn't know what they were talking about. I know that sounds like a Monty Python skit, but it's true: I did not know what they were talking about. And it wasn't only me. At that time in the 70s they were doing a thing called mainstreaming which was placing people who were obviously seriously learning-disabled, and placing them in regular schools with rich kids who have no problems. Further, if you weren't into skiing basketball baseball football or some other sport, including hunting, and if you were not good at which ever sport by the time you were 12, you were just simply no good as a person. You may think I'm exaggerating, but I am not. I think these days it might be easier because there's all kinds of awareness programs and laws and rights have been through adjudication increased the protection for kids like me. So I think that the blame that would happen now is nowhere near the bullying that I had to deal with 25 years 30 years ago. And I really didn't know what was wrong. I had no diagnosis until I was 13, and out of junior high school. I sincerely hope that any kids who are involved in harassing other children because of something, " they are supposed to be able to do, " are severely disciplined if not thrown completely out of the school. Actually I oppose suspension as a means of behavioral control for kids in school, because those disruptive people who might deserve a suspension, really probably don't want to be in school anyway. So suspension is no punishment. Detention is punishment, but not suspension. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 I think that both statements about bullying in schools have validity. Kids bully those that they feel superior to - even today. Jocks bully the kids who don't play sports. They consider non-jocks not worthy of engaging in any type of interaction. The flip side is that kids tend to ignore students with disabilities. My son gets out of his wheel chair to sit at the lunch tables and no one comes to join him. We had a fire drill today, and I pushed him out to the parking lot - not a single student offered to open a door or tried to have any interaction....it breaks my heart. Kids for the most part today are very self-centered. So, the choice for my son is either be bullied or be ignored. He's a very smart kid and has chosen not to let much bother him. He figures that folks who he reaches out to and respond in kind are worth the effort. Folks that ignore him should be ignored. Those that bully or make fun...well he justs rolls past them. At 16 when most boys are really into sports and learning to drive and starting to have girlfriends and hang out in groups making plans...he has no circle of friends to do this with. We are hopeful that if he can make it through an entire year of school this will start to change. Basically, kids are still kids, and all of the awareness and acceptance teachings in the world haven't made much of a change in the general populations viewpoint on assimilating those with disabilities in the world. One final example....a bank branch was recently opened in our school. A beautiful little facility, completely designed and implemented by a local credit union. I went in today to open an account for my son. While the paperwork was being processed the door opened and another parent came in. Mom was in a wheelchair. Mom could not approach either teller station because neither was handicap accessible. Neither the credit union or the school thought about how they would service folks in wheelchairs. The world still needs changing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 The only kids that teased me were boys, and that's natural. It wasn't CMT related at all, they just liked me. One boy threw a rock at me while we were all walking homw from school, hit me in the head, I was bloodied, freaked Mom out and we had to go visit the Principal and get this boy 'straightened out', lol (circa 1961) While spending an afternoon at another boy's house, he wanted to play 'barbershop', so he cut off some of my hair, lol, but really pissed Mom off, lol In my talks with we talked alot about 'bullying and CMT'. And bullying in many other forms. Her book " Aunt Scarlett's Farm " addresses this issue for kids about what appears as teasing, but in reality is bullying http://www.susanwheeleronline.com/bullying.php Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 As for me the kids in school never changed.even when I went back for the 25th class reunion.the snobs were still snobs. The cheer leaders were sill worried about looks, money and popularity.although most had lost their hour glass figure and were now more round. The school jocks were also round and balding but their attitude had not changed when it came to others with disabilities. geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 I do remember being teased once: A boy asked me why I was drunk, what had I been drinking? So I said: Yeah strange that I got so drunk, I only had some milk! And everybody laughed at HIM. So he didn't tease me anymore after that. But I mean, I think I got teased a lot less than other (no CMT) kids. Don't know why, but maybe because I always had CMT (since birth) and everybody in my class got used to it. It didn't get worse either. There is no need for girls to be super athletes, and I went swimming instead of doing sports at school. It was hard to be a teenager with CMT, but it was because I did not want to have CMT. But others treated me (and treat me still) so well. I am also a bit worried for my son, who is healthy but he has chosen to dance ballet (his choice entirely, I tried to talk him into other dance forms or soccer, but no!). He is just 6 years old, but he loves ballet! And he is good at it too. But I am afraid they will tease him. Already there have been two incidents: I told in front of his friend to get his bag with ballet clothes. The friend started to laugh and said: Do you wear ballet clothes? I explained that boys wear black shorts and white T-shirt. The friend said: Oh ok! So that was that. The second thing was in front of the ballet classroom. A little girl pointed at (there are no other boys, of course) and asked her dad: Why is she wearing shorts? Her dad said: But he is a boy! And the girl said: Oh ok! So I think kids need to understand the strange things. We need to explain that some people are different and that they should always ask why they are different. When they get the answer and understand that being different is ok too, then they won't be teasing anymore! Kids at 's school ask me why I walk like that, and I always explain. It feels good to that. Parents should tell their kids that the best thing is to ask the person who is different directly. I always did that with . He saw a man with a strange eye and asked me why he had a strange eye. So I told him to ask the man! That is the best approach, I think. Beata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 , I feel your son will get friends soon! The good thing about being ignored is that as person with disability you do not want to stick out, and if they ignore you, than it means they consider you to be just like everybody else. But making friends is hard for all kids, except a few over-social kids who just approach others and say: Do you want to be my friend? (My son is like that, our house is full of kids most days.)In a good school, the teachers notice if someone lacks friends and they can try to match kids together. Like giving two kids an assignment, go to the library together or with smaller kids they could be asked to make a picture together with X (who is normally alone). I would let the teachers know that your son does not have friends, and make them aware of that! Beata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Kids have been teasing each other since the beginning of time. It's really better in the long run to let kids work this out among themselves. When moms get involved like today's hovering moms it's never better for their kids as well meaning as they may think they are. Some mom's today are trying to get way too many special programs and aids for their kids and then wonder why their kids don't feel they fit in with their peer group. I'm sure I may have been teased some, I really don't remember much of it and I don't remember being bullied at all, but I had my circle of friends and was involved with the typical social life of the time. My parents let me live my own life at school. I don't remember them coming to school other than for PTA meetings or open houses. Sure some kids can be cruel but having your mom there fighting the battle for you only makes it worse or separates you from the rest of the kids. Moms, let your kids be kids. You'll be surprised how well they can do on their own. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Bob, very well said. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Thanks Beata for your kind words. I know he will find his way...it still just breaks my heart. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 What? I don't understand you thinking! It isn't fun to be ignored. Whether one has a disability of not! No matter what the age! You said......You don't want to stick out because you have a disability! Where are you coming from? So being ignored is a good thing? If they ignore you and you have no friends, it means they " dont " acccept you!! If the teacher hasn't noticed this child sitting alone by now, then she/he don't give a rip! How about if people just acted like you were a normal human being...wouldn't that be nice. Why should people try to cover up their disabilities to be accepted....don't need friends if I have to put on a front! They aren't worth it! and are not true friends. Geri Quote Link to comment Share on other sites More sharing options...
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