Re: new patientt

[Guest guest]

Yes, rashes too, especially on the buttocks and legs. Fairly rare, but can

be associated with HSP, which is basically the same disease as IgAN except

that it affects more than just the kidneys.

If you do have pain in the flanks, I'm afraid that you will find there isn't

much that can be done about it in most cases.

Also, if your follow-ups are at six month intervals right now, that suggests

your disease is moderate at present.

Pierre

new patientt

> >Date: Sun, 2 Dec 2001 19:46:20 -0500

> >

> >I had wanted to join and just " lurk " for a while but I can't seem to get

> >into old digest. But I do have some questions.

> >I understand this disease is more common in young men, but I am a 49 year

> >old female, just diagnosed 9 months ago, due to a urinalysis at a routine

> >physical. Persistent proteinuria, nephritic ranges, persistent

microscopic

> >hematuria, renal biopsy shows old and active lesions, and those

" crescents "

> >I keep reading about in the books.

> >I am on fish oil and the ace inhibitor. I have gained 15 pounds over the

> >last 9 months and I may just be getting fat! There is no edema in my

feet.

> >I

> >have no other symptoms or lab abnormalities. So my question is, what

should

> >I watch for? What should I notice? Are there any symptoms of progression?

> >The physician has only requested visits and labs every 6 months, but I

did

> >a

> >urine on my own to see if the fish oil or ace had made any difference,

and

> >it had not. What should I watch for in-between these 6 month visits? I

owe

> >too much money to miss work or be sick!!!!

> > Kathy Mann mann@...

> >

>

>

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