Re: How CMT parents see themselves and children influence how children

[Guest guest]

Lori,

You might be interested in O's info on explaining CMT to kids. It may

help your son explain to his friends.

http://cmtausa.org/parents_kids/parents_story.php?id=20

Remembering back to when I was 10 and just diagnosed, I had no concept that this

would be a " lifelong thing " . The doc told me I had CMT, that I needed foot

surgery, and to swim and walk in sand. I thought that was OK, my feet would get

fixed, I'd go to a hospital (big adventure!) and have casts on after. The doc

also told me my CMT may be 'slightly progressive, or not at all'. (this was in

the early 60's)

The years went by, symptoms came and went, and were treated where possible with

supplements, medication or physical therapy. All throughout my life my good

friends never cared what I had and were often amazed at how brave and 'daring' I

was in some situations. My parents and friends never made a big deal out of my

CMT and I grew up just as part of the mainstream.

46 years later here I am with CMT as a " lifelong thing " , the years passed, I

grew up, CMT is just one part of who I am and I consider myself part of the

mainstream still.

Gretchen

[Guest guest]

Parents faces are mirrors to children. When my niece was in the hospital having

cleft lip surgery we were told to go in happy and smiling so she wouldn't be

scared. It worked until she saw an actual mirror.

[Guest guest]

Just wanted to update everyone that I am going into my son's classroom today to

work with him to explain to the class why he runs slower etc. I am going to use

some portions of the CMTA classroom presentation for kids (below). I will let

you know how it goes.

Lori

Lori,

You might be interested in O's info on explaining CMT to kids. It may

help your son explain to his friends.

http://cmtausa.org/parents_kids/parents_story.php?id=20

[Guest guest]

That sounds great Lori.

Re: How CMT parents see themselves and children influence how

children

Just wanted to update everyone that I am going into my son's classroom today

to work with him to explain to the class why he runs slower etc. I am going to

use some portions of the CMTA classroom presentation for kids (below). I will

let you know how it goes.

Lori

Lori,

You might be interested in O's info on explaining CMT to kids. It

may help your son explain to his friends.

http://cmtausa.org/parents_kids/parents_story.php?id=20

[Guest guest]

I love it. Thanks for sharing.  I will present this to my son's classroom as

well.  He will be going to Kinder in August.  Any other suggestions will help.

Anita

GOD BLESS YOU!!!

http://shalomtravel.worldventures.biz/

From: Lori Mattheiss <mattheiss137@...>

Subject: Re: How CMT parents see themselves and children influence how

children

Date: Monday, June 15, 2009, 11:56 AM

Just wanted to update everyone that I am going into my son's classroom today to

work with him to explain to the class why he runs slower etc. I am going to use

some portions of the CMTA classroom presentation for kids (below).. I will let

you know how it goes.

Lori

Lori,

You might be interested in O's info on explaining CMT to kids. It may

help your son explain to his friends.

http://cmtausa. org/parents_ kids/parents_ story.php? id=20